Meet Zuri, Our Joyful Bloom!

Zuri is a bright light in our lives, full of strength, love, and a spirit that keeps blooming no matter the season. She lives with Cornelia de Lange Syndrome (CdLS), a rare genetic condition that affects her daily life in many ways. But despite the challenges, Zuri continues to grow, shine, and inspire everyone around her. This CdLS Awareness Day, we’re honoring her journey with our event, In Full Bloom for Zuri, a celebration of hope, growth, and awareness.

Your support helps us spread the word about CdLS, fund resources for families like ours, and most importantly, show Zuri that she’s never alone. Plant a seed of support by donating, sharing, or simply wearing purple on May 10. Together, let’s help the world bloom a little brighter for Zuri.

If you cannot attend and would still like to donate, click here.