Bedwetting

Question: Even though our son is 17, he still struggles with bedwetting. We try cutting off the water after supper, but it doesn’t always help. Is this normal for someone with CdLS? I also struggle finding nighttime pull-ups that fit him right. Do you have any suggestions on brands that would work?

Answer: Even though he seems to be doing ok with using the bathroom, he might not be completely emptying his bladder. I would recommend that you get a baseline renal bladder ultrasound with pre- and post-void. If there is an experienced pediatric urologist close by, that would be very helpful. He should get a good GU exam to rule out any structural problems.

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