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CdLS Biennial Conference

Biennial Conference

Our biennial national family conference provides education and support to families of individuals with CdLS.

Attendees receive free head-to-toe consultations with experts from a range of medical and educational fields; attend workshops on legal concerns, educational issues and medical/behaviors challenges; and have opportunities to meet other families facing similar challenges.

Join us for the Cornelia de Lange Syndrome (CdLS) Foundation National Family Conference, in June 28 - July 1, 2018, in Minneapolis, MN. Attendees have an opportunity to gain knowledge on how to best care for their child and meet other families facing similar challenges. Individuals with CdLS receive free head-to-toe consultations with experts from a range of health and educational fields.

Not only will attendees be better equipped to face challenges throughout their children’s lives, but also they will leave with a sense of belonging. Events that help connect families include a gathering for grandparents, separate get-togethers for moms and dads, and a social hour for siblings.

2018 Conference FAQ Sheet

Registration for conference is scheduled to open February 15, 2018 and you must be registered to attend the conference. The early bird registration deadline is March 29; the final deadline is May 25. The registration fee covers all workshops and sessions, medical and educational consultations, and the following meals: Thursday night ice cream social; Friday breakfast, lunch and dinner; Saturday breakfast, lunch and dinner; and Sunday continental breakfast. There is no registration charge for the person with CdLS. Registration does not include travel, the hotel room or sibling childcare/excursions.

Childcare Provider: (non-parent) Available to individuals attending conference solely to provide childcare. If you take advantage of this discounted option, childcare for the person with CdLS is not available.

One-Day Professional:
Available to professionals from such fields as medicine, education and more who wish to attend Friday or Saturday general sessions and workshops. (This is not the same as the Scientific or Educational Symposium.)

All Scholarships are awarded to US residents only

A limited number of scholarships are offered to families attending their first conference. Each scholarship covers the cost of registration only for a maximum of two people. The scholarship does not cover travel, hotel or the sibling childcare programs. To apply for a scholarship, select the option under Special Requests on the registration form. Scholarships are awarded on a first-come, first-served basis. You will receive notice of the status of your request no later than March 29. Pre-payment of registration fees is not necessary if you apply for a scholarship. Deadline is March 29, 2018.

Scholarships are available to cover the registration costs for up to two grandparents within the same family or two single grandparents.

Many community organizations are responsive to the needs of families wanting to attend conference. We urge families to seek financial support through your state ARC, local school systems, social service agencies, national/state disability programs, regional businesses, and/or service clubs, emphasizing the opportunity for the person with CdLS to be seen by a team of CdLS experts. Some Medical Spending Accounts cover registration. Check back here periodically for links and resources.

Crowdfunding Tips for 2018 Family Conference

To help families budget their travel to the conference, we've created a budget worksheet to help with the planning. Click here to download.