Time: Registration begins at 9:30; walk begins at 10.
– No advance registration required.
– 2-mile walk on Stony’s paved path at your own pace. We’ll have coffee, donuts, bagels and juice.
– Even if you can’t walk, it’s a wonderful opportunity to connect with other families impacted by CdLS. Last year, we had 4 families with direct CdLS connections — three who have children and whose daughter had CdLS and died as an infant.
– There is a $10 daily park entrance fee to get into the park unless you have an annual Huron-Clinton Metroparks pass.
– Dogs are welcome but must be on a leash.
– We walk in the rain or shine. We’ve done both!
– This is the only event of its kind in Michigan.
– Call/text Maureen Feighan-Kurth at 248 701-9955 with any questions.

The walk was started in 2009 in honor of Will Kurth and his sister, Hope, both affected by CdLS. Will was born in Royal Oak, Michigan in 2004 and spent three months in the NICU before he died from respiratory issues. His sister, Hope, was born three years later, in 2007, also with CdLS. She spent two weeks in the NICU before coming home and has been full of sass and determination ever since. She turns 18 on Oct. 31.

The walk aims to honor not just Will and Hope, but all people impacted by CdLS. More importantly, it raises awareness of this rare condition, bringing together other families impacted by the syndrome. Since it was created, approximately 10 families with children with CdLS have walked with us, along with their loved ones. We’ve also raised more than more than $70,000 for the CdLS Foundation over the last 16 years. The Smith family and their daughter, Liz, have been important partners in organizing the walk every year.

If you can’t join us on Oct. 19, we’d love your support no matter what. We’re so grateful to everyone who has played a role in raising awareness of CdLS and being a part of the walk.
To support the Walk for Will and Hope click here.

Date: Sunday, Oct. 19
Location: Stony Creek Metropark, 4300 Main Park Road, Shelby Township.
Starting from Baypoint Beach Picnic Shelter. Look for the “Will & Hope” signs.
Time: Registration begins at 9:30; walk begins at 10.