Botox Injections

Our seven-year-old son’s occupational therapist would like him to have botox injections in his hamstrings and possibly upper back. I need to know if that’s been successful for any CdLS kids.

I have not heard of anyone using botox for CdLS, probably because the contractures (bent, non-moving joints) are from tight collagen and not so much from muscle spasticity. Botox weakens spastic muscles for awhile. I doubt if botox would help, but I doubt if it would cause any new problem. I do know that it is very expensive and may not be covered by insurance.

TR/TK 7-13-10

Legal Disclaimer:  Please take note that the CdLS Foundation’s Ask the Expert service is comprised of volunteer professionals in various areas of focus. Response times may vary and a response is not guaranteed. Answers are not considered a medical, behavioral, or educational consultation. Ask the Expert is not a substitute for the care and attention your child’s personal physician, psychologist, educational consultant, or social worker can deliver.

Answer Published On: October 18th, 2018 2:40 PM