BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//CdLS Foundation - ECPv6.15.18//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:CdLS Foundation
X-ORIGINAL-URL:https://www.cdlsusa.org
X-WR-CALDESC:Events for CdLS Foundation
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/Detroit
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20270314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20271107T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20270314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20271107T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:UTC
BEGIN:STANDARD
TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20250101T000000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260604T190000
DTEND;TZID=America/Detroit:20260604T201500
DTSTAMP:20260427T141017
CREATED:20260116T174255Z
LAST-MODIFIED:20260116T174255Z
UID:9927-1780599600-1780604100@www.cdlsusa.org
SUMMARY:CdLS Foundation June Virtual Support Group for Parents
DESCRIPTION:The next CdLS Foundation Parent Support Group is scheduled for June 4\, and we’d love to welcome you. \n📅 June 4\, 2026\n🕖 7:00–8:15 p.m. ET\n📍 Zoom (link provided upon registration)\n💡 Topic: Behavior \nThis confidential\, parent-only space offers time to:\n-Share what’s on your heart — or just listen\n-Learn from other parents who truly understand\n-Feel seen\, supported\, and less alone \nEven if you’re not sure you’ll feel like talking\, you are welcome just as you are. We would be honored to have you with us. \nIf you have any questions\, please don’t hesitate to contact Family Service at familyservicesteam@CdLSusa.org or call the Foundation at 888.753.2357. \nRegister here. 
URL:https://www.cdlsusa.org/event/cdls-foundation-june-virtual-support-group-for-parents/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2026/01/June-Support-Group-Behavior.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260611T130000
DTEND;TZID=America/New_York:20260611T140000
DTSTAMP:20260427T141017
CREATED:20260424T171751Z
LAST-MODIFIED:20260427T180218Z
UID:10159-1781182800-1781186400@www.cdlsusa.org
SUMMARY:June Parent University™ Class Presented by Protected Tomorrows
DESCRIPTION:June Parent University™ Class\nPresented by Protected Tomorrows \nClass Five\nABLE Accounts: The Basics and What to Use When\nJune 11\, 2026\n12:00 – 1:00 p.m. CST \nIn this exciting session about Able Accounts\, Protected Tomorrows will cover:\nThe basics of ABLE\, how ABLE differs by state\, and how to stay out of trouble. What is the best way to use this funding tool?\nAll classes begin at 12:00 p.m. CST\nPlease note that classes are recorded for future viewing \nRegister Here:\nhttps://protectedtomorrows.com/parent-university-registration/
URL:https://www.cdlsusa.org/event/june-parent-university-class-presented-by-protected-tomorrows/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2020/04/Parent-University.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260613T110000
DTEND;TZID=America/Detroit:20260613T160000
DTSTAMP:20260427T141017
CREATED:20260211T202702Z
LAST-MODIFIED:20260407T123816Z
UID:10008-1781348400-1781366400@www.cdlsusa.org
SUMMARY:Southeast Family Gathering- North Carolina
DESCRIPTION:Join families from North Carolina and surrounding states for a CdLS Foundation-sponsored Family Gathering. \nGraciously hosted by the Radionov Family\, parents of Kaleb. \nJune 13\, 202611 a.m. – 4 p.m. ET \nMt. Olivet UMC1082 Community RoadLexington\, NC 27295 \n*A Hoyer lift and adult changing table available at the venue.* \nBring the whole family and join us! You’ll have the chance to meet families in the area who share similar challenges and triumphs as parents of children with Cornelia de Lange Syndrome (CdLS). \nCdLS Foundation staff and Clinical Advisory Board members will be in attendance. \nLUNCH WILL BE PROVIDED. Families are asked to bring a side dish\, snack\, or beverage to share. \nRegister Here.
