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X-ORIGINAL-URL:https://www.cdlsusa.org
X-WR-CALDESC:Events for CdLS Foundation
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BEGIN:VEVENT
DTSTART;TZID=UTC:20240908T170000
DTEND;TZID=UTC:20240908T200000
DTSTAMP:20260430T091230
CREATED:20240827T195645Z
LAST-MODIFIED:20240827T195645Z
UID:8003-1725814800-1725825600@www.cdlsusa.org
SUMMARY:CdLS Awareness Dinner & Fundraiser Event
DESCRIPTION:Please join us! CdLS Awareness Dinner & Fundraiser Event Honoring Kavin Mistry \nMeet Kavin\, my remarkable cousin whose journey with Cornelia de Lange Syndrome has been one of resilience and inspiration. Born prematurely with multiple medical complications\, Kavin was diagnosed with CdLS. Throughout this journey\, Kavin and his family have been supported by the CdLS Foundation of USA. His condition has not diminished his vibrant spirit. Kavin is a social and friendly individual who brings joy to those around him with his love for singing and playing musical instruments. His infectious smile and adventurous spirit are evident in his passion for plane rides and his travels around the globe. Kavin’s story is a testament to the strength and joy that define him\, inspiring all who have the pleasure of knowing him. \nSunday\, September 8\, 5:00pm\nAshirwad Palace\n169 South Salem Street Randolph\, NJ 07869 \nAdvance Ticket Purchase Required\nEvent Tickets:\n$50 Adults\, $30 Kids (age 5-12) Kids under 5 are Free\n(Includes a full course dinner buffet & drinks)
URL:https://www.cdlsusa.org/event/cdls-awareness-dinner-fundraiser-event/
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BEGIN:VEVENT
DTSTART;TZID=UTC:20240912T130000
DTEND;TZID=UTC:20240912T140000
DTSTAMP:20260430T091230
CREATED:20240131T024118Z
LAST-MODIFIED:20240131T024118Z
UID:7562-1726146000-1726149600@www.cdlsusa.org
SUMMARY:Parent University: RETIRING FOR 3 – HOW TO HAVE ENOUGH FOR YOUR OWN RETIREMENT AND THEIRS\, TOO
DESCRIPTION:How much is enough for you\, as the caregivers? How much is enough for your child? How to incorporate your child’s plan into your own. What is the most effective way to fund the trust? Life insurance? IRAs? Other? How to plan your own Social Security to benefit your child’s future – Learn a technique to identify your options. \nRegister now
URL:https://www.cdlsusa.org/event/parent-university-retiring-for-3-how-to-have-enough-for-your-own-retirement-and-theirs-too/
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20240913
DTEND;VALUE=DATE:20240916
DTSTAMP:20260430T091230
CREATED:20231122T220315Z
LAST-MODIFIED:20231122T220315Z
UID:7443-1726185600-1726444799@www.cdlsusa.org
SUMMARY:CdLS Foundation East Coast Regional Retreat
DESCRIPTION:We’re excited to announce the 2024 East Coast Regional Retreat.     \nMark your calendars!   \nGuided by your input\, the CdLS Foundation has reimaged what was the National conference into regional retreats. The 2024 East Coast Regional Retreat will be September 13- 15\, 2024\, at beautiful Camp Saginaw in Oxford\, PA. This two-day event offers educational workshops\, a fun-filled and action-packed day of activities for siblings\, ample time to socialize with those you know\, and a wonderful opportunity to make new friends.   \nThe camp is just over an hour away from Baltimore and less than 1.5 hours from Philadelphia. The camp’s beautiful landscape is perfect for learning\, sharing\, and relaxing. As the only group on site for the weekend\, our families can enjoy the amazing activities and landscape Camp Saginaw offers. The camp features modern facilities with multiple workshops\, socializing\, and lodging spaces.     \nIn addition to workshops\, parent and grandparent groups\, an active day for siblings\, and time to socialize\, members of the CdLS Foundation Clinical Advisory Board will be available in small group “Meet the Expert” sessions to answer questions and discuss concerns.   \nBe on the lookout for more information in emails\, social media\, and Reaching Out! You won’t want to miss out! See you Sept 13-15 in Pennsylvania.
URL:https://www.cdlsusa.org/event/cdls-foundation-east-coast-regional-retreat/
LOCATION:Camp Saginaw\, 740 Saginaw Road\, Oxford\, PA\, 19363\, United States
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BEGIN:VEVENT
DTSTART;TZID=UTC:20240919T200000
DTEND;TZID=UTC:20240919T210000
DTSTAMP:20260430T091230
CREATED:20240809T191905Z
LAST-MODIFIED:20240809T191905Z
UID:7961-1726776000-1726779600@www.cdlsusa.org
SUMMARY:Courage Parent Network: This Shared Journey: Get to Know the Network
DESCRIPTION:Come meet the faces BEHIND Courageous Parents Network\, as well as some of the parents and providers IN the Network. (That includes you\, btw.)\n\nSpend an hour with us talking about our shared journey and participating in an open-ended conversation touching upon topics that stretch across this caregiving journey.\n\nAs CPN celebrates our 10th anniversary\, our staff has been reflecting on how important our connections are\, how much they build our capacity to do the things we do at CPN\, and how sharing simply makes most things better.\n\nIt will be wonderful to see and hear from you In the Room. We look forward to sharing an evening with you.\n\nRegister Here\n\nThis event will take place on Thursday\, September 19th at 8:00 pm ET (7:00 pm CT\, 6:00 pm MT\, 5:00 pm PT).
URL:https://www.cdlsusa.org/event/courage-parent-network-this-shared-journey-get-to-know-the-network/
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DTSTART;TZID=UTC:20240928T190000
DTEND;TZID=UTC:20240928T210000
DTSTAMP:20260430T091230
CREATED:20240617T201934Z
LAST-MODIFIED:20240626T223911Z
UID:7799-1727550000-1727557200@www.cdlsusa.org
SUMMARY:Bulls and Barrels Series
DESCRIPTION:Saddle up and join us ……\n\nAt Carters Arena in Chiefland\, FL we have some rodeo fun while raising awareness and funds for the CdLS Foundation. The Carter family has been in the rodeo business for years and their hearts felt the need to give to the CdLS Foundation the best way we know how by putting on a Bulls and Barrels family fun event! We will be putting on a 5 event buckle series and a portion of all proceeds will go directly to the CdLS Foundation. The guest of honor at the rodeo will be little cowboy Gunner Carter. Gunner was born January 9\, 2021\, a month early.  He was in NICU for 3 ½ months and he was diagnosed with CdLS\, and our life was forever changed.  Gunner is now 3 ½ years old and he is feed by feeding tube. Gunner does not walk but he just started to get around with his specially made wheelchair!!!! Gunner is deaf and nonverbal\, but he loves to blow bubbles!!!\n\n\n\nA little about the event and its history: Gunner’s grandfather Eugene Carter III raises bucking bulls and has traveled all over the southern states to different rodeos and bull rides for 40 plus years.  Gunner’s father\, Cole Carter rode bulls and still does on occasion\, but he mainly fights the bulls now.  There are always 2 bullfighters in the arena and if a bull rider gets hung up and needs help the other the other bullfighter will go to the rescue to help them and pray no one gets hurt! The Carter family is happy to be a part of something that will help a Foundation so close to their heart!\n\n\nEntry fee:  $10 for adults $5 for Students and 6 and under are free.\n\nView event flyer\n\n\nIf you cannot attend but would like to donate to Bulls and Barrels!
URL:https://www.cdlsusa.org/event/bulls-and-barrels-series-5/
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