Foreskin (retraction)

My son’s foreskin seems to have grown back some and he dislikes having his genitals touched. He refuses to clean beneath the foreskin himself, which sometimes results in infections. Is having one’s foreskin grow back a phenomenon that occurs in males with CdLS? His doctors are suggesting another circumcision. Do you know of any other males with CdLS who have had to have this procedure repeated?

This sounds like a phimosis, which is when the foreskin cannot be retracted, and should be addressed since it can lead to problems. It would not be related to CdLS. I would recommend a pediatric urologist or pediatric surgeon to evaluate him for this, and they might be able to refer you to another family (maybe not with CdLS but having a recent similar experience). Occasionally with any circumcision there can be excessive or redundant skin and this may need to be repaired subsequently. Again, this would be unrelated to CdLS.

TK 7-13-10

Legal Disclaimer:  Please take note that the CdLS Foundation’s Ask the Expert service is comprised of volunteer professionals in various areas of focus. Response times may vary and a response is not guaranteed. Answers are not considered a medical, behavioral, or educational consultation. Ask the Expert is not a substitute for the care and attention your child’s personal physician, psychologist, educational consultant, or social worker can deliver.

Answer Published On: October 18th, 2018 7:34 PM