COVID-19 and Individuals with CdLS Webinar

For 39 years, the CdLS Foundation has been focused on improving the health and well-being of individuals living with CdLS and their families. Now, as the CdLS community confronts the COVID-19 pandemic, you are invited to join the Foundation and Drs. Antonie Kline and Soma Jyonouchi for a 30-minute webinar to hear how it affects […]

2020 TD Five Boro Bike Tour

New York City

Many bicyclists say that biking has changed their lives. Team CdLS bicyclists say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the TD Five Boro Bike Tour Sunday, May 3, 2020 The CdLS Foundation will be there with you every step of the way, providing you with: […]

Parent University: Taking Control of the Legal Mumbo Jumbo

Putting together legal documents is confusing. Legal “talk” sometimes intimidates us. But the real concepts are simple, and knowing what the legal “talk” means, how it applies to you and your family, and what you really need, is so important to the big picture of the future. Sometimes we need help. The level of help […]

CdLS National Family Conference

Marriott Tulsa Hotel, Southern Hills Tulsa, OK, United States

This event has been CANCELED. We are excited to announce important information regarding the 2022 CdLS Foundation National Family Conference! The Conference will be held in Tulsa, OK from June 23-26. Be sure to check out all of our information to get your fundraising plans going! 

2020 CdLS Foundation Virtual Conference

Join worldwide CLS experts for a two-day virtual conference. Speakers will discuss topics ranging from behavior, gastrointestinal (GI) challenges, gene changes and a medical panel featuring the United States Medical Director, Antonie Kline, MD. Viewers can choose to attend one or both days. One-day attendance is $25, and two-day attendance is $40. Registration opens on […]

Parent University: The Recipe for Financial Success

There are a myriad of insurance plans to understand. Health insurance, life insurance, disability insurance, long term care insurance – what to use, when? What makes sense? The ABLE account rules are so confusing, and you don’t want to make a mistake. We will review the basics of the ABLE account and how to select […]

Parent University: Your Child Is Aging Out … What Now?

Once your child is 22, they will start receiving social security. Now what? Where will your child live? Where will they work? Navigating the transition period can be overwhelming but also exciting. It’s not just about the place, it’s about the right home, continuing education, job opportunities, recreation, and the rest that makes life safe […]

2020 Bank of America Chicago Marathon

Chicago, IL

Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the world-renowned Bank of America Chicago Marathon Sunday, October 11, 2020 The CdLS Foundation will be there with you every step of the way, providing you […]