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CdLS Family Support Services

Services for Families

The CdLS Foundation provides families and caregivers a wealth of services, support and information—most of which are at no cost.

Toll Free Help Lines

When you are in need of assistance, the Foundation's Family Service Coordinators are here to help.   Call 800.753.2357


A hallmark service of the CdLS Foundation is its detailed materials for public education and information.

Ask the Expert

Ask the Expert allows users to email their questions for response from experts in the fields of medicine, therapy and education.

Connect with a Family

So you never have to feel alone, the Foundation can connect you with other CdLS families in your city, state or region, as well as those who are facing similar challenges.

Family Gatherings

Each year, the CdLS Foundation and its volunteers sponsor five family gathering throughout the country—one in each region.

Biennial Conference

Our biennial national family conference provides education and support to families of individuals with CdLS.

CdLS Clinics

Clinics provides a comprehensive, day-long evaluation for individuals with CdLS.

Family Album

Our Family Album lets families connect and see that they are not alone.

Información en Español

The Foundation provides a range of articles and publications translated into Spanish.

Grandparents Program

The Grandparents Program is based on the belief that grandparents are each other's greatest resource.


Bereaved Parents Resources

The CdLS Foundation staff is here to provide guidance on the complicated journey you have ahead of you after losing a loved one with CdLS.