• CdLS Foundation-Sponsored Northeast Family Gathering

    Join families from New York and the Northeast for a CDLS Foundation-sponsored Family Gathering.  Saturday, July 12, 2025 2 – 6 p.m. ET       The Arp Home 9B Sandpiper Lane Rexford, NY (9B is on the white mailbox with a long driveway) Graciously Hosted by Jennifer and Nicholas Arp, parents to Jenna. Bring […]

  • Virtual Support Groups for Parents

    The CdLS Foundation is pleased to offer Virtual Support Groups for Parents, providing a consistent opportunity to connect, share, and support one another. 🗓 Thursday, August 7, 2025 🕖 7:00 – 8:00 p.m. ET We believe no parent should walk this path alone at the CdLS Foundation. As caregivers, you are the backbone of our […]

  • Virtual Support Groups for Parents

    The CdLS Foundation is pleased to offer Virtual Support Groups for Parents, providing a consistent opportunity to connect, share, and support one another. 🗓 Thursday, September 4, 2025 🕖 7:00 – 8:15 p.m. ET We believe no parent should walk this path alone at the CdLS Foundation. As caregivers, you are the backbone of our […]

  • A Lifetime of Moments: Building Memories and Living your Child’s Legacy Together

    Time together making memories as a family may feel especially precious when the child is living with a life-threatening medical condition. Making memories and sharing experiences that become part of the child’s legacy and the family’s treasure box can take many forms and can happen anytime: special occasions or a typical weekday. There is meaning […]

  • Virtual Support Groups for Parents

    The CdLS Foundation is pleased to offer Virtual Support Groups for Parents, providing a consistent opportunity to connect, share, and support one another. 🗓 Thursday, October 2, 2025 🕖 7:00 – 8:15 p.m. ET We believe no parent should walk this path alone at the CdLS Foundation. As caregivers, you are the backbone of our […]

  • Every Voice Matters: Advocating for Person-Centered Medical Care Webinar

    Caring for a loved one who needs ongoing support is never simple—and when serious medical challenges arise, the journey can feel overwhelming. In this heartfelt and practical webinar, Bettie Bell shares the story of her autistic son Maurice’s stage 4 cancer diagnosis and the powerful lessons they discovered along the way. Together, Bettie and Maurice […]

  • Parent University: Sibling Panel – Let’s Talk About What Sibs Need to Know, When They Need to Know It, and Why. Let’s Hear Experiences From Siblings Themselves – The Future Without Us Peace of Mind

    Many of us are going to count on the siblings or other family members to step into our shoes. What jobs are they taking on? Do they feel like we have prepared them? What do they want to know yet? Have they already experienced the responsibilities? Have we as parents even talked with them, and […]

  • You Can Never Be Too Prepared: Pediatric Disaster and Emergency Preparedness

    Children have unique medical, emotional, and developmental needs during disasters, and preparing to meet those needs is essential for effective response and recovery. This is even truer for children with a serious medical condition. This event will provide a platform for learning and sharing best practices to create an actionable plan that prioritizes the safety […]