Home | Calendar | Español | Media Room | Shop | Contact Us
What The CdLS Foundation Does

What We Do

The CdLS Foundation provides a host of services that educate and unite families touched by this little-known genetic syndrome.

Each day, we enlist the support of hundreds of dedicated volunteers throughout the United States, as well as the expertise of professionals from the fields of genetics, medicine, education, psychiatry, and more, in our effort toward advancing both societal and scientific understanding of CdLS.

We encourage you to connect with the CdLS Foundation.