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X-ORIGINAL-URL:https://www.cdlsusa.org
X-WR-CALDESC:Events for CdLS Foundation
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DTSTART:20220101T000000
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DTSTART;VALUE=DATE:20230401
DTEND;VALUE=DATE:20230402
DTSTAMP:20260405T215846
CREATED:20220811T232350Z
LAST-MODIFIED:20220811T232350Z
UID:6576-1680307200-1680393599@www.cdlsusa.org
SUMMARY:Multidisciplinary Clinic for Adolescents and Adults
DESCRIPTION:This Foundation-managed\, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore\, MD. Foundation Medical Director Antonie Kline\, M.D.\, Director of Clinical Genetics at the Harvey Institute for Human Genetics at GBMC\, has led these clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. \nPresentations on the following topics from CdLS Clinical Advisory Board members: Behavioral Psychology\, Child Psychiatry\, Gastroenterology\, Genetics\, Gynecology\, Neurology\, Pediatric Ophthalmology\, Speech Pathology. Live Q&A with CdLS Clinical Advisory Board Members. \nFor more information on the clinic or to secure your spot\, contact Whitney Rinaldi or call 860.676.8166.
URL:https://www.cdlsusa.org/event/multidisciplinary-clinic-for-adolescents-and-adults-9/
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DTSTART;TZID=UTC:20230411T130000
DTEND;TZID=UTC:20230411T143000
DTSTAMP:20260405T215846
CREATED:20230209T200205Z
LAST-MODIFIED:20230209T211552Z
UID:6950-1681218000-1681223400@www.cdlsusa.org
SUMMARY:CdLS Foundation Webinar Series: Navigating the Health Care System
DESCRIPTION:So much of our ability to access medical and behavioral health care in the U.S. depends on a family’s health insurance. Whether your health coverage is offered by your employer\, purchased on a health exchange\, or includes Medicaid or Medicare\, understanding health insurance is a challenge for just about everyone. \nMaking sure you make the best selection possible for your family\, understand your benefits\, and how to get the most from your health plan is even more important when someone has complex care needs. Join us for this interactive webinar to  better understand \n\nThe different kinds of health plans offered by employers or through the marketplace and how they may best meet your family’s needs\n What frequently used insurance terms mean.\nWho to ask for and how to get accurate information from your health plan\nHow to advocate within your health plan\, including the denial and appeal process\nWhat is Medicaid\, how can it help\, and how to learn to apply for Medicaid\nHow long can my child remain on a parent’s insurance?\n\nThe webinar will be interactive\, allowing for questions and conversation\, so spaces are limited. Register now to attend!
URL:https://www.cdlsusa.org/event/cdls-foundation-webinar-series-navigating-the-health-care-system/
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BEGIN:VEVENT
DTSTART;TZID=UTC:20230412T200000
DTEND;TZID=UTC:20230412T210000
DTSTAMP:20260405T215846
CREATED:20230127T013825Z
LAST-MODIFIED:20230207T195254Z
UID:6908-1681329600-1681333200@www.cdlsusa.org
SUMMARY:Understanding and Addressing Pediatric Medical Trauma
DESCRIPTION:Anyone\, from infancy through adulthood\, can experience medical trauma. Caregivers can too. Understanding what medical trauma is and knowing the signs can help you get support for your child and family. Dr. Meghan Marsac\, pediatric psychologist\, and pediatric medical trauma expert\, and Melissa Hogan\, mother of a child with a rare disease\, wrote the book “Afraid of the Doctor” to help families who experience stressful and potentially traumatic medical events. Join us in conversation with them to learn more about this important topic.\n\nThis webinar will be held from 8 – 9 pm EST.\n\nRegister Now
URL:https://www.cdlsusa.org/event/understanding-and-addressing-pediatric-medical-trauma/
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