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DTSTART;TZID=UTC:20210715T200000
DTEND;TZID=UTC:20210715T200000
DTSTAMP:20260403T183750
CREATED:20201228T185256Z
LAST-MODIFIED:20201228T185256Z
UID:3395-1626379200-1626379200@www.cdlsusa.org
SUMMARY:Protected Tomorrows\, Parent University: Ways to Support Siblings in Special Needs Families
DESCRIPTION:Having a sibling with special needs is a reality many children are born into.  The advantages to having a sibling with special needs are numerous and include being more empathetic\, more responsible and more resilient. However\, these siblings also shoulder tremendous burdens that are not often or easily discussed.  We will talk about the role siblings play in day-to-day life and how to include\, educate\, and support them.
URL:https://www.cdlsusa.org/event/protected-tomorrows-parent-university-ways-to-support-siblings-in-special-needs-families/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2020/12/logo-2.jpg
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BEGIN:VEVENT
DTSTART;TZID=UTC:20210819T200000
DTEND;TZID=UTC:20210819T200000
DTSTAMP:20260403T183750
CREATED:20201228T185404Z
LAST-MODIFIED:20201228T185404Z
UID:3396-1629403200-1629403200@www.cdlsusa.org
SUMMARY:Protected Tomorrows\, Parent University: Transition Programs & Schools – What is the Right Choice?
DESCRIPTION:Finding the transition program that best meets the needs of your child with a disability is so important.  We will discuss the different types of programs\, what type of program is best for your child\, what types of community-based programs are out there\, what programs will benefit your child\, and how can you fund the programs your child attends.
URL:https://www.cdlsusa.org/event/protected-tomorrows-parent-university-transition-programs-schools-what-is-the-right-choice/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2020/12/logo-2.jpg
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BEGIN:VEVENT
DTSTART;TZID=UTC:20210923T200000
DTEND;TZID=UTC:20210923T200000
DTSTAMP:20260403T183750
CREATED:20201228T185507Z
LAST-MODIFIED:20201228T185507Z
UID:3397-1632427200-1632427200@www.cdlsusa.org
SUMMARY:Protected Tomorrows\, Parent University: Keeping “The Dream Team” Alive
DESCRIPTION:We will continue discussing the importance of The Dream Team and choosing the right people for the right job to ensure your child’s future success!  We will talk more in-depth about how to build this team and keep moving them forward – making it easier for your future caregiver and educating your trustee.  We will go to the NEXT LEVEL in your utilization of the Dream Team Plan to make it a reality.
URL:https://www.cdlsusa.org/event/protected-tomorrows-parent-university-keeping-the-dream-team-alive/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2020/12/logo-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210927
DTEND;VALUE=DATE:20210928
DTSTAMP:20260403T183750
CREATED:20210305T015719Z
LAST-MODIFIED:20210826T013812Z
UID:3613-1632700800-1632787199@www.cdlsusa.org
SUMMARY:New England Charity Golf Tournament
DESCRIPTION:The CdLS Foundation New England Golf Classic is set for Monday\, September 27\, 2021\, in Ipswich\, MA. Registration and breakfast begin at 7:45am with a 9am shotgun start\, followed by cocktails\, lunch\, awards and prizes at 1:30pm. \nWe missed this event last Spring due to the pandemic\, and decided this year to move the event from May to September just to be safe. So\, you haven’t missed it! To register as a player\, a foursome or as a sponsor go to our new New England Golf website.
URL:https://www.cdlsusa.org/event/new-england-charity-golf-tournament-2/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2019/03/ne-golf.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20211009
DTEND;VALUE=DATE:20211010
DTSTAMP:20260403T183750
CREATED:20210304T014206Z
LAST-MODIFIED:20210304T014206Z
UID:3598-1633737600-1633823999@www.cdlsusa.org
SUMMARY:2021 Baltimore Running Festival
DESCRIPTION:Virtual coaching\, tee shirt\, pre-race dinner with pizza and pasta and a view of beautiful Baltimore!
