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X-ORIGINAL-URL:https://www.cdlsusa.org
X-WR-CALDESC:Events for CdLS Foundation
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DTSTART;VALUE=DATE:20260410
DTEND;VALUE=DATE:20260411
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SUMMARY:International Siblings Day
DESCRIPTION:International Siblings Day is a special time to celebrate the unique\, lifelong bond between brothers and sisters. Siblings of individuals with CdLS play an incredible role\, offering love\, support\, advocacy\, and friendship in truly unique ways. \nWe invite you to join us in honoring these amazing relationships by sharing photos of you and your sibling with CdLS. Be sure to tag the Foundation and use #CdLSsiblings so we can celebrate together!
URL:https://www.cdlsusa.org/event/international-siblings-day/
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DTSTART;VALUE=DATE:20260411
DTEND;VALUE=DATE:20260412
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SUMMARY:Adolescent and Adult Multidisciplinary Clinic
DESCRIPTION:This Foundation-managed\, free Cornelia de Lange Syndrome (CdLS) clinic is held twice each year at Greater Baltimore Medical Center (GBMC) in Baltimore\, Maryland. Led since 2001 by Foundation Medical Director Antonie Kline\, M.D.\, Director of Clinical Genetics at the Harvey Institute for Human Genetics at GBMC\, the clinic provides families with direct access to nationally recognized CdLS experts. \nThe clinic is open to individuals age 12 and older living with Cornelia de Lange Syndrome\, along with their families and caregivers. \nAttendees benefit from educational presentations and live Q&A sessions with members of the CdLS Clinical Advisory Board\, covering key medical and developmental topics\, including: \n\nBehavioral Psychology\nChild Psychiatry\nGastroenterology\nGenetics\nGynecology\nNeurology\nPediatric Ophthalmology\nSpeech and Language\nUrology\n\nThis comprehensive clinic offers families an opportunity to learn\, ask questions\, and connect with specialists experienced in the care and management of Cornelia de Lange Syndrome. \nFor more information on the clinic or to secure your spot\, contact Ashley Fernandez\, Family Service Coordinator or call 860.676.8166.
URL:https://www.cdlsusa.org/event/gbmc-cdls-clinic-426/
LOCATION:Harvey Institute for Human Genetics\, Greater Baltimore Medical Center\, 6701 N. Charles St.\, Suite 2326\, Baltimore\, MD\, 21204\, United States
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2018/10/2018-clinic-1.png
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DTSTART;TZID=America/Detroit:20260425T100000
DTEND;TZID=America/Detroit:20260425T170000
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CREATED:20260220T145735Z
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SUMMARY:Team CdLS Walk to Fight Rare Diseases
DESCRIPTION:Join us at this year’s Denise D’Ascenzo Foundations annual Walk to Fight Rare Diseases. The event will take place at Quinnipiac University\, Burt Khan Gym at 10AM. There is plenty of free parking\, pizza truck for all participants\, magic show\, children’ activities\, musical entertainment\, and much more. Join the team\, have some fun\, meet other CdLS families all while raising awareness and funds for your CdLS Foundation. You can’t be there in person to walk you can register virtually as well. Any questions please contact Lisa Schroeder\, Events Manager at lschroeder@cdlsusa.org\n\nRegister at The Denise D’Ascenzo Walk to Fight Rare Diseases \n(registration instructions)\n\nThe Denise D’Ascenzo Foundation’s Walk to Fight Rare Diseases — JB Sports\n4/25/2026 | 10:00 a.m. ET | Quinnipiac University\, Burt Khan Gym 275 Mt. Carmel Ave Hamden\, CT US 06518
URL:https://www.cdlsusa.org/event/team-cdls-walk-to-fight-rare-diseases/
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