Our daughter Aubrie Schilling was diagnosed with Cornelia de Lange Syndrome last year at 15 months old through genetic testing at Nationwide Children’s Hospital in Columbus, Ohio. CdLS is a rare genetic spectrum disorder that causes a broad range of potential physical, cognitive, and medical challenges. After this surprising diagnosis, we contacted the CdLS Foundation, which quickly became our main resource for guidance and educational information. Since then, our lives have changed in many ways, but through the uncertainty of a new diagnosis, we found a community within the CdLS Foundation. We are thankful for the help this organization has provided to our family and their ongoing support as we continue to navigate this challenging journey.

We are also grateful to our family, friends, and sponsors for supporting this fundraising event for Aubrie’s Army. In our first year, we raised over $15,000. We hope that this gathering will continue to raise awareness about Cornelia de Lange Syndrome, bring together families traversing through a similar journey, and generate funds to empower the CdLS Foundation, a 501(c)(3) nonprofit organization, in its mission of providing indispensable services and resources!

We look forward to growing this event each year to continue to advocate for sweet Aubrie, the CdLS Foundation, and all those affected by Cornelia de Lange Syndrome. Thank you for your continued support!

Can’t attend but still want to support? Click here to donate to Aubrie’s Army.