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X-WR-CALDESC:Events for CdLS Foundation
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DTSTART;VALUE=DATE:20260622
DTEND;VALUE=DATE:20261101
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UID:10384-1782086400-1793491199@www.cdlsusa.org
SUMMARY:Nationwide Champions for CdLS Golf Tournament
DESCRIPTION:Only together we can continue reaching out\, providing help\, and giving hope to individuals with CdLS and their families. Thank you for your donation to this year’s Nationwide Campions for CdLS Golf Tournament! Every gift no matter the amount makes a positive impact in our CdLS Community. \nIf you would like to play a round of golf on your own golf course\, with real golfers’ registration is OPEN; you can play on any golf course\, anywhere with anyone\, and compete with others across the country on a live leaderboard (multiple times) through October 31\, 2026. \nFORE!\nTo register\, sponsor\, support the Nationwide Champions for CdLS Golf Tournament click here
URL:https://www.cdlsusa.org/event/nationwide-champions-for-cdls-golf-tournament/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2026/06/national-golf.png
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DTSTART;TZID=America/New_York:20260801T140000
DTEND;TZID=America/New_York:20260801T170000
DTSTAMP:20260521T164716Z
CREATED:20260429T153124Z
LAST-MODIFIED:20260521T164716Z
UID:10179-1785592800-1785603600@www.cdlsusa.org
SUMMARY:Illinois Family Gathering
DESCRIPTION:Join families from Illinois and surrounding states for a CdLS Foundation Family Gathering. \nGraciously hosted by:\nThe Beaumont Family\, parents of Annie \nSaturday\, August 1\, 2026\n2:00 p.m. – 5:00 p.m. CT \nBurning Bush Community Center\n1313 Burning Bush Ln.\nMount Prospect\, IL 60056 \nYou’ll have the chance to meet families in the area who share similar challenges and triumphs as parents of children with Cornelia de Lange Syndrome (CdLS). \nPizza will be provided.\nPlease bring a snack\, beverages\, a side dish\, or a dessert to share. \nRegister here.
URL:https://www.cdlsusa.org/event/illinois-family-gathering-3/
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DTSTART;TZID=America/Detroit:20260806T190000
DTEND;TZID=America/Detroit:20260806T201500
DTSTAMP:20260706T133603Z
CREATED:20260116T174839Z
LAST-MODIFIED:20260706T133603Z
UID:9931-1786042800-1786047300@www.cdlsusa.org
SUMMARY:CdLS Foundation August Virtual Support Group for Parents
DESCRIPTION:The next CdLS Foundation Parent Support Group is scheduled for August 6\, and we’d love to welcome you. \n📅August 6\, 2026\n🕖 7:00–8:15 p.m. ET\n📍 Zoom (link provided upon registration)\n💡 Topic: Bring Your Loved One \nThis confidential\, parent-only space offers time to:\n-Share what’s on your heart — or just listen\n-Learn from other parents who truly understand\n-Feel seen\, supported\, and less alone \nEven if you’re not sure you’ll feel like talking\, you are welcome just as you are. We would be honored to have you with us. \nIf you have any questions\, please don’t hesitate to contact Family Service at familyservicesteam@CdLSusa.org or call the Foundation at 888.753.2357. \nRegister here. \n 
URL:https://www.cdlsusa.org/event/cdls-foundation-august-virtual-support-group-for-parents/
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DTSTART;TZID=America/New_York:20260813T130000
DTEND;TZID=America/New_York:20260813T140000
DTSTAMP:20260427T180120Z
CREATED:20260427T174231Z
LAST-MODIFIED:20260427T180120Z
UID:10163-1786626000-1786629600@www.cdlsusa.org
SUMMARY:August Parent University™ Class Presented by Protected Tomorrows
DESCRIPTION:August Parent University™ Class\nPresented by Protected Tomorrows \nClass Eight\nEducation: Back-to-School Tips\nAugust 13\, 2026\n12:00 – 1:00 p.m. CST \n“School” can mean many things. In this exciting session about back-to-school tips\, Protected Tomorrows will cover:\n• If your child is young\, what is an IEP?\n• If your child is older\, what can you expect to be available?\n• Are there really appropriate school experiences for my child after high school?\nAll classes begin at 12:00 p.m. CST\nPlease note that classes are recorded for future viewing \nRegister Here:\nhttps://protectedtomorrows.com/parent-university-registration/
URL:https://www.cdlsusa.org/event/august-parent-university-class-presented-by-protected-tomorrows/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2020/04/Parent-University.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260829T140000
DTEND;TZID=America/New_York:20260829T180000
DTSTAMP:20260514T162250Z
CREATED:20260429T152849Z
LAST-MODIFIED:20260514T162250Z
UID:10178-1788012000-1788026400@www.cdlsusa.org
SUMMARY:Northeast Family Gathering
DESCRIPTION:Graciously hosted by: \nJennifer and Nicholas Arp\, parents of Jenna \nSaturday\, August 29\, 2026\n2:00 p.m. – 6:00 p.m. ET \nThe Arp Home\nAddress will be provided in the confirmation email\nRexford\, NY 12148 \nBring your swimsuit and towel to enjoy the pool! \nBring the whole family and join us for a casual backyard get-together! You’ll have the chance to meet families in the area who share similar challenges and triumphs as parents of children with Cornelia de Lange Syndrome (CdLS). \nMembers of the CdLS Foundation staff will be in attendance. \nPizza\, sub sandwiches\, and beverages provided. Please bring a snack\, side dish\, or dessert to share. \nRegister Here
URL:https://www.cdlsusa.org/event/northeast-family-gathering-2/
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