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X-WR-CALDESC:Events for CdLS Foundation
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DTSTART;VALUE=DATE:20250510
DTEND;VALUE=DATE:20251001
DTSTAMP:20260525T193642
CREATED:20250306T233308Z
LAST-MODIFIED:20251121T183936Z
UID:8914-1746835200-1759276799@www.cdlsusa.org
SUMMARY:Champions for CdLS Golf Tournament
DESCRIPTION:We are very grateful to every one of you\, our sponsors\, golfers\, and donors\, whose participation and generosity made our recent golf tournament a heartfelt success. Thanks to your support\, we raised an incredible $6\,200 for the CdLS Foundation. \nYour generosity empowers us to continue serving nearly 4\,000 families across the United States and around the world. With your help\, we will continue to fund vital programs and services to our CdLS community. \nYour participation and contributions are making a tangible difference. Although the event is over your continued support can still have a lasting impact on our community. You can donate here. \nThank you for standing with us\, for caring deeply about the CdLS community\, and for helping us deliver hope\, help\, and connection. \nBecause of your support we will continue to reach out\, provide help and give hope to our CdLS Community.\nEven though the course is closed you can still support this event and the CdLS Foundation by donating here: Donate Now! \nInformation for 2026 will be coming soon. If you would like to host a golf tournament in your community please contact Lisa Schroeder\, Events Manager at lschroeder@cdlsusa.org. \nThank you  \n\nThis event was generously sponsored by:
URL:https://www.cdlsusa.org/event/champions-for-cdls-golf-tournament/
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BEGIN:VEVENT
DTSTART;TZID=UTC:20250703T190000
DTEND;TZID=UTC:20250703T200000
DTSTAMP:20260525T193642
CREATED:20250604T182104Z
LAST-MODIFIED:20250604T182104Z
UID:9335-1751569200-1751572800@www.cdlsusa.org
SUMMARY:Virtual Support Groups for Parents
DESCRIPTION:The CdLS Foundation is pleased to offer Virtual Support Groups for Parents\, providing a consistent opportunity to connect\, share\, and support one another.\n🗓 Thursday\, July 3\, 2025\n🕖 7:00 – 8:00 p.m. ET\nWe believe no parent should walk this path alone at the CdLS Foundation. As caregivers\, you are the backbone of our community\, and we see you. We understand the emotional and physical challenges that come with your role. \nThese virtual gatherings are here to help you: \n\nConnect with others who understand your journey\nShare and receive meaningful advice\nFeel heard\, supported\, and uplifted\n\nWhether you’re new to the CdLS community or have been walking this road for years\, we invite you to join us for an hour of connection\, understanding\, and encouragement. You belong here. \nSessions will be held on the first Thursday of every month and will be dedicated to connection and support.\n \nRegister Here! 
URL:https://www.cdlsusa.org/event/virtual-support-groups-for-parents/
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DTSTART;TZID=UTC:20250710T130000
DTEND;TZID=UTC:20250710T170000
DTSTAMP:20260525T193642
CREATED:20250618T220116Z
LAST-MODIFIED:20250618T220152Z
UID:9414-1752152400-1752166800@www.cdlsusa.org
SUMMARY:Parent University: What Really Needs to Happen when We Die? How is This Plan We Put in Place Administered Properly? – After We Are Gone Peace of Mind
DESCRIPTION:We will walk thru an estate and financial plan and learn how it is “activated”. Who does what\, who knows where everything is\, and how can we make sure the family knows what to do? It is not fun to think about\, but it is certainly an important topic that we all need to make sure we understand. \nRegister here
URL:https://www.cdlsusa.org/event/parent-university-what-really-needs-to-happen-when-we-die-how-is-this-plan-we-put-in-place-administered-properly-after-we-are-gone-peace-of-mind/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2020/04/Parent-University.png
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DTSTART;TZID=UTC:20250712T140000
DTEND;TZID=UTC:20250712T180000
DTSTAMP:20260525T193642
CREATED:20250502T172247Z
LAST-MODIFIED:20250502T172343Z
UID:9204-1752328800-1752343200@www.cdlsusa.org
SUMMARY:CdLS Foundation-Sponsored Northeast Family Gathering
DESCRIPTION:Join families from New York and the Northeast for a CDLS Foundation-sponsored Family Gathering.\n Saturday\, July 12\, 2025 \n2 – 6 p.m. ET \n      The Arp Home \n9B Sandpiper Lane  \nRexford\, NY  \n(9B is on the white mailbox with a long driveway) \nGraciously Hosted by Jennifer and Nicholas Arp\, parents to Jenna. \nBring your swimsuit and towel to enjoy the pool!  \nBring the whole family and join us for a casual backyard get-together! You’ll have the chance to meet families in the area who share similar challenges and triumphs as parents of children with Cornelia de Lange Syndrome (CdLS). \nSPECIAL GUESTS: The CdLS Foundation Family Service team will be available to answer questions \nPizza\, sub sandwiches\, and beverages provided. Please bring a snack or dessert to share.\nQuestions? Email Family Service\n\n\n\nRegister here: bit.ly/negathering25
URL:https://www.cdlsusa.org/event/cdls-foundation-sponsored-northeast-family-gathering/
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