• International Siblings Day

    International Siblings Day is a special time to celebrate the unique, lifelong bond between brothers and sisters. Siblings of individuals with CdLS play an incredible role, offering love, support, advocacy, […]

  • Adolescent and Adult Multidisciplinary Clinic

    Harvey Institute for Human Genetics, Greater Baltimore Medical Center 6701 N. Charles St., Suite 2326, Baltimore, MD, United States

    This Foundation-managed, free Cornelia de Lange Syndrome (CdLS) clinic is held twice each year at Greater Baltimore Medical Center (GBMC) in Baltimore, Maryland. Led since 2001 by Foundation Medical Director […]

  • 2026 International CdLS Awareness Day

    International CdLS Awareness Day is an opportunity for our community and the world to come together to raise awareness about CdLS, a rare and often misunderstood genetic spectrum disorder. This […]