URL:https://www.cdlsusa.org/event/2021-baltimore-running-festival/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2018/10/IMG_4551.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20211010
DTEND;VALUE=DATE:20211011
DTSTAMP:20260403T183750
CREATED:20210304T012112Z
LAST-MODIFIED:20210304T013827Z
UID:3597-1633824000-1633910399@www.cdlsusa.org
SUMMARY:2021 Bank of America Chicago Marathon
DESCRIPTION:Many runners say that running has changed their lives.\nTeam CdLS runners say that they have changed the lives of others.\nJoin the Cornelia de Lange Syndrome (CdLS) Foundation\nat the world-renowned Bank of America Chicago Marathon\nSunday\, October 10\, 2021 \nThe CdLS Foundation will be there with you every step of the way\, providing you with:\n• Guaranteed race entry\n• Complimentary entry to the Balbo Hospitality Tent\n• An official Team CdLS singlet\n• Pre-Race & Post-Race Dinner\n• Team CdLS Swag Bag\n• Weekly training guides sent via email\n• Fundraising tools including your own personalized web page\n• Supportive teammates who may turn into life long friends\n• The satisfaction of knowing you’re helping individuals nationwide\, who have CdLS\nJoin us and you will run away from the race with new friends\, a sense of accomplishment and the satisfaction of making a difference. \nAs a Team CdLS member\, you are provided a guaranteed entry into the Bank of America Chicago Marathon with the understanding that you will meet the race’s requirements to:\n• Commit to raise a minimum of $1\,250 for children with CdLS\n• Pay all fees associated with entering and participating in the race (registration\, accommodations and transportation) \nContact: TeamCdLS@CdLSUSA.org or call 800.753.2357
URL:https://www.cdlsusa.org/event/2021-bank-of-america-chicago-marathon/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2019/11/20191013_063902-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20211011
DTEND;VALUE=DATE:20211012
DTSTAMP:20260403T183750
CREATED:20210305T015337Z
LAST-MODIFIED:20210826T014032Z
UID:3612-1633910400-1633996799@www.cdlsusa.org
SUMMARY:Missouri Charity Golf Tournament
DESCRIPTION:The Amber Gaines Memorial Golf Classic is scheduled for Monday\, October 11th in St. Louis\, MO. Registration and lunch begin at 11am with a 12:30pm shotgun start\, followed by cocktails\, dinner and prizes at 5:30pm. \nThis is the 33rd annual Foundation golf tournament in MO. It was renamed the Amber Gaines Memorial Golf Classic last year in tribute to Amber Gaines\, who had CdLS\, and sadly passed away last year at the age of 38. Amber was the inspiration for the tournament more than three decades ago. To register as a player\, a foursome or a sponsor for the golf outing in MO\, go to the Amber Gaines Golf Classic website.
URL:https://www.cdlsusa.org/event/missouri-charity-golf-tournament-3/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2019/06/mo-golf.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211021T200000
DTEND;TZID=UTC:20211021T200000
DTSTAMP:20260403T183750
CREATED:20201228T185616Z
LAST-MODIFIED:20201228T185616Z
UID:3398-1634846400-1634846400@www.cdlsusa.org
SUMMARY:Protected Tomorrows\, Parent University: What Residential Option Is Right for Your Family?
DESCRIPTION:Today\, many people with special needs live in some type of community setting.  With many housing options to choose from\, how do you choose the right one for your child.  We will discuss many of the options available: CILA\, group home\, living at home with parents or other family members\, single family home with other adults funded by the parents?
URL:https://www.cdlsusa.org/event/protected-tomorrows-parent-university-what-residential-option-is-right-for-your-family/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2020/12/logo-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20211106
DTEND;VALUE=DATE:20211107
DTSTAMP:20260403T183750
CREATED:20210614T190730Z
LAST-MODIFIED:20210614T195804Z
UID:3911-1636156800-1636243199@www.cdlsusa.org
SUMMARY:Multidisciplinary Clinic for Adolescents and Adults
DESCRIPTION:This Foundation-managed\, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore\, MD. Foundation Medical Director Antonie Kline\, M.D.\, Director of Clinical Genetics at the Harvey Institute for Human Genetics at GBMC\, has led these clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. \nPresentations on the following topics from CdLS Clinical Advisory Board members: Behavioral Psychology\, Child Psychiatry\, Gastroenterology\, Genetics\, Gynecology\, Neurology\, Pediatric Ophthalmology\, Speech Pathology. Live Q&A with CdLS Clinical Advisory Board Members. \nFor more information on the clinic or to secure your spot\, contact Whitney Rinaldi or call 860.676.8166.
