Centers for Excellence
The work at these institutions has changed the landscape of what is known about CdLS and how it can be managed. The designations and primary investigators at each institution are as follows:
- Children’s Hospital of Philadelphia, Clinical and Research Center of Excellence. Sarah Raible, M.S.
- Greater Baltimore Medical Center, Clinical Center of Excellence. Antonie Kline, M.D.
- University of California, Irvine, Research Center of Excellence. Arthur Lander, M.D., Ph.D.; Anne Calof, Ph.D.; and Thomas Schilling, Ph.D.
- Stowers Institute for Medical Research, Kansas City, Research Center for Excellence. Jennifer Gerton, Ph.D.
- Shriners Children’s Salt Lake City, Clinical Center of Excellence. Michelle Nylander, PRN
In order to receive this designation, an institution must meet the following criteria, set by the CdLS Foundation:
Clinical Centers
- Offer a specialized multidisciplinary approach to patients in a specific CdLS clinic in a medical facility.
- Demonstrate a strong knowledge base of CdLS.
- Commit to furthering clinical knowledge of CdLS through collaboration with others.
- Disseminate new clinical findings related to CdLS via national meetings, publications or other significant contributions.
- Receive private or public funding for CdLS research.
Research Centers
- Pursue research that provides a significant contribution towards understanding the science behind CdLS.
- Demonstrate a strong knowledge base of CdLS.
- Commit to furthering scientific knowledge of CdLS through collaboration with others.
- Disseminate new scientific findings related to CdLS via national meetings, publications or other significant contributions.
- Receive private or public funding for CdLS research.