We understand that often we as parents put our children first. It’s natural. But we need to make sure we are financially secure as well, because without us, our children just might not be ok. We will talk about how your financial planning needs to be different, how to coordinate the Special Needs Trust and […]
This Foundation-managed, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore, MD. Foundation Medical Director Antonie Kline, M.D., Director of Clinical Genetics at the Harvey Institute for Human Genetics at GBMC, has led these clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. Presentations […]
We will discuss SSI, SSDI, DAC, Medicare, and Medicaid. We will talk about confusing topics like A.) Charging your child rent versus using the fair share formula. B.) Why do I hear you always get turned down the first time you apply for SSI? Is it true? C.) Do we really need to plan differently […]
CdLS Awareness Day is observed each year in order to shed light on this often misdiagnosed, little-known genetic syndrome. Parents, volunteers and others request official Awareness Day proclamations from governors and local leaders; hang awareness flyers in public places; make presentations to civic groups or health workers; write to their local newspapers; and much more. […]
In this class, we will discuss how to prepare siblings and future caregivers so that they feel comfortable taking over the role. Let’s bring up the tough topics. We as parents want confidence that our plan will work as Future Caregivers who will take on this very important role. The hard questions will be addressed. […]
Plans are underway for a fantastic golf fundraiser at Ipswich Country Club for the 29th Annual New England Golf Classic to be held on Monday, MAY 23, 2022! That's right this popular event has been moved back to it's original season and will be played in Spring. So be sure to make this your first […]
Find out how to start your peer-to-peer fundraising and join CdLS Foundation families, staff and volunteers as we walk, run or bike an easy stint along one of the scenic Rail Trails in New England on the Farmington Valley Greenway Trail. Events@cdlsusa.org
In this class, we will talk about taking vacations with your special needs child. How to plan better. Ideas so the whole family can have fun! How do we plan to make sure this continues by adding the recreation into our planning? And what about Service Dogs; Can they bring happiness and comfort to your […]
We will discuss what your Child’s Dream Team should consist of, such as your legal team, your financial team, medical support, recreation coordinators and the Coaches (the caregivers and guardians), How do you put a PLAYBOOK together with all the instructions your Team needs? What questions should you be asking your Dream Team now? How […]
Why is transitioning each child so different? In this class, we will discuss what happens when the bus stops coming. We will talk about day programming, special recreation services, job counseling, job coaching, and turning your child’s interest into a business opportunity.