URL:https://www.cdlsusa.org/event/multidisciplinary-clinic-for-adolescents-and-adults-6/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2018/10/2018-clinic-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20211107
DTEND;VALUE=DATE:20211108
DTSTAMP:20260403T183750
CREATED:20210304T015259Z
LAST-MODIFIED:20210304T021230Z
UID:3599-1636243200-1636329599@www.cdlsusa.org
SUMMARY:TCS New York City Marathon
DESCRIPTION:A smile from a child with CdLS inspires Team CdLS runners to turn their love of the sport into a passion to help raise funds for the hundreds of individuals that have this little- known syndrome. There is no cure. As a Team CdLS member\, you are provided a guaranteed entry into the TCS New York City Marathon with the understanding that you will meet the race’s requirements to: \n\nCommit to raise a minimum of $2\,500 for individuals with CdLS\nPay all fees associated with entering and participating in the race (registration\, accommodations and transportation)\n\n  \nTeam CdLS amenities include: \n\nGuaranteed race entry\nWeekly training guides sent via email\nFundraising tools including your own personalized Web page through CrowdRise.com\nDedicated staff to provide guidance and Team CdLS branded materials\nTeam CdLS singlet\nPre-Race Luncheon\nRace day support\nTeam CdLS swag bag\nThe satisfaction that you have helped individuals with CdLS and their families\n\nTo register for the TCS New York City Marathon as a Team CdLS runner\, email Annette or call 800-753-2357. Team CdLS also welcomes runners who entered through the lottery or otherwise qualified. \n2021 TCS New York City Marathon Processing and Entry Fees: \n\nU.S. residents (those who live in the 50 United States or the District of Columbia)\nNYRR members: US $255\nNon-members: US $295\nNon-U.S. residents (including Puerto Rico and other U.S. territories): US $358\n\nEntry fees will be charged upon acceptance. Once you have been accepted\, your entry fees are non-transferable under any and all circumstances\, and are also non-refundable under any and all circumstances except in the event of cancellation of the marathon. \nIncluded in the entry fee\, provided by the Foundation \nTCS New York City Marathon: \n\nEntry to the 2021 TCS New York City Marathon (including fluid/fueling stations\, medical support\, entertainment\, bag-check handling\,* security\, and more)\nRunner “goody bag” including official New Balance technical shirt and official TCS New York City Marathon Program magazine.\nOfficial transportation to the start from Midtown Manhattan\, Lower Manhattan\, or the Meadowlands Sports Complex (New Jersey)**\nStart festival\, including breakfast and entertainment.\nFinisher materials: medal\, food\, beverages\, Heatsheet™\, official results magazine\n\n  \nInterested in supporting the team without getting dirty? Give a one-time donation. Click here and select Team CdLS in the donation type. Make sure you mention NYC Marathon on the form.
URL:https://www.cdlsusa.org/event/tcs-new-york-city-marathon-3/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2018/10/team-cdls-logo-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211118T200000
DTEND;TZID=UTC:20211118T200000
DTSTAMP:20260403T183750
CREATED:20201228T185738Z
LAST-MODIFIED:20201228T185738Z
UID:3399-1637265600-1637265600@www.cdlsusa.org
SUMMARY:Protected Tomorrows\, Parent University: 2021 Parent University™ – A Year in Review
DESCRIPTION:We have worked all year to take next steps.  But it is easy to get caught in THE GAP. Sometimes\, when we are working toward a big goal\, we only see all that is still in front of us. Let’s turn around and review the whole year and see how far you have come in your planning and let’s close THE GAP. You will then see the real progress you have made for your family’s future. Then you can be energized as you develop new goals for 2022.
URL:https://www.cdlsusa.org/event/protected-tomorrows-parent-university-2021-parent-university-a-year-in-review/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2020/12/logo-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220212
DTEND;VALUE=DATE:20220213
DTSTAMP:20260403T183750
CREATED:20210826T020056Z
LAST-MODIFIED:20210826T020056Z
UID:5777-1644624000-1644710399@www.cdlsusa.org
SUMMARY:CdLS Remembrance Day
DESCRIPTION:Losing a loved one with CdLS at any age can be life-altering. Parents\, siblings\, relatives and friends feel tremendous loss and many times have a difficult time understanding why. It is so important that we as a community surround them with support and unconditional love. Although they have lost their child\, grandchild or sibling – they still belong and will forever be part of our journey. \nOn February 12th\, we will be celebrating CdLS Remembrance Day. We ask that our fellow CdLS community members partake in this special day with us to show solidarity with families who no longer have loved ones with them. \nPlease take a moment to remember everyone with CdLS who has died over the years. \nFor more information contact Gabrielle Nadeau.
