BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//CdLS Foundation - ECPv6.15.18//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:CdLS Foundation
X-ORIGINAL-URL:https://www.cdlsusa.org
X-WR-CALDESC:Events for CdLS Foundation
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/Detroit
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20270314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20271107T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:UTC
BEGIN:STANDARD
TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20250101T000000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260808T190000
DTEND;TZID=America/Detroit:20260808T201500
DTSTAMP:20260410T061238
CREATED:20260116T174839Z
LAST-MODIFIED:20260116T174839Z
UID:9931-1786215600-1786220100@www.cdlsusa.org
SUMMARY:CdLS Foundation August Virtual Support Group for Parents
DESCRIPTION:The next CdLS Foundation Parent Support Group is scheduled for August 8\, and we’d love to welcome you. \n📅August 8\, 2026\n🕖 7:00–8:15 p.m. ET\n📍 Zoom (link provided upon registration)\n💡 Topic: Bring Your Loved One \nThis confidential\, parent-only space offers time to:\n-Share what’s on your heart — or just listen\n-Learn from other parents who truly understand\n-Feel seen\, supported\, and less alone \nEven if you’re not sure you’ll feel like talking\, you are welcome just as you are. We would be honored to have you with us. \nIf you have any questions\, please don’t hesitate to contact Family Service at familyservicesteam@CdLSusa.org or call the Foundation at 888.753.2357. \nRegister here. \n 
URL:https://www.cdlsusa.org/event/cdls-foundation-august-virtual-support-group-for-parents/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2026/01/Aug.-Support-Group-Bring-your-loved-one.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260813
DTEND;VALUE=DATE:20260814
DTSTAMP:20260410T061238
CREATED:20251229T204329Z
LAST-MODIFIED:20260113T180618Z
UID:9832-1786579200-1786665599@www.cdlsusa.org
SUMMARY:Multi-Specialty Clinic for children with CdLS at Shriners Children's Salt Lake City
DESCRIPTION:The CdLS Foundation\, in partnership with Shriners Children’s Salt Lake City\, is pleased to announce a Multi-Specialty Clinic for children with Cornelia de Lange Syndrome (CdLS) on August 13\, 2026\, at Shriners Children’s Salt Lake City. This clinic provides children with CdLS and their families access to comprehensive\, coordinated medical care in one convenient location. \nTo attend\, a child must be an existing Shriners patient or be evaluated at a Shriners Children’s facility prior to the clinic date. Assistance and additional details are available below. \nThis long-standing collaboration between the CdLS Foundation and Shriners Children’s creates a unique opportunity for families to meet with multiple pediatric specialists experienced in CdLS in a single day\, helping streamline care and reduce the burden of multiple appointments. \nMedical specialties available at the clinic include: \n\nGenetics\nOtolaryngology (ENT)\nGastroenterology\nPediatrics\nNutrition/Dietetics\nSocial Work\nOrthopedics\nAudiology\nWheelchair and Seating*\nOrthotists and Prosthetists*\n\n*Consultations may include devices such as custom shoe inserts and orthotics\, braces\, seating systems for medical strollers and wheelchairs\, and other supports designed to improve mobility\, comfort\, and quality of life. \nFor more information about the CdLS Multi-Specialty Clinic in Salt Lake City or to reserve your spot\, please contact Whitney Rinaldi\, Program Director of Family Services\, at 860-676-8166.
URL:https://www.cdlsusa.org/event/multi-specialty-clinic-for-children-with-cdls-at-shriners-childrens-salk-lake-city-3/
LOCATION:Shriners Children’s Salt Lake City\, 1275 E Fairfax Rd\, Salt Lake City\, UT\, 84103\, United States
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2025/12/Shriners.png
END:VEVENT
END:VCALENDAR