National Family Conference

National Family Conference is a life-enhancing, 4-day event that bonds and strengthens the entire CdLS community. Held every other year, Conference brings together the broad spectrum of our diverse and dynamic community, including individuals with CdLS, their families, caregivers, medical and therapeutic professionals, volunteers and researchers.

2020 CdLS Foundation Virtual Conference

If you missed the 2020 Virtual Conference, you have a chance to see what everyone is talking about! Purchase your copy of the workshops and watch them on your schedule. Watch leading experts from around the world and learn about important topics that affect the lives of individuals with CdLS and their families.

Gain access to all workshops until June 2021.

Event Update

Although the COVID-19 pandemic cancelled the 2020 CdLS Foundation National Family Conference.

We are excited to announce important information regarding the 2022 CdLS Foundation National Family Conference! The Conference will be held in Tulsa, OK from June 23-26.

Be sure to check out all of our information below to get your fundraising plans going!


What to Expect

Attendees have an opportunity to gain knowledge on how to best care for their loved one with CdLS and meet other families facing similar challenges. Individuals with CdLS receive free head-to-toe consultations with experts from a range of health and educational fields.

Not only will attendees be better equipped to face challenges throughout their loved one’s lives, but also leave with a sense of belonging.


Ways to Support Conference

There are many ways you can contribute to the 2022 National Family Conference. YOU can be the hero that provides an extra consultation, supports the sibling programs or help a family attend for the first time.

Personal Fundraising

There are many ways to raise funds for Conference but make sure you choose the best one for you and your family. The CdLS Foundation has created tools for you to prepare for your trip – from a webinar with a seasoned Life Coach and mom of a child with CdLS to a toolkit to help you fundraise. These resources are here to guide and help you succeed.