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X-WR-CALDESC:Events for CdLS Foundation
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DTSTART;TZID=America/Detroit:20260604T190000
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DTSTAMP:20260728T201345
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UID:9927-1780599600-1780604100@www.cdlsusa.org
SUMMARY:CdLS Foundation June Virtual Support Group for Parents
DESCRIPTION:The next CdLS Foundation Parent Support Group is scheduled for June 4\, and we’d love to welcome you. \n📅 June 4\, 2026\n🕖 7:00–8:15 p.m. ET\n📍 Zoom (link provided upon registration)\n💡 Topic: Behavior \nThis confidential\, parent-only space offers time to:\n-Share what’s on your heart — or just listen\n-Learn from other parents who truly understand\n-Feel seen\, supported\, and less alone \nEven if you’re not sure you’ll feel like talking\, you are welcome just as you are. We would be honored to have you with us. \nIf you have any questions\, please don’t hesitate to contact Family Service at familyservicesteam@CdLSusa.org or call the Foundation at 888.753.2357. \nRegister here. 
URL:https://www.cdlsusa.org/event/cdls-foundation-june-virtual-support-group-for-parents/
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260611T130000
DTEND;TZID=America/New_York:20260611T140000
DTSTAMP:20260728T201345
CREATED:20260424T171751Z
LAST-MODIFIED:20260427T180218Z
UID:10159-1781182800-1781186400@www.cdlsusa.org
SUMMARY:June Parent University™ Class Presented by Protected Tomorrows
DESCRIPTION:June Parent University™ Class\nPresented by Protected Tomorrows \nClass Five\nABLE Accounts: The Basics and What to Use When\nJune 11\, 2026\n12:00 – 1:00 p.m. CST \nIn this exciting session about Able Accounts\, Protected Tomorrows will cover:\nThe basics of ABLE\, how ABLE differs by state\, and how to stay out of trouble. What is the best way to use this funding tool?\nAll classes begin at 12:00 p.m. CST\nPlease note that classes are recorded for future viewing \nRegister Here:\nhttps://protectedtomorrows.com/parent-university-registration/
URL:https://www.cdlsusa.org/event/june-parent-university-class-presented-by-protected-tomorrows/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2020/04/Parent-University.png
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BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260613T110000
DTEND;TZID=America/Detroit:20260613T160000
DTSTAMP:20260728T201345
CREATED:20260211T202702Z
LAST-MODIFIED:20260407T123816Z
UID:10008-1781348400-1781366400@www.cdlsusa.org
SUMMARY:Southeast Family Gathering- North Carolina
DESCRIPTION:Join families from North Carolina and surrounding states for a CdLS Foundation-sponsored Family Gathering. \nGraciously hosted by the Radionov Family\, parents of Kaleb. \nJune 13\, 202611 a.m. – 4 p.m. ET \nMt. Olivet UMC1082 Community RoadLexington\, NC 27295 \n*A Hoyer lift and adult changing table available at the venue.* \nBring the whole family and join us! You’ll have the chance to meet families in the area who share similar challenges and triumphs as parents of children with Cornelia de Lange Syndrome (CdLS). \nCdLS Foundation staff and Clinical Advisory Board members will be in attendance. \nLUNCH WILL BE PROVIDED. Families are asked to bring a side dish\, snack\, or beverage to share. \nRegister Here.
URL:https://www.cdlsusa.org/event/southeast-family-gathering-north-carolina/
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DTSTART;VALUE=DATE:20260622
DTEND;VALUE=DATE:20261101
DTSTAMP:20260728T201345
CREATED:20260622T171839Z
LAST-MODIFIED:20260622T171913Z
UID:10384-1782086400-1793491199@www.cdlsusa.org
SUMMARY:Nationwide Champions for CdLS Golf Tournament
DESCRIPTION:Only together we can continue reaching out\, providing help\, and giving hope to individuals with CdLS and their families. Thank you for your donation to this year’s Nationwide Campions for CdLS Golf Tournament! Every gift no matter the amount makes a positive impact in our CdLS Community. \nIf you would like to play a round of golf on your own golf course\, with real golfers’ registration is OPEN; you can play on any golf course\, anywhere with anyone\, and compete with others across the country on a live leaderboard (multiple times) through October 31\, 2026. \nFORE!\nTo register\, sponsor\, support the Nationwide Champions for CdLS Golf Tournament click here
URL:https://www.cdlsusa.org/event/nationwide-champions-for-cdls-golf-tournament/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2026/06/national-golf.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260625T140000
DTEND;TZID=America/New_York:20260625T150000
DTSTAMP:20260728T201345
CREATED:20260617T180213Z
LAST-MODIFIED:20260617T182800Z
UID:10370-1782396000-1782399600@www.cdlsusa.org
SUMMARY:Unique Challenges When Caring for a Loved One with Cognitive Issues
DESCRIPTION:Family caregivers provide 19.2 billion hours of unpaid care each year to people with Alzheimer’s disease and other cognitive decline\, reflecting the scale and intensity of cognitive caregiving. For those who are also working\, these responsibilities can bring added unpredictability\, communication challenges\, and safety concerns. \nThis Benchmarks of Care training explores the unique realities of caring for a loved one with cognitive issues and offers practical strategies to help caregivers respond with more confidence. Participants will gain guidance on communication\, safety\, and ways to support meaningful engagement as needs change. \nRegister 
URL:https://www.cdlsusa.org/event/unique-challenges-when-caring-for-a-loved-one-with-cognitive-issues/
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260630T190000
DTEND;TZID=America/New_York:20260630T200000
DTSTAMP:20260728T201345
CREATED:20260519T171543Z
LAST-MODIFIED:20260519T171543Z
UID:10247-1782846000-1782849600@www.cdlsusa.org
SUMMARY:A Screening of Shared Struggles\, Hosted by Courageous Parents Network
DESCRIPTION:Courageous Parents Network believes that the care of children living with serious medical conditions is a shared enterprise between parents and pediatric clinicians. Both want what’s best for the child and family and bring their respective values\, priorities\, and expertise to that work. CPN exists at this intersection\, creating programs and resources designed to foster mutual understanding\, confidence\, and compassionate partnership. \nIn that spirit\, we are delighted to host a Zoom screening of Shared Struggles\, a documentary featuring three sets of parents and three physicians speaking candidly about their experience working with\, educating\, and learning from each other. The film is an extension of the book by the same title. \nThe screening will be followed by a facilitated panel conversation featuring a parent and physician from the film alongside other parents and pediatric physicians — exploring from lived experience what it takes to function well together\, (re)define Hope\, and advance the well-being of everyone in the caregiving enterprise. Panel participants are listed below. \nFor parents\, this event honors the depth of your experience—the uncertainty\, resilience\, and fierce advocacy that define your role. For clinicians\, it offers you a deeper understanding of that lived experience\, honors your commitment to families\, and elevates the opportunity to partner more meaningfully. For both\, it calls us to be curious\, to recognize families as essential leaders in the caregiving experience\, and to together transform the care experience – as it is delivered and as it is received. \nRegistration is required. The screening and panel discussion are available only to those who attend the ZOOM ‘in-person’ on June 30. A recording will not be shared later. \nThis event will take place on Tuesday\, June 30th at 7:00 pm ET (6:00 pm CT\, 5:00 pm MT\, 4:00 pm PT). \nRegister here: https://bit.ly/3P6Mops
URL:https://www.cdlsusa.org/event/a-screening-of-shared-struggles-hosted-by-courageous-parents-network/
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