Connect with the Foundation

The CdLS Foundation is the only organization in the United States providing CdLS-specific support, information and services.

Who Connects with the Foundation?

The parent whose child is diagnosed with the syndrome.
The pediatrician who wants to ensure a child with CdLS receives the best treatment possible.
The grandmother whose concern extends to the well-being of her child, not just her grandchild.
The family friend who wants to learn more about CdLS and how he can help.
The sibling who wants to know what to expect in the future.
Anyone who cares about someone with CdLS.

We invite you to be a part of our CdLS community.
Simply fill out the form on this page and click Submit.

Connect with the CdLS Foundation

Tell us about you First Name *
Last Name *
Street Address *
City *
State *
Postal Code *
Country *

(If you reside outside of the United States and there is a CdLS organization in your country, we will forward your information.)

Telephone *
Email *

Have you contacted the CdLS Foundation before? * Yes
No

Tell us about the person with CdLS in your life Child's Name *
Child's Last Name *
Gender *

Male
Female
Age *
Date of Birth
Your relationship to this person *

Has a diagnosis of CdLS been confirmed? Yes
No

Release Information I wish to receive mailings from the CdLS Foundation.

I give permission to the CdLS Foundation to release my name for the purpose of mutual support.

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Mailing Address:
Cornelia de Lange Syndrome Foundation
302 West Main Street, #100
Avon, Connecticut 06001 USA