URL:https://www.cdlsusa.org/event/southeast-family-gathering-north-carolina/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2022/09/Family-gathering-header.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260702T190000
DTEND;TZID=America/Detroit:20260702T201500
DTSTAMP:20260427T141017
CREATED:20260116T174525Z
LAST-MODIFIED:20260116T174525Z
UID:9929-1783018800-1783023300@www.cdlsusa.org
SUMMARY:CdLS Foundation July Virtual Support Group for Parents
DESCRIPTION:The next CdLS Foundation Parent Support Group is scheduled for July 2\, and we’d love to welcome you. \n📅 July 2\, 2026\n🕖 7:00–8:15 p.m. ET\n📍 Zoom (link provided upon registration)\n💡 Topic: Healthy Living \nThis confidential\, parent-only space offers time to:\n-Share what’s on your heart — or just listen\n-Learn from other parents who truly understand\n-Feel seen\, supported\, and less alone \nEven if you’re not sure you’ll feel like talking\, you are welcome just as you are. We would be honored to have you with us. \nIf you have any questions\, please don’t hesitate to contact Family Service at familyservicesteam@CdLSusa.org or call the Foundation at 888.753.2357. \nRegister here.
URL:https://www.cdlsusa.org/event/cdls-foundation-july-virtual-support-group-for-parents/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2026/01/July-Support-Group-Healthy-Living.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260709T130000
DTEND;TZID=America/New_York:20260709T140000
DTSTAMP:20260427T141017
CREATED:20260427T173634Z
LAST-MODIFIED:20260427T174034Z
UID:10162-1783602000-1783605600@www.cdlsusa.org
SUMMARY:July Parent University™ Class Presented by Protected Tomorrows
DESCRIPTION:July Parent University™ Class\nPresented by Protected Tomorrows \nClass Seven\nThe Ins and Outs on the Uses of Special Needs Trusts\nJuly 9\, 2026\n12:00 – 1:00 p.m. CST \nIn this exciting session about Special Needs Trusts\, Protected Tomorrows will cover:\n• What kind and when should you set up a Special Needs Trust? How much should you fund the trust with?\n• How should you invest in the trust\, and what will the taxes be? When do you put money in? When do you take money out?\n• This is another great tool – Together\, let’s learn how to use it correctly.\nAll classes begin at 12:00 p.m. CST\nPlease note that classes are recorded for future viewing \nRegister Here:\nhttps://protectedtomorrows.com/parent-university-registration/
URL:https://www.cdlsusa.org/event/july-parent-university-class-presented-by-protected-tomorrows/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2020/04/Parent-University.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260808T190000
DTEND;TZID=America/Detroit:20260808T201500
DTSTAMP:20260427T141017
CREATED:20260116T174839Z
LAST-MODIFIED:20260116T174839Z
UID:9931-1786215600-1786220100@www.cdlsusa.org
SUMMARY:CdLS Foundation August Virtual Support Group for Parents
DESCRIPTION:The next CdLS Foundation Parent Support Group is scheduled for August 8\, and we’d love to welcome you. \n📅August 8\, 2026\n🕖 7:00–8:15 p.m. ET\n📍 Zoom (link provided upon registration)\n💡 Topic: Bring Your Loved One \nThis confidential\, parent-only space offers time to:\n-Share what’s on your heart — or just listen\n-Learn from other parents who truly understand\n-Feel seen\, supported\, and less alone \nEven if you’re not sure you’ll feel like talking\, you are welcome just as you are. We would be honored to have you with us. \nIf you have any questions\, please don’t hesitate to contact Family Service at familyservicesteam@CdLSusa.org or call the Foundation at 888.753.2357. \nRegister here. \n 
URL:https://www.cdlsusa.org/event/cdls-foundation-august-virtual-support-group-for-parents/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2026/01/Aug.-Support-Group-Bring-your-loved-one.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260813
DTEND;VALUE=DATE:20260814
DTSTAMP:20260427T141017
CREATED:20251229T204329Z
LAST-MODIFIED:20260113T180618Z
UID:9832-1786579200-1786665599@www.cdlsusa.org
