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X-WR-CALDESC:Events for CdLS Foundation
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DTSTART;TZID=UTC:20240809T080000
DTEND;TZID=UTC:20240809T170000
DTSTAMP:20260427T192728
CREATED:20240809T192434Z
LAST-MODIFIED:20240809T192434Z
UID:7963-1723190400-1723222800@www.cdlsusa.org
SUMMARY:Courageous Parent Network: Grief Across the Caregiving Trajectory
DESCRIPTION:Grief is naturally a parent’s constant companion\, from diagnosis – or lack thereof – onwards\, including into bereavement. Psychologist Wendy Lichenthal\, PhD is both a grief researcher and a clinician\, with a particular expertise in the psychology of cancer for the patient and the family.\n\nShe will frame aspects of the grief experience and discuss using meaning and meaning-making to help with coping\, regardless of diagnosis.\n\nRegister Here\n\nThis event will take place on November 7th at 8:00 pm ET (7:00 pm CT\, 6:00 pm MT\, 5:00 pm PT).
URL:https://www.cdlsusa.org/event/courageous-parent-network-grief-across-the-caregiving-trajectory/
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BEGIN:VEVENT
DTSTART;TZID=UTC:20240815T130000
DTEND;TZID=UTC:20240815T140000
DTSTAMP:20260427T192728
CREATED:20240131T023807Z
LAST-MODIFIED:20240131T023807Z
UID:7561-1723726800-1723730400@www.cdlsusa.org
SUMMARY:Parent University: TRANSPORTATION – A BIG MISSING LINK TO SUCCESS
DESCRIPTION:What are the options out there? Who will do the driving if you are not around? Are there any companies creating solutions to solve this need? \nRegister now
URL:https://www.cdlsusa.org/event/parent-university-transportation-a-big-missing-link-to-success/
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BEGIN:VEVENT
DTSTART;TZID=UTC:20240817T190000
DTEND;TZID=UTC:20240817T210000
DTSTAMP:20260427T192728
CREATED:20240614T221109Z
LAST-MODIFIED:20240626T224157Z
UID:7797-1723921200-1723928400@www.cdlsusa.org
SUMMARY:Bulls and Barrels Series
DESCRIPTION:Saddle up and join us ……\n\nAt Carters Arena in Chiefland\, FL we have some rodeo fun while raising awareness and funds for the CdLS Foundation. The Carter family has been in the rodeo business for years and their hearts felt the need to give to the CdLS Foundation the best way we know how by putting on a Bulls and Barrels family fun event! We will be putting on a 5 event buckle series and a portion of all proceeds will go directly to the CdLS Foundation. The guest of honor at the rodeo will be little cowboy Gunner Carter. Gunner was born January 9\, 2021\, a month early.  He was in NICU for 3 ½ months and he was diagnosed with CdLS\, and our life was forever changed.  Gunner is now 3 ½ years old and he is feed by feeding tube. Gunner does not walk but he just started to get around with his specially made wheelchair!!!! Gunner is deaf and nonverbal\, but he loves to blow bubbles!!!\n\n\n\nA little about the event and its history: Gunner’s grandfather Eugene Carter III raises bucking bulls and has traveled all over the southern states to different rodeos and bull rides for 40 plus years.  Gunner’s father\, Cole Carter rode bulls and still does on occasion\, but he mainly fights the bulls now.  There are always 2 bullfighters in the arena and if a bull rider gets hung up and needs help the other the other bullfighter will go to the rescue to help them and pray no one gets hurt! The Carter family is happy to be a part of something that will help a Foundation so close to their heart!\n\n\nEntry fee:  $10 for adults $5 for Students and 6 and under are free.\n\nView event flyer\n\n\nIf you cannot attend but would like to donate to Bulls and Barrels!
URL:https://www.cdlsusa.org/event/bulls-and-barrels-series-2/
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DTSTART;TZID=UTC:20240822T200000
DTEND;TZID=UTC:20240822T210000
DTSTAMP:20260427T192728
CREATED:20240809T191704Z
LAST-MODIFIED:20240809T193214Z
UID:7960-1724356800-1724360400@www.cdlsusa.org
SUMMARY:Courageous Parent Network: Let’s Make Caregiving a Bit Easier Webinar
DESCRIPTION:Finding resources and organizing information are two common struggles for many parents in our Network. But great news – CPN recently discovered two amazing tools that promise to make these tasks much easier! In this session\, we’re thrilled to have the founders of mejo and Librarey with us. They’ll demonstrate how their innovative tools can help parents quickly identify support organizations and streamline care documents for their children. Join us to learn how mejo and Librarey can transform your approach to managing your child’s care needs.\n\nLibrarey\, part of Comend\, is designed for the rare disease and disability community. Beyond being a search engine\, it’s a collaborative space where families\, caregivers\, and advocates impacted by rare diseases and disabilities can find and share resources\, connect with supportive communities\, and create curated collections customized to their unique needs.\n\nwww.librarey.com\n\nmejo (short for ‘me journey’) is a web app that provides parents and caregivers with a better way to simplify\, organize and share their child’s most important medical + care information. Easy to use\, mejo helps caregivers save time and gain peace of mind by organizing their child’s information into easily digestible views that can be securely shared – with teachers\, caregivers\, family members and clinicians – in a click.\n\nwww.mymejo.com\n\nThis event will take place on Thursday\, August 22 at 8:00 pm ET (7:00 pm CT\, 6:00 pm MT\, 5:00 pm PT).\n\nRegister Here
URL:https://www.cdlsusa.org/event/courageous-parent-network-lets-make-caregiving-a-bit-easier-webinar/
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