Our 12-year-old daughter began her menstrual cycle and really doesn’t understand it, although she is better now. Her flow seems unusually heavy and it just runs down her. Should we take her to her doctor to see if anything can be done?
Typically, the DepoProvera shots (progesterone) will eventually decrease the blood flow of the menstrual periods, or stop them altogether. Initially, though, there can be increased blood flow that could last up to 9-12 months. Also, an oral contraceptive (“the pill”) will help regulate flow. Parents have reported difficulty with their daughters understanding menstrual periods. I would think it helpful for parents of young, adolescent daughters with CdLS to discuss several issues with their health care provider, including control of bleeding, prevention of pregnancy, and sexuality, preferably prior to the onset of menses.
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