National CdLS Awareness Day is observed the second Saturday of May each year in order to shed light on this often misdiagnosed, little-known genetic syndrome.
Since CdLS is unfamiliar to most people, including professionals in the medical community, Awareness Day—celebrated since 1989—is an opportunity to educate all segments of the population about the syndrome.
Each year, parents, volunteers and others request official Awareness Day proclamations from governors and local leaders; hang awareness fliers in public places; make presentations to civic groups or health workers; write their local newspapers; and much more.
Other Awareness Day ideas include:
- Create a postage stamp with the child’s picture on it.
- Set up an awareness booth at a popular shopping area or town event.
- Ask a bank or other business to put an Awareness Day message on its marquee.
- Submit a public service announcement to the local radio station.
- Ask a favorite salon or coffee shop to donate a percentage of the day’s proceeds to the Foundation.
Materials are available by or by calling 800-753-2357.