The CdLS Foundation Back-to-School Family Kickoff will be a weeklong virtual experience designed to help CdLS families begin the school year — and the next season of care — with practical tools, trusted guidance, and meaningful connection. 

While the event is timed around the back-to-school season, the content will be intentionally broader than school alone. Families in our community are navigating many different stages of life: early childhood, school-age years, transition planning, adulthood, residential placement decisions, medical complexity, grief, and life after loss. This kickoff gives the Foundation an opportunity to meet families where they are while reinforcing that the CdLS Foundation remains a trusted source of information, connection, and support across the lifespan.

The week will include a mix of pre-recorded messages, expert-led sessions, gene-specific workshops, veteran parent panels, and real-life family conversations. Families will be invited to participate in the sessions most relevant to their needs, with opportunities to submit questions in advance and connect with others who understand their journey. 

Registration is free and open to families worldwide.  Register for a full week of virtual educational sessions, family conversations, and expert-led workshops designed to support you and your family. Attend the sessions that fit your schedule, connect with the global CdLS community, and access recordings after the event so you can watch at your convenience.

Register now, by visiting: https://events.ringcentral.com/events/cdls-back-to-school-2026/registration