URL:https://www.cdlsusa.org/event/cdls-remembrance-day/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2021/02/CdLS-Angels-Day-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220212
DTEND;VALUE=DATE:20220213
DTSTAMP:20260403T183750
CREATED:20210826T020606Z
LAST-MODIFIED:20210826T020606Z
UID:5778-1644624000-1644710399@www.cdlsusa.org
SUMMARY:Lights of Love for our CdLS Angels
DESCRIPTION:February 12th is CdLS Remembrance Day\, we ask everyone\, everywhere\, to light a candle in remembrance of each and every one of our loved ones who are no longer with us. \nSadly\, more of individuals with CdLS have gained their wings in the past year\, and we want to use this worldwide event to recognize and honor them.
URL:https://www.cdlsusa.org/event/lights-of-love-for-our-cdls-angels-2/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2021/02/Lights-of-Love.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220228
DTEND;VALUE=DATE:20220301
DTSTAMP:20260403T183750
CREATED:20210826T014952Z
LAST-MODIFIED:20210826T015305Z
UID:5775-1646006400-1646092799@www.cdlsusa.org
SUMMARY:Rare Disease Day
DESCRIPTION:Rare Disease Day® takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. \nFor more information\, contact Gabrielle Nadeau.
URL:https://www.cdlsusa.org/event/rare-disease-day-2/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2021/08/1200px-Rare_Disease_Day.svg_.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220319T120000
DTEND;TZID=UTC:20220319T120000
DTSTAMP:20260403T183750
CREATED:20220217T222349Z
LAST-MODIFIED:20220217T222349Z
UID:6236-1647691200-1647691200@www.cdlsusa.org
SUMMARY:Protected Tomorrows\, Parent University: Siblings & Caregivers: What They Might Want to Ask & What We Need to Tell Them
DESCRIPTION:In this class\, we will discuss how to prepare siblings and future caregivers so that they feel comfortable taking over the role. Let’s bring up the tough topics. We as parents want confidence that our plan will work as Future Caregivers who will take on this very important role. The hard questions will be addressed. We will get the advice from those who have stepped into the role to give us their input as well.
URL:https://www.cdlsusa.org/event/protected-tomorrows-parent-university-siblings-caregivers-what-they-might-want-to-ask-what-we-need-to-tell-them/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2020/12/logo-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220324T130000
DTEND;TZID=America/New_York:20220324T130000
DTSTAMP:20260403T183750
CREATED:20220217T222009Z
LAST-MODIFIED:20220217T222009Z
UID:6234-1648126800-1648126800@www.cdlsusa.org
SUMMARY:Protected Tomorrows\, Parent University: – Finance\, Taxes\, & Special Needs – Making It All Work in The End
DESCRIPTION:We understand that often we as parents put our children first. It’s natural. But we need to make sure we are financially secure as well\, because without us\, our children just might not be ok. We will talk about how your financial planning needs to be different\, how to coordinate the Special Needs Trust and the ABLE Account into it\, and how you integrate tax planning into your overall plan. There are so many taxes to consider\, including income taxes\, estate taxes and more. Questions such as\, “If I am charging my child rent\, do I claim it on my taxes?” will be answered. And we will talk about how the SECURE ACT might change how I distribute my retirement accounts to my children.
URL:https://www.cdlsusa.org/event/protected-tomorrows-parent-university-finance-taxes-special-needs-making-it-all-work-in-the-end/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2020/12/logo-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220402
DTEND;VALUE=DATE:20220403
DTSTAMP:20260403T183750
CREATED:20210614T191044Z
LAST-MODIFIED:20210614T191044Z
UID:3914-1648857600-1648943999@www.cdlsusa.org
SUMMARY:Multidisciplinary Clinic for Adolescents and Adults
DESCRIPTION:This Foundation-managed\, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore\, MD. Foundation Medical Director Antonie Kline\, M.D.\, Director of Clinical Genetics at the Harvey Institute for Human Genetics at GBMC\, has led these clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. \nPresentations on the following topics from CdLS Clinical Advisory Board members: Behavioral Psychology\, Child Psychiatry\, Gastroenterology\, Genetics\, Gynecology\, Neurology\, Pediatric Ophthalmology\, Speech Pathology. Live Q&A with CdLS Clinical Advisory Board Members. \nFor more information on the clinic or to secure your spot\, contact Deirdre Summa or call 860.676.8166.