SUMMARY:Multi-Specialty Clinic for children with CdLS at Shriners Children's Salt Lake City
DESCRIPTION:The CdLS Foundation\, in partnership with Shriners Children’s Salt Lake City\, is pleased to announce a Multi-Specialty Clinic for children with Cornelia de Lange Syndrome (CdLS) on August 13\, 2026\, at Shriners Children’s Salt Lake City. This clinic provides children with CdLS and their families access to comprehensive\, coordinated medical care in one convenient location. \nTo attend\, a child must be an existing Shriners patient or be evaluated at a Shriners Children’s facility prior to the clinic date. Assistance and additional details are available below. \nThis long-standing collaboration between the CdLS Foundation and Shriners Children’s creates a unique opportunity for families to meet with multiple pediatric specialists experienced in CdLS in a single day\, helping streamline care and reduce the burden of multiple appointments. \nMedical specialties available at the clinic include: \n\nGenetics\nOtolaryngology (ENT)\nGastroenterology\nPediatrics\nNutrition/Dietetics\nSocial Work\nOrthopedics\nAudiology\nWheelchair and Seating*\nOrthotists and Prosthetists*\n\n*Consultations may include devices such as custom shoe inserts and orthotics\, braces\, seating systems for medical strollers and wheelchairs\, and other supports designed to improve mobility\, comfort\, and quality of life. \nFor more information about the CdLS Multi-Specialty Clinic in Salt Lake City or to reserve your spot\, please contact Whitney Rinaldi\, Program Director of Family Services\, at 860-676-8166.
URL:https://www.cdlsusa.org/event/multi-specialty-clinic-for-children-with-cdls-at-shriners-childrens-salk-lake-city-3/
LOCATION:Shriners Children’s Salt Lake City\, 1275 E Fairfax Rd\, Salt Lake City\, UT\, 84103\, United States
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2025/12/Shriners.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260813T130000
DTEND;TZID=America/New_York:20260813T140000
DTSTAMP:20260427T141017
CREATED:20260427T174231Z
LAST-MODIFIED:20260427T180120Z
UID:10163-1786626000-1786629600@www.cdlsusa.org
SUMMARY:August Parent University™ Class Presented by Protected Tomorrows
DESCRIPTION:August Parent University™ Class\nPresented by Protected Tomorrows \nClass Eight\nEducation: Back-to-School Tips\nAugust 13\, 2026\n12:00 – 1:00 p.m. CST \n“School” can mean many things. In this exciting session about back-to-school tips\, Protected Tomorrows will cover:\n• If your child is young\, what is an IEP?\n• If your child is older\, what can you expect to be available?\n• Are there really appropriate school experiences for my child after high school?\nAll classes begin at 12:00 p.m. CST\nPlease note that classes are recorded for future viewing \nRegister Here:\nhttps://protectedtomorrows.com/parent-university-registration/
URL:https://www.cdlsusa.org/event/august-parent-university-class-presented-by-protected-tomorrows/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2020/04/Parent-University.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260903T190000
DTEND;TZID=America/Detroit:20260903T201500
DTSTAMP:20260427T141017
CREATED:20260116T175124Z
LAST-MODIFIED:20260116T175124Z
UID:9933-1788462000-1788466500@www.cdlsusa.org
SUMMARY:CdLS Foundation September Virtual Support Group for Parents
DESCRIPTION:The next CdLS Foundation Parent Support Group is scheduled for September 3\, and we’d love to welcome you. \n📅 September 3\, 2026\n🕖 7:00–8:15 p.m. ET\n📍 Zoom (link provided upon registration)\n💡 Topic: Eligibility Supports \nThis confidential\, parent-only space offers time to:\n-Share what’s on your heart — or just listen\n-Learn from other parents who truly understand\n-Feel seen\, supported\, and less alone \nEven if you’re not sure you’ll feel like talking\, you are welcome just as you are. We would be honored to have you with us. \nIf you have any questions\, please don’t hesitate to contact Family Service at familyservicesteam@CdLSusa.org or call the Foundation at 888.753.2357. \nRegister here.
