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Connect with the CdLS Foundation

Connect with the Foundation

The CdLS Foundation is the only organization in the United States providing CdLS-specific support, information and services.

Who Connects with the Foundation?

  • The parent whose child is diagnosed with the syndrome.
  • The pediatrician who wants to ensure a child with CdLS receives the best treatment possible.
  • The grandmother whose concern extends to the well-being of her child, not just her grandchild.  
  • The family friend who wants to learn more about CdLS and how he can help.
  • The sibling who wants to know what to expect in the future.
  • Anyone who cares about someone with CdLS.

We invite you to be a part of our CdLS community.
Simply fill out the form on this page and click Submit.

Connect with the CdLS Foundation
Tell us about you

(If you reside outside of the United States and there is a CdLS organization in your country, we will forward your information.)


Tell us about the person with CdLS in your life



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