Join us for a new, fun event to raise awareness and funds for our CdLS community.

The Eckerd College Science Outreach Club has recently established a Students for Rare chapter affiliated with the National Organization for Rare Disorders. Their mission is to raise awareness about rare diseases and advocate for equitable access to healthcare for individuals within the rare disease community. Through education, outreach, and advocacy, the organization aims to amplify the voices of those affected by rare conditions and work toward a more inclusive and supportive healthcare system.

Madi McCune, a senior and member of the Science Outreach Club (SOC), chose the CdLS Foundation because Madi did a research project through Harvard Medical School this past summer at Massachusetts General Hospital’s Center for Genomic Medicine that focused on the pathophysiology of cohesinopathies, CdLS being the most prominent. Learning about this disease encouraged her and her chapter to involve ourselves further by creating a fundraiser to support future research and the families impacted by this rare genetic disorder.

Support Madi and the Eckerd College Science Outreach Club Students and their NORD Chapter on Saturday, April 12 at 11:00 a.m. at the Eckerd College Campus GO Pavilion for the NORD Color Run for CDLS. It will be a 1.5-mile walk/run. Have some fun and raise awareness and funds for this rare disorder.

See you there!

Thank you. Together, we will continue to reach out, provide help, and give hope to the CdLS community.

Saturday, April 12, 2025
11:00 a.m.
Eckerd College Waterfront
4200 54th Ave. S
St. Petersburg, FL

Can’t make the Color Run but still want to support it? Scan the QR Code.