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Southeast Region Family Gathering
February 16, 2019

Save the date for the Southeast Region Family Gathering! Hosted by Angie Young and being held in Fort Myers, FL. Join families in the southeast region to spend time together talking, sharing stories, laughing, and learning from one another. The connections made between parents, grandparents, children, relatives, and professionals can last a lifetime. Who better to talk about what it’s like to experience the sleepless nights, the never ending tests and procedures and the concerns that a diagnosis of CdLS can bring, than another parent who also has a child with the syndrome.