National Family Conference

National Family Conference is a life-enhancing, 4-day event that bonds and strengthens the entire CdLS community. Held every other year, Conference brings together the broad spectrum of our diverse and dynamic community, including individuals with CdLS, their families, caregivers, medical and therapeutic professionals, volunteers and researchers.

Conference 2022

The Conference will be held in Tulsa, OK from June 23-26.
Brighter days ahead and the world is finding safer ways for loved ones to be together again. We are excited to announce that we will be embracing the adventure in Tulsa in June of 2022!

The CdLS Foundation National Family Conference is scheduled for June 23 – 26, 2022, in Tulsa, OK. The goal remains the same – provide education and support to individuals with CdLS and their families.


What to Expect

Attendees have an opportunity to gain knowledge on how to best care for their loved one with CdLS and meet other families facing similar challenges. Individuals with CdLS receive free head-to-toe consultations with experts from a range of health and educational fields.

Not only will attendees be better equipped to face challenges throughout their loved one’s lives, but also leave with a sense of belonging.


Registration Information

Registration for conference is scheduled to open Tuesday, March 8, 2022.

The early bird registration deadline is April 8; the final deadline is May 20.

Conference can accommodate up to 150 families. Once that number is met, registration is closed.

The registration covers all workshops and sessions, medical and educational consultations, and the following meals: Thursday night ice cream social; Friday breakfast, lunch and dinner; Saturday breakfast, lunch and dinner and Sunday continental breakfast. It does not cover hotel or travel expenses.

Fee Schedule

Registration Fees
  Before 4/8 After 4/8
Adult 18+ $370 $410
Person Providing Childcare $250 $280
Children 3-17 $190 $215
Children 2 and Under No cost No cost
Person with CdLS No cost No cost
One-day Professional $150 $150


The conference takes place at the Marriott Tulsa Hotel, Southern Hills ( Access to booking hotel rooms is through online registration. The reduced room rate is $125/night plus tax. The reduced room rate is only for people registered for conference. All non-registered guests using the conference room rate will be removed from the room block and be required to pay the regular room rate.

Personal Fundraising

There are many ways to raise funds for Conference but make sure you choose the best one for you and your family. The CdLS Foundation has created tools for you to prepare for your trip – from a webinar with a seasoned Life Coach and mom of a child with CdLS to a toolkit to help you fundraise. These resources are here to guide and help you succeed.

Ways to Support Conference

There are many ways you can contribute to the 2022 National Family Conference. YOU can be the hero that provides an extra consultation, supports the sibling programs or help a family attend for the first time.