International CdLS Awareness Day is an opportunity for our community and the world to come together to raise awareness about CdLS, a rare and often misunderstood genetic spectrum disorder. This meaningful day is about more than awareness; it’s about connection, education, and hope.

Families, advocates, healthcare professionals, and supporters unite to share stories, spread knowledge, and amplify the voices of individuals living with CdLS. From going live on social media and sharing educational flyers to presenting at schools, civic groups, and medical offices, every action helps build understanding and awareness. Many community members also reach out to local media, host gatherings, launch social media campaigns, and organize fundraisers to support research and family services.

Together, we can help promote earlier diagnosis, better resources, and a more compassionate world for individuals with CdLS and their families. Every share, every conversation, and every act of advocacy makes a difference.

For more information, contact Gabrielle Nadeau.