URL:https://www.cdlsusa.org/event/multidisciplinary-clinic-for-adolescents-and-adults-8/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2018/10/2018-clinic-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220421T120000
DTEND;TZID=UTC:20220421T120000
DTSTAMP:20260403T183750
CREATED:20220217T222150Z
LAST-MODIFIED:20220217T222150Z
UID:6235-1650542400-1650542400@www.cdlsusa.org
SUMMARY:Protected Tomorrows\, Parent University: – Benefits: What You Need to Know & Get Clarity about the Often-Asked Questions
DESCRIPTION:We will discuss SSI\, SSDI\, DAC\, Medicare\, and Medicaid. We will talk about confusing topics like A.) Charging your child rent versus using the fair share formula. B.) Why do I hear you always get turned down the first time you apply for SSI? Is it true? C.) Do we really need to plan differently as to how we as parents plan to take our own Social Security?
URL:https://www.cdlsusa.org/event/protected-tomorrows-parent-university-benefits-what-you-need-to-know-get-clarity-about-the-often-asked-questions/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2020/12/logo-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220514
DTEND;VALUE=DATE:20220515
DTSTAMP:20260403T183750
CREATED:20210826T014715Z
LAST-MODIFIED:20210826T014715Z
UID:5774-1652486400-1652572799@www.cdlsusa.org
SUMMARY:National CdLS Awareness Day
DESCRIPTION:CdLS Awareness Day is observed each year in order to shed light on this often misdiagnosed\, little-known genetic syndrome. Parents\, volunteers and others request official Awareness Day proclamations from governors and local leaders; hang awareness flyers in public places; make presentations to civic groups or health workers; write to their local newspapers; and much more. \nFor more information contact Gabrielle Nadeau
URL:https://www.cdlsusa.org/event/national-cdls-awareness-day/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2021/06/2014.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220519T120000
DTEND;TZID=America/New_York:20220519T120000
DTSTAMP:20260403T183750
CREATED:20220218T000238Z
LAST-MODIFIED:20220218T000238Z
UID:6237-1652961600-1652961600@www.cdlsusa.org
SUMMARY:Protected Tomorrows\, Parent University - Siblings & Caregivers: What They Might Want to Ask & What We Need to Tell Them
DESCRIPTION:In this class\, we will discuss how to prepare siblings and future caregivers so that they feel comfortable taking over the role. Let’s bring up the tough topics. We as parents want confidence that our plan will work as Future Caregivers who will take on this very important role. The hard questions will be addressed. We will get the advice from those who have stepped into the role to give us their input as well.
URL:https://www.cdlsusa.org/event/protected-tomorrows-parent-university-siblings-caregivers-what-they-might-want-to-ask-what-we-need-to-tell-them-2/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2020/12/logo-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220523
DTEND;VALUE=DATE:20220524
DTSTAMP:20260403T183750
CREATED:20211210T212052Z
LAST-MODIFIED:20220329T201542Z
UID:6098-1653264000-1653350399@www.cdlsusa.org
SUMMARY:2022 New England Golf Classic
DESCRIPTION:Plans are underway for a fantastic golf fundraiser at Ipswich Country Club for the 29th Annual New England Golf Classic to be held on Monday\, MAY 23\, 2022! That’s right this popular event has been moved back to it’s original season and will be played in Spring. So be sure to make this your first golf outing of the year\, and be ready for a great day of golf and camraderie! \nLearn more
URL:https://www.cdlsusa.org/event/2022-new-england-golf-classic/
LOCATION:Ipswich Country Club\, 148 Country Club Way\, Ipswich\, MA\, 01938\, United States
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2021/06/Christie-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220611
DTEND;VALUE=DATE:20220612
DTSTAMP:20260403T183750
CREATED:20211210T212929Z
LAST-MODIFIED:20211210T212929Z
UID:6100-1654905600-1654991999@www.cdlsusa.org
SUMMARY:2nd Annual Hit the Trails in Avon\, CT
DESCRIPTION:Find out how to start your peer-to-peer fundraising and join CdLS Foundation families\, staff and volunteers as we walk\, run or bike an easy stint along one of the scenic Rail Trails in New England on the Farmington Valley Greenway Trail. Events@cdlsusa.org
URL:https://www.cdlsusa.org/event/2nd-annual-hit-the-trails-in-avon-ct/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2021/05/Hit-the-Trails-Option-Images-1-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220616T120000
DTEND;TZID=America/New_York:20220616T120000
DTSTAMP:20260403T183750
CREATED:20220218T000458Z
LAST-MODIFIED:20220218T000458Z
UID:6238-1655380800-1655380800@www.cdlsusa.org
SUMMARY:Protected Tomorrows\, Parent University – How to Make Life Better: Vacations Tips & Service Dogs
DESCRIPTION:In this class\, we will talk about taking vacations with your special needs child. How to plan better. Ideas so the whole family can have fun! How do we plan to make sure this continues by adding the recreation into our planning? And what about Service Dogs; Can they bring happiness and comfort to your child’s life?
