Culture

Tethered Spinal Cord 2

During the time that my daughter was diagnosed with CdLS, my doctor noticed that my daughter had a small patch of hair on the base of her spine. The patch is no longer there, but there is a small birth mark present. Her Doctor thinks that it could be a sign of tethered cord. My daughter doesn’t show any neurological effects so far. She does have occasional accidents and she is also a chronic bed-wetter and has had a history of bladder infections. They are going to conduct an MRI to help confirm. Can these be symptoms of a tethered spinal cord? Is this common in children with CdLS?

While it is certainly not common, there is an impression that things such as a tethered cord and occult spinal dysraphism may indeed be a little more common in children with CdLS – but this could also be by chance. MRI is a good idea.

CB/ TK 7-13-10

Legal Disclaimer:  Please take note that the CdLS Foundation’s Ask the Expert service is comprised of volunteer professionals in various areas of focus. Response times may vary and a response is not guaranteed. Answers are not considered a medical, behavioral, or educational consultation. Ask the Expert is not a substitute for the care and attention your child’s personal physician, psychologist, educational consultant, or social worker can deliver.

Answer Published On: October 18th, 2018 12:27 PM