National Family Conference

National Family Conference is a life-enhancing, 4-day event that bonds and strengthens the entire CdLS community. Held every other year, Conference brings together the broad spectrum of our diverse and dynamic community, including individuals with CdLS, their families, caregivers, medical and therapeutic professionals, volunteers and researchers.

What to Expect

Attendees have an opportunity to gain knowledge on how to best care for their loved one with CdLS and meet other families facing similar challenges. Individuals with CdLS receive free head-to-toe consultations with experts from a range of health and educational fields.

Not only will attendees be better equipped to face challenges throughout their loved one’s lives, but also leave with a sense of belonging.


Personal Fundraising

There are many ways to raise funds for Conference but make sure you choose the best one for you and your contact. Evaluate your We are just under a year from the 2020 National Family Conference. The Foundation has created tools for you to prepare for your trip – from a webinar from a seasoned Life Coach and mom of a child with CdLS to a toolkit to help you fundraise. We are on to forefront to help you succeed. We hope these resources help you.