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X-WR-CALDESC:Events for CdLS Foundation
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DTSTART;TZID=UTC:20250212T110000
DTEND;TZID=UTC:20250212T120000
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UID:8590-1739358000-1739361600@www.cdlsusa.org
SUMMARY:International CdLS Remembrance Day
DESCRIPTION:Losing a loved one with CdLS at any age can be life-altering. Parents\, siblings\, relatives\, and friends feel a tremendous loss and often have difficulty understanding why. It is so important that we as a community surround them with support and unconditional love. Although they have lost their child\, grandchild\, or sibling – they still belong and will forever be part of our journey. \nOn February 12\, we will be celebrating CdLS Remembrance Day. We ask that our fellow CdLS community members partake in this special day with us to show solidarity with families who no longer have loved ones with them. \nPlease take a moment to remember everyone with CdLS who has died over the years. \nDownload and add the Facebook profile picture for International CdLS Remembrance Day. \nFor more information\, contact Gabrielle Nadeau.
URL:https://www.cdlsusa.org/event/international-cdls-remembrance-day/
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DTSTART;TZID=UTC:20250227T200000
DTEND;TZID=UTC:20250227T210000
DTSTAMP:20260609T200229
CREATED:20250131T025152Z
LAST-MODIFIED:20250131T025152Z
UID:8772-1740686400-1740690000@www.cdlsusa.org
SUMMARY:Being My Child's Protector\, Advocate\, and Decision-Maker in the NICU Webinar
DESCRIPTION:Anticipating the birth of a child can be one of the happiest times for parents. But when babies have life-threatening medical issues and begin their lives in the NICU\, everything can change. For some parents\, this may mean navigating a new role: learning how to navigate the NICU and communicate with the medical team; figuring out what matters most to their baby and family; considering intense medical interventions\, interpreting medical jargon; seeking clarity in the absence of a clear prognosis; building a trusting relationship with the baby’s medical team. \nJoin Dr. Monica Lemmon and several experienced NICU parents\, for a discussion about strategies to build helpful parent-clinician alliance and parental confidence in decision-making for the newborn in the NICU. \nThis event will take place on Thursday\, February 27th at 8:00 pm EST (7:00 pm CT\, 6:00 pm MT\, 5:00 pm PT). \nRegister here
URL:https://www.cdlsusa.org/event/being-my-childs-protector-advocate-and-decision-maker-in-the-nicu-webinar/
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