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X-WR-CALDESC:Events for CdLS Foundation
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DTSTART;TZID=America/Detroit:20260205T190000
DTEND;TZID=America/Detroit:20260205T201500
DTSTAMP:20260613T160228
CREATED:20260114T151438Z
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UID:9912-1770318000-1770322500@www.cdlsusa.org
SUMMARY:CdLS Foundation February Virtual Support Group for Parents
DESCRIPTION:The next CdLS Foundation Parent Support Group is scheduled for February 5\, and we’d love to welcome you. \n📅 February 5\, 2026\n🕖 7:00–8:15 p.m. ET\n📍 Zoom (link provided upon registration)\n💡 Topic: Caregiver Burnout \nThis confidential\, parent-only space offers time to:\n-Share what’s on your heart — or just listen\n-Learn from other parents who truly understand\n-Feel seen\, supported\, and less alone \nEven if you’re not sure you’ll feel like talking\, you are welcome just as you are. We would be honored to have you with us. \nIf you have any questions\, please don’t hesitate to contact Family Service at familyservicesteam@CdLSusa.org or call the Foundation at 888.753.2357. \nRegister here. \n 
URL:https://www.cdlsusa.org/event/cdls-foundation-february-virtual-support-group-for-parents/
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BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260210T200000
DTEND;TZID=America/Detroit:20260210T210000
DTSTAMP:20260613T160228
CREATED:20260108T204631Z
LAST-MODIFIED:20260112T140947Z
UID:9882-1770753600-1770757200@www.cdlsusa.org
SUMMARY:In the Room: Unlocking Answers: What Every Parent Should Know About Genetic Testing
DESCRIPTION:Hosted by Courageous Parent Network (CPN) \nGenetic testing can play a powerful role in helping families find answers about their child’s health. In this session\, we’ll walk you through the different types of genetic tests\, what they can (and can’t) tell you\, and how they’re used to diagnose a wide range of conditions. We’ll also talk about how re-checking genetic data over time can lead to new insights and better outcomes. Finally\, we’ll explore how ongoing efforts are making genetic testing more available and more useful for families from all backgrounds. \nThis event will take place on Tuesday\, February 10th at 8:00 pm ET (7:00 pm CT\, 6:00 pm MT\, 5:00 pm PT). \nRegister here
URL:https://www.cdlsusa.org/event/mondaywork-management-7-88-fscognamiglio-home-my-work-ai-notetaker-235-digital-board-communication-creative-requests-private-board-to-do-list-board-website-audit-form-recently-viewed-website-audit-p/
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260212
DTEND;VALUE=DATE:20260213
DTSTAMP:20260613T160228
CREATED:20260108T205843Z
LAST-MODIFIED:20260113T171803Z
UID:9884-1770854400-1770940799@www.cdlsusa.org
SUMMARY:International CdLS Remembrance Day
DESCRIPTION:Losing a loved one with CdLS at any age is life-altering. Parents\, siblings\, grandparents\, relatives\, and friends experience profound grief\, often accompanied by questions that have no easy answers. During these moments\, the support of a compassionate community can make all the difference. Though their child\, sibling\, or loved one may no longer be physically with them\, these families remain an irreplaceable part of our CdLS family and our shared journey.\n\n\nOn February 12\, we will honor CdLS Remembrance Day\, a time to come together in reflection\, love\, and solidarity. We are hosting a virtual memorial event at 11:00 a.m. EST\, and we invite community members from around the world to join us as we remember\, honor\, and hold space for those we have lost.\n\n\nThe event will open with remarks from Dave Axtell\, Chairman of the CdLS World Groups and proud dad to Jade\, followed by a keynote presentation from Heather Stang\, MA\, C-IAYT\, an internationally recognized grief educator\, author\, and mindfulness practitioner.\n\n\nHeather Stang\, MA\, C-IAYT\, is an internationally recognized grief educator\, author\, and mindfulness practitioner. She is the author of Navigating Loss\, Living With Grief\, and From Grief to Peace\, and the creator of the Mindfulness and Grief System featured in The Handbook of Grief Therapies (2023). Heather hosts the Mindfulness & Grief Podcast and is the 2025 recipient of the Association for Death Education and Counseling Clinical Practice Award.\n\n Register here\n \nDownload and add the Facebook profile picture for International CdLS Remembrance Day.\n \nFor more information\, contact Gabrielle Nadeau.
