2016 - Shriner’s Clinic is created.

The first CdLS Clinic at Shriner’s Hospital in Salt Lake City is organized. 

Since its inception, Shriners Hospital for Children hosts its clinic annually with a range of specialists available just for children with CdLS (age 18 and younger). The specialties include the following: pediatric orthopedics, eyes ears nose and throat, gastrointestinal, pediatrics, neurology, genetics, the orthotics and prosthetics lab and physical and occupational therapy services.