Services for Families
The CdLS Foundation provides families and caregivers a wealth of services, support and information—most of which are at no cost.
When you are in need of assistance, the Foundation's Family Service Coordinators are here to help. Call 800.753.2357
A hallmark service of the CdLS Foundation is its detailed materials for public education and information.
Ask the Expert allows users to email their questions for response from experts in the fields of medicine, therapy and education.
So you never have to feel alone, the Foundation can connect you with other CdLS families in your city, state or region, as well as those who are facing similar challenges.
Each year, the CdLS Foundation and its volunteers sponsor five family gathering throughout the country—one in each region.
Our biennial national family conference provides education and support to families of individuals with CdLS.
The twice yearly, free clinic provides a comprehensive, day-long evaluation for individuals 13 or older with CdLS.
Our Family Album lets families connect and see that they are not alone.
Información en EspañolThe Foundation provides a range of articles and publications translated into Spanish.
The Grandparents Program is based on the belief that grandparents are each other's greatest resource.