Discover how one sibling mastered the intricacies of the healthcare and service system to support her brother. Register here!

The WisconSibsREAD book club will meet for their monthly book discussion, laughter, and sibling-to-sibling bonding on Wednesday, November 20th. This month’s book is Rosemary: The Hidden Kennedy Daughter by Kate Clifford Larson. This book chronicles the life of Rosemary Kennedy, exploring her struggles with intellectual disabilities and the impact of her family’s decisions on her […]

“The Gap” is our desire to get to PERFECTION versus recognizing HOW FAR WE HAVE COME! We will use some exercises to walk out of the class with a positive feeling about our SUCCESSES! And…a reality check of what we should work toward in 2025. Register now

Save the date for our monthly virtual Meet Up which is of a more casual style focused on connection, collaboration and support. Bring your questions or life experience to the table around the Holidays! CaliforniaSibs is the official California state chapter of the nationwide Sibling Leadership Network (SLN). Our Mission is to partner with Sibs […]

This is it! The final Bulls and Barrels Event of the seriesPrize Buckles will be awarded, and Hollywood Harris will be there to entertain the crowd– you don’t want to miss this! Adults $10, Students $5 and 5 and under are free At Carters Arena in Chiefland, FL. Have some rodeo fun while raising awareness […]

Losing a loved one with CdLS at any age can be life-altering. Parents, siblings, relatives, and friends feel a tremendous loss and often have difficulty understanding why. It is so important that we as a community surround them with support and unconditional love. Although they have lost their child, grandchild, or sibling – they still […]

Anticipating the birth of a child can be one of the happiest times for parents. But when babies have life-threatening medical issues and begin their lives in the NICU, everything can change. For some parents, this may mean navigating a new role: learning how to navigate the NICU and communicate with the medical team; figuring […]

For the entire month of March, when you purchase a $2.50 reusable Community Bag at the Stop & Shop located at 498 Bushy Hill Road, Simsbury, CT, $1 is donated to the CdLS Foundation. Our goal is to sell 500 bags (including virtually), equivalent to $2,000500 bags (including virtually), equivalent to $2,000 raisedraised. We are […]

Please join us to explore how completing healthcare advance directives for/with your child can support your family’s goals and wishes. We will discuss the importance of discussing and documenting healthcare wishes upstream of an emergent/urgent medical event, medical implications of and quality-of-life considerations related to advance directives, and currently available directives. Presented by Fiona Sampey […]