URL:https://www.cdlsusa.org/event/protected-tomorrows-parent-university-how-to-make-life-better-vacations-tips-service-dogs/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2020/12/logo-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220721T120000
DTEND;TZID=America/New_York:20220721T120000
DTSTAMP:20260403T183750
CREATED:20220218T001814Z
LAST-MODIFIED:20220218T001814Z
UID:6239-1658404800-1658404800@www.cdlsusa.org
SUMMARY:Protected Tomorrows\, Parent University – Your Dream Team… Who Needs To Be There When You Can Not
DESCRIPTION:We will discuss what your Child’s Dream Team should consist of\, such as your legal team\, your financial team\, medical support\, recreation coordinators and the Coaches (the caregivers and guardians)\, How do you put a PLAYBOOK together with all the instructions your Team needs? What questions should you be asking your Dream Team now? How do you know if they are the right people for the Team? Tips and Ideas will be discussed. How will you keep them informed going forward?
URL:https://www.cdlsusa.org/event/protected-tomorrows-parent-university-your-dream-team-who-needs-to-be-there-when-you-can-not/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2020/12/logo-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220811T120000
DTEND;TZID=America/New_York:20220811T120000
DTSTAMP:20260403T183750
CREATED:20220218T002145Z
LAST-MODIFIED:20220218T002145Z
UID:6240-1660219200-1660219200@www.cdlsusa.org
SUMMARY:Protected Tomorrows\, Parent University – What are the Alternatives Best Suited for Your Child’s Success After They Leave Transition Programs?
DESCRIPTION:Why is transitioning each child so different? In this class\, we will discuss what happens when the bus stops coming. We will talk about day programming\, special recreation services\, job counseling\, job coaching\, and turning your child’s interest into a business opportunity.
URL:https://www.cdlsusa.org/event/protected-tomorrows-parent-university-what-are-the-alternatives-best-suited-for-your-childs-success-after-they-leave-transition-programs/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2020/12/logo-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220811T120000
DTEND;TZID=America/New_York:20220811T120000
DTSTAMP:20260403T183750
CREATED:20220218T002345Z
LAST-MODIFIED:20220218T002345Z
UID:6241-1660219200-1660219200@www.cdlsusa.org
SUMMARY:Protected Tomorrows\, Parent University – What are the Alternatives Best Suited for Your Child’s Success After They Leave Transition Programs?
DESCRIPTION:Why is transitioning each child so different? In this class\, we will discuss what happens when the bus stops coming. We will talk about day programming\, special recreation services\, job counseling\, job coaching\, and turning your child’s interest into a business opportunity.
URL:https://www.cdlsusa.org/event/protected-tomorrows-parent-university-what-are-the-alternatives-best-suited-for-your-childs-success-after-they-leave-transition-programs-2/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2020/12/logo-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220922T120000
DTEND;TZID=UTC:20220922T120000
DTSTAMP:20260403T183750
CREATED:20220218T004753Z
LAST-MODIFIED:20220218T004753Z
UID:6242-1663848000-1663848000@www.cdlsusa.org
SUMMARY:Protected Tomorrows\, Parent University – What Are the Options\, What Is the Best Fit\, & How to Fund Them
DESCRIPTION:In this class\, we will explain in detail\, current residential options: living with your parents\, Section 8 housing\, CILAS\, group/supportive housing\, skilled nursing facilities\, and Special Needs Trust ownerships/paying rent. We will talk about determining the best fit for your child and how to fund the different options.
