The CdLS Foundation, in partnership with Shriners Children’s Salt Lake City, is pleased to announce a Multi-Specialty Clinic for children with Cornelia de Lange Syndrome (CdLS) on August 13, 2026, at Shriners Children’s Salt Lake City. This clinic provides children with CdLS and their families access to comprehensive, coordinated medical care in one convenient location.

To attend, a child must be an existing Shriners patient or be evaluated at a Shriners Children’s facility prior to the clinic date. Assistance and additional details are available below.

This long-standing collaboration between the CdLS Foundation and Shriners Children’s creates a unique opportunity for families to meet with multiple pediatric specialists experienced in CdLS in a single day, helping streamline care and reduce the burden of multiple appointments.

Medical specialties available at the clinic include:

• Genetics
• Otolaryngology (ENT)
• Gastroenterology
• Pediatrics
• Nutrition/Dietetics
• Social Work
• Orthopedics
• Audiology
• Wheelchair and Seating*
• Orthotists and Prosthetists*

*Consultations may include devices such as custom shoe inserts and orthotics, braces, seating systems for medical strollers and wheelchairs, and other supports designed to improve mobility, comfort, and quality of life.

For more information about the CdLS Multi-Specialty Clinic in Salt Lake City or to reserve your spot, please contact Whitney Rinaldi, Program Director of Family Services, at 860-676-8166.