URL:https://www.cdlsusa.org/event/cdls-foundation-september-virtual-support-group-for-parents/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2026/01/Sept.-Support-Group-Eligibility-Supports.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260910T130000
DTEND;TZID=America/New_York:20260910T140000
DTSTAMP:20260427T141017
CREATED:20260427T174806Z
LAST-MODIFIED:20260427T175727Z
UID:10164-1789045200-1789048800@www.cdlsusa.org
SUMMARY:September Parent University™ Class Presented by Protected Tomorrows
DESCRIPTION:September Parent University™ Class\nPresented by Protected Tomorrows \nClass Nine\nThe Many Faces of Protection\nSeptember 10\, 2026\n12:00 – 1:00 p.m. CST \nIn this exciting session\, Protected Tomorrows will cover:\n• How do you best protect what you’ve built for now and for the future?\n• Do you have the right kind of protection? What if you don’t know what you don’t know? What are the types of protection you should consider?\n• We’ll discuss insurance\, as well as titling opportunities.\nAll classes begin at 12:00 p.m. CST\nPlease note that classes are recorded for future viewing \nRegister Here:\nhttps://protectedtomorrows.com/parent-university-registration/
URL:https://www.cdlsusa.org/event/september-parent-university-class-presented-by-protected-tomorrows/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2020/04/Parent-University.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260919
DTEND;VALUE=DATE:20260920
DTSTAMP:20260427T141017
CREATED:20260211T203012Z
LAST-MODIFIED:20260324T143130Z
UID:10009-1789776000-1789862399@www.cdlsusa.org
SUMMARY:Northwest Region Family Gathering- Northern California
DESCRIPTION:Join families from California and surrounding states for a CdLS Foundation-sponsored Family Gathering. \nGraciously hosted by the Stagg family\, Parents to AJ \nSaturday\, September 19\, 2026\nTimes to be determined \nLocation to be determined.\nSebastopol\, CA \nBring the whole family and join us! You’ll have the chance to meet families in the area who share similar challenges and triumphs as parents of children with Cornelia de Lange Syndrome (CdLS). \nSPECIAL GUESTS: CdLS Foundation staff and Clinical Advisory Board member will be in attendance. \nLUNCH WILL BE PROVIDED. Families are asked to bring a side dish\, snack\, dessert\, or beverage to share. \nRegister Here
URL:https://www.cdlsusa.org/event/northwest-region-family-gathering-northern-california/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2022/09/Family-gathering-header.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20261001T190000
DTEND;TZID=America/Detroit:20261001T201500
DTSTAMP:20260427T141017
CREATED:20260116T184234Z
LAST-MODIFIED:20260116T184234Z
UID:9935-1790881200-1790885700@www.cdlsusa.org
SUMMARY:CdLS Foundation October Virtual Support Group for Parents
DESCRIPTION:The next CdLS Foundation Parent Support Group is scheduled for October 1\, and we’d love to welcome you. \n📅 October 1\, 2026\n🕖 7:00–8:15 p.m. ET\n📍 Zoom (link provided upon registration) \nThis confidential\, parent-only space offers time to:\n-Share what’s on your heart — or just listen\n-Learn from other parents who truly understand\n-Feel seen\, supported\, and less alone \nEven if you’re not sure you’ll feel like talking\, you are welcome just as you are. We would be honored to have you with us. \nIf you have any questions\, please don’t hesitate to contact Family Service at familyservicesteam@CdLSusa.org or call the Foundation at 888.753.2357. \nRegister here.
URL:https://www.cdlsusa.org/event/cdls-foundation-october-virtual-support-group-for-parents/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2026/01/Virtual-Support-Groups-.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261008T130000
DTEND;TZID=America/New_York:20261008T140000
DTSTAMP:20260427T141017
CREATED:20260427T175230Z
LAST-MODIFIED:20260427T175605Z
UID:10165-1791464400-1791468000@www.cdlsusa.org
SUMMARY:October Parent University™ Class Presented by Protected Tomorrows
