Join families from New York and the Northeast for a CDLS Foundation-sponsored Family Gathering.

 Saturday, July 12, 2025

2 – 6 p.m. ET

      The Arp Home

9B Sandpiper Lane

Rexford, NY

(9B is on the white mailbox with a long driveway)

Graciously Hosted by Jennifer and Nicholas Arp, parents to Jenna.

Bring your swimsuit and towel to enjoy the pool! 

Bring the whole family and join us for a casual backyard get-together! You’ll have the chance to meet families in the area who share similar challenges and triumphs as parents of children with Cornelia de Lange Syndrome (CdLS).

SPECIAL GUESTS: The CdLS Foundation Family Service team will be available to answer questions