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X-WR-CALDESC:Events for CdLS Foundation
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DTSTART;VALUE=DATE:20221009
DTEND;VALUE=DATE:20221010
DTSTAMP:20260405T124921
CREATED:20211116T210504Z
LAST-MODIFIED:20221003T175258Z
UID:6016-1665273600-1665359999@www.cdlsusa.org
SUMMARY:2022 Bank of America Chicago Marathon
DESCRIPTION:Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the world-renowned Bank of America Chicago Marathon Sunday\, October 9\, 2022\, AND Agree to collect a minimum of no less than $1\,250 (USD) if the entry is claimed during the application window (Tuesday\, October 19\, 2021 to Tuesday\, November 30\, 2021 at 2 pm) and $1\,750 (USD) if the entry is claimed following the application window (after 2pm Tuesday\, November 30\, 2021 to Wednesday\, September 14\, 2022). \nThe CdLS Foundation will be there with you every step of the way\, providing you with:\n• Guaranteed race entry\n• Complimentary entry to the Balbo Hospitality Tent\n• An official Team CdLS singlet\n• Pre-Race & Post-Race Dinner\n• Team CdLS Swag Bag\n• Weekly training guides sent via email\n• Fundraising tools including your own personalized web page\n• Supportive teammates who may turn into life long friends\n• The satisfaction of knowing you’re helping individuals nationwide\, who have CdLS \nJoin us and you will run away from the race with new friends\, a sense of accomplishment and the satisfaction of making a difference. \nContact: specialevents@CdLSusa.org or call 800.753.2357 \nHelp support the team\, Donate Now.
URL:https://www.cdlsusa.org/event/chicago-marathon/
LOCATION:Chicago\, IL
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2019/11/20191013_063902-scaled.jpg
ORGANIZER;CN="Sherry Waitsman":MAILTO:swaitsman@CdLSusa.org
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DTSTART;VALUE=DATE:20221010
DTEND;VALUE=DATE:20221011
DTSTAMP:20260405T124921
CREATED:20211210T212458Z
LAST-MODIFIED:20211210T212458Z
UID:6099-1665360000-1665446399@www.cdlsusa.org
SUMMARY:Amber Gaines Memorial Golf Classic
DESCRIPTION:2022 Amber Gaines Memorial Golf Classic – Monday\, October 10 This long standing Missouri golf outing is one of the CdLS Foundation’s largest fundraisers. MCWP & PLM’s 33rd Annual Amber Gaines Memorial Golf Classic is slated for Monday\, October 10th at the Tapawingo National Golf Club. Participants will enjoy 18 holes of golf\, brunch\, dinner\, and an opportunity to win both skill and door prizes.
URL:https://www.cdlsusa.org/event/amber-gaines-memorial-golf-classic/
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20221015
DTEND;VALUE=DATE:20221016
DTSTAMP:20260405T124921
CREATED:20211210T032106Z
LAST-MODIFIED:20221003T175113Z
UID:6094-1665792000-1665878399@www.cdlsusa.org
SUMMARY:2022 Baltimore Running Festival
DESCRIPTION:Join Team CdLS runners at the Baltimore Running Festival on Saturday\, October 15\, 2022. Here is a chance to run through the scenic Inner Harbor waterfront area\, historic Federal Hill and charming Fells Point; all to raise money for children and adults with Cornelia de Lange Syndrome (CdLS). \nNot sure you can handle the full 26.2 mile marathon? That’s okay! There are different distances for a variety of skill levels. Walk the 5K\, jog the 10k\, stroll the half marathon or go for gold and take on the full marathon. The options are up to you! \nHelp support the team Donate Now
URL:https://www.cdlsusa.org/event/2022-baltimore-running-festival/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2018/10/IMG_4551.jpg
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DTSTART;TZID=America/New_York:20221020T120000
DTEND;TZID=America/New_York:20221020T120000
DTSTAMP:20260405T124921
CREATED:20220218T004951Z
LAST-MODIFIED:20220218T004951Z
UID:6243-1666267200-1666267200@www.cdlsusa.org
SUMMARY:Protected Tomorrows\, Parent University – Spooky Scenarios
DESCRIPTION:What do we hear that scares families the most. We will be tracking the toughest questions from all classes\, as well surveys done during the year. Come prepared with your questions. We are going to tackle the tough ones!
URL:https://www.cdlsusa.org/event/protected-tomorrows-parent-university-spooky-scenarios/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2020/12/logo-2.jpg
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DTSTART;TZID=UTC:20221022T120000
DTEND;TZID=UTC:20221022T160000
DTSTAMP:20260405T124921
CREATED:20220923T194545Z
LAST-MODIFIED:20220923T194545Z
UID:6645-1666440000-1666454400@www.cdlsusa.org
SUMMARY:New England Family Gathering
DESCRIPTION:Everyone is welcome! Come and enjoy an afternoon of connecting\, learning and fun for the whole family! Enjoy pony rides by Pony Town Parties\, pumpkin decorating\, and outdoor games. Fragile Footprints\, a local family support organization\, will host fun activities and games for siblings during the event.\n\nTo learn more about this event and how to RSVP contact Deirdre Summa.
URL:https://www.cdlsusa.org/event/new-england-family-gathering/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2022/09/Family-gathering-header.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20221029
DTEND;VALUE=DATE:20221030
DTSTAMP:20260405T124921
CREATED:20210614T191004Z
LAST-MODIFIED:20220819T211026Z
UID:3913-1667001600-1667087999@www.cdlsusa.org
SUMMARY:Multidisciplinary Clinic for Adolescents and Adults
DESCRIPTION:This Foundation-managed\, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore\, MD. Foundation Medical Director Antonie Kline\, M.D.\, Director of Clinical Genetics at the Harvey Institute for Human Genetics at GBMC\, has led these clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. \nPresentations on the following topics from CdLS Clinical Advisory Board members: Behavioral Psychology\, Child Psychiatry\, Gastroenterology\, Genetics\, Gynecology\, Neurology\, Pediatric Ophthalmology\, Speech Pathology. Live Q&A with CdLS Clinical Advisory Board Members. \nFor more information on the clinic or to secure your spot\, contact Whitney Rinaldi or call 860.676.8166.
URL:https://www.cdlsusa.org/event/multidisciplinary-clinic-for-adolescents-and-adults-7/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2018/10/2018-clinic-1.png
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