URL:https://www.cdlsusa.org/event/international-cdls-remembrance-day-2/
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BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260212T120000
DTEND;TZID=America/Detroit:20260212T130000
DTSTAMP:20260613T160228
CREATED:20260122T204319Z
LAST-MODIFIED:20260122T204319Z
UID:9953-1770897600-1770901200@www.cdlsusa.org
SUMMARY:2026 International CdLS Remembrance Day: Continuing Your Child’s Legacy
DESCRIPTION:International and United States Gathering (English Speaking) – Continuing Your Child’s Legacy \nAfter the main Remembrance Day event\, international and United States families are warmly invited to stay with us for a special English-language gathering focused on connection\, reflection\, and emotional support at 12:00 p.m. (Eastern Time\, U.S.). \nRegister Here for the 12 p.m. event. \nThis space will be led by: Amy Graver\, Bereaved Champion at Courageous Parents Network. \nAmy Graver currently works in the corporate world and is a writer\, a wife\, and a mom of four. Her daughter Lauren was diagnosed with rhabdomyosarcoma at age 7. Amy’s writing chronicles the journey that cancer has taken her family. Lauren’s cancer diagnosis imposed a new reality and a new perspective on life. She is dedicated to making the cancer experience better for future families. Amy is an enthusiast of US presidential history; she aspires to be a professional seashell collector and is absurdly competitive about things that don’t matter. \nWe hope you will join us as we honor our loved ones\, support one another\, and remember—together. \nQuestions? Email Family Service at familyservicesteam@CdLSusa.org.
URL:https://www.cdlsusa.org/event/2026-international-cdls-remembrance-day-continuing-your-childs-legacy/
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BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260212T120000
DTEND;TZID=America/Detroit:20260212T130000
DTSTAMP:20260613T160228
CREATED:20260122T204808Z
LAST-MODIFIED:20260122T204808Z
UID:9955-1770897600-1770901200@www.cdlsusa.org
SUMMARY:Día Internacional de Conmemoración del Síndrome de Cornelia de Lange
DESCRIPTION:El 12 de febrero de 2026\, nuestra comunidad CdLS de todo el mundo se reunirá para un\nencuentro muy especial: el Día Internacional de Recuerdo CdLS.\nEste será un espacio creado con amor para honrar a nuestros hijos y seres queridos\, recordar sus vidas y acompañarnos unos a otros con compasión y cariño. \nRecordar no es solo pensar en lo que hemos perdido\, sino también reconocer el amor que\npermanece y el significado que seguimos construyendo juntos. Encuentro posterior en español – Acompañamiento y reflexión para familias. Después del evento principal\, las familias están invitadas a quedarse con nosotros para un encuentro especial en español\, enfocado en el acompañamiento\, la reflexión y la conexión\, a las 12:00 p.m. (Hora del Este\, EE. UU.). \nhttps://bit.ly/4b57pcB \nEste espacio contará con la participación de:\nCarolina Cárdenas Vargas\, MS \nCarolina Cárdenas Vargas es psicóloga\, especialista en neuropsicología y profesional en enfermedades raras\, con más de 15 años de experiencia acompañando a personas y familias. Cuenta con una Maestría en Enfermedades Raras por la Universidad de Valencia y es profesora de posgrado en neuropsicología y neurorrehabilitación.\nHa sido reconocida por la Federación Colombiana de Enfermedades Raras por su liderazgo y compromiso con la atención y el acompañamiento de familias. A través de su trabajo con la Fundación Cornelia de Lange\, ha desarrollado iniciativas de apoyo y ha ofrecido conferencias para familias que atraviesan procesos de duelo\, memoria y sanación.\nAgradecemos especialmente que hayan sido las propias comunidades de habla hispana quienes solicitaron la participación de Carolina — reflejo de la confianza y la conexión compasiva que ha construido con las familias.
URL:https://www.cdlsusa.org/event/dia-internacional-de-conmemoracion-del-sindrome-de-cornelia-de-lange/
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BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260212T180000
DTEND;TZID=America/Detroit:20260212T190000
DTSTAMP:20260613T160228
CREATED:20260122T213619Z
LAST-MODIFIED:20260122T213619Z
UID:9957-1770919200-1770922800@www.cdlsusa.org
SUMMARY:Continuing the Legacy of Your Loved One
DESCRIPTION:United States families are warmly invited to join us for an English-language gathering focused on connection\, reflection\, and emotional support at 6:00 p.m. (Eastern Time\, U.S.). \nRegister here for the 6 p.m. event \nThis space will be led by: Amy Graver\, Bereaved Champion at Courageous Parents Network.\nAmy Graver currently works in the corporate world and is a writer\, a wife\, and a mom of four. Her daughter Lauren was diagnosed with rhabdomyosarcoma at age 7. Amy’s writing chronicles the journey that cancer has taken her family. Lauren’s cancer diagnosis imposed a new reality and a new perspective on life. She is dedicated to making the cancer experience better for future families. Amy is an enthusiast of US presidential history; she aspires to be a professional seashell collector and is absurdly competitive about things that don’t matter. \nWe hope you will join us as we honor our loved ones\, support one another\, and remember—together. \nQuestions? Email Family Service at familyservicesteam@CdLSusa.org.
URL:https://www.cdlsusa.org/event/continuing-the-legacy-of-your-loved-one/
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BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260226T193000
DTEND;TZID=America/Detroit:20260226T203000
DTSTAMP:20260613T160228
CREATED:20260116T172812Z
LAST-MODIFIED:20260116T172812Z
UID:9919-1772134200-1772137800@www.cdlsusa.org
SUMMARY:Ask the Special Education Boss®: Live IEP Q&A with Karen Mayer Cunningham Webinar
DESCRIPTION:Hosted by Parenting Special Needs Magazine \nAsk the Special Education Boss®: Live IEP Q&A\nwith Karen Mayer Cunningham \nLIVE ONLINE EVENT \nJoin Parenting Special Needs Magazine for a free live Q&A webinar with nationally recognized special education advocate Karen Mayer Cunningham\, known as The Special Education Boss®. \nThis interactive session is designed to help parents\, caregivers\, and professionals get clear\, practical answers to real questions about: \n• IEPs\n• 504 plans\n• Evaluations\n• Navigating the special education process \nYou’ll leave with straightforward guidance and actionable next steps you can use right away. \nWHAT YOU’LL LEARN \nDo you have questions about your child’s IEP\, evaluations\, or educational rights? This live session focuses on real-world advocacy\, not theory. \nYou’ll learn how to: \n• Navigate common IEP challenges and roadblocks\n• Understand your child’s rights (FAPE\, LRE\, evaluations)\n• Respond when the school pushes back\n• Advocate effectively using proven strategies \n✔️ Bring your questions\n✔️ Get expert guidance — live\n✔️ Leave feeling more confident and prepared \nABOUT KAREN MAYER CUNNINGHAM\nKaren Mayer Cunningham—known nationally as The Special Education Boss—is a highly respected advocate\, speaker\, and trainer who has helped tens of thousands of families navigate the special education system with confidence. Her no-nonsense\, empowering approach gives parents and educators the tools they need to secure the services every child deserves. \nWANT TO GET THE MOST OUT OF THIS EVENT?\nPre-order Karen’s new book The Epic IEP™\, a powerful playbook for parents and educators navigating special education. Available at Barnes & Noble and Amazon. \nREGISTER NOW TO SAVE YOUR SEAT
URL:https://www.cdlsusa.org/event/ask-the-special-education-boss-live-iep-qa-with-karen-mayer-cunningham-webinar/
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260228
DTEND;VALUE=DATE:20260301
DTSTAMP:20260613T160228
CREATED:20260108T215652Z
LAST-MODIFIED:20260108T215652Z
UID:9886-1772236800-1772323199@www.cdlsusa.org
SUMMARY:Rare Disease Day
DESCRIPTION:RARE Is Not Rare \nOne out of every 10 Americans is living with a rare disease. Worldwide\, there are more than 300 million people with rare diseases. Too often\, these individuals and families are left isolated and without answers to their medical questions. It doesn’t have to be that way. \nRare Disease Day is a global initiative to raise awareness and generate support for individuals on a rare medical journey. It takes place on the last day of February\, which this year is February 28. \nThe National Organization for Rare Disorders (NORD) is the trusted voice of the more than 30 million Americans living with a rare disease. We are proud to be the official U.S. partner for Rare Disease Day. We invite you to read on to learn how to #ShowYourStripes in support of those with a rare disease. \nLearn more and visit: https://rarediseases.org/rare-disease-day/
URL:https://www.cdlsusa.org/event/rare-disease-day-4/
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