2017 - St. Louis Clinic is created.

The first CdLS Clinic at St. Louis Children’s Hospital is organized.  

The two-day clinic gives families easy access to a wide range of specialists in gastroenterology, ophthalmology, genetics, neurology, audiology/ear, nose and throat and psychology. Individuals with CdLS receive “head to toe” expert consultations. Families attend a luncheon and presentation about CdLS with guest speaker, Dr. Tonie Kline.