URL:https://www.cdlsusa.org/event/protected-tomorrows-parent-university-what-are-the-options-what-is-the-best-fit-how-to-fund-them/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2020/12/logo-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221009
DTEND;VALUE=DATE:20221010
DTSTAMP:20260403T183750
CREATED:20211116T210504Z
LAST-MODIFIED:20221003T175258Z
UID:6016-1665273600-1665359999@www.cdlsusa.org
SUMMARY:2022 Bank of America Chicago Marathon
DESCRIPTION:Many runners say that running has changed their lives. Team CdLS runners say that they have changed the lives of others. Join the Cornelia de Lange Syndrome (CdLS) Foundation at the world-renowned Bank of America Chicago Marathon Sunday\, October 9\, 2022\, AND Agree to collect a minimum of no less than $1\,250 (USD) if the entry is claimed during the application window (Tuesday\, October 19\, 2021 to Tuesday\, November 30\, 2021 at 2 pm) and $1\,750 (USD) if the entry is claimed following the application window (after 2pm Tuesday\, November 30\, 2021 to Wednesday\, September 14\, 2022). \nThe CdLS Foundation will be there with you every step of the way\, providing you with:\n• Guaranteed race entry\n• Complimentary entry to the Balbo Hospitality Tent\n• An official Team CdLS singlet\n• Pre-Race & Post-Race Dinner\n• Team CdLS Swag Bag\n• Weekly training guides sent via email\n• Fundraising tools including your own personalized web page\n• Supportive teammates who may turn into life long friends\n• The satisfaction of knowing you’re helping individuals nationwide\, who have CdLS \nJoin us and you will run away from the race with new friends\, a sense of accomplishment and the satisfaction of making a difference. \nContact: specialevents@CdLSusa.org or call 800.753.2357 \nHelp support the team\, Donate Now.
URL:https://www.cdlsusa.org/event/chicago-marathon/
LOCATION:Chicago\, IL
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2019/11/20191013_063902-scaled.jpg
ORGANIZER;CN="Sherry Waitsman":MAILTO:swaitsman@CdLSusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221010
DTEND;VALUE=DATE:20221011
DTSTAMP:20260403T183750
CREATED:20211210T212458Z
LAST-MODIFIED:20211210T212458Z
UID:6099-1665360000-1665446399@www.cdlsusa.org
SUMMARY:Amber Gaines Memorial Golf Classic
DESCRIPTION:2022 Amber Gaines Memorial Golf Classic – Monday\, October 10 This long standing Missouri golf outing is one of the CdLS Foundation’s largest fundraisers. MCWP & PLM’s 33rd Annual Amber Gaines Memorial Golf Classic is slated for Monday\, October 10th at the Tapawingo National Golf Club. Participants will enjoy 18 holes of golf\, brunch\, dinner\, and an opportunity to win both skill and door prizes.
URL:https://www.cdlsusa.org/event/amber-gaines-memorial-golf-classic/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2021/06/IMG_3422-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221015
DTEND;VALUE=DATE:20221016
DTSTAMP:20260403T183750
CREATED:20211210T032106Z
LAST-MODIFIED:20221003T175113Z
UID:6094-1665792000-1665878399@www.cdlsusa.org
SUMMARY:2022 Baltimore Running Festival
DESCRIPTION:Join Team CdLS runners at the Baltimore Running Festival on Saturday\, October 15\, 2022. Here is a chance to run through the scenic Inner Harbor waterfront area\, historic Federal Hill and charming Fells Point; all to raise money for children and adults with Cornelia de Lange Syndrome (CdLS). \nNot sure you can handle the full 26.2 mile marathon? That’s okay! There are different distances for a variety of skill levels. Walk the 5K\, jog the 10k\, stroll the half marathon or go for gold and take on the full marathon. The options are up to you! \nHelp support the team Donate Now
URL:https://www.cdlsusa.org/event/2022-baltimore-running-festival/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2018/10/IMG_4551.jpg
END:VEVENT
END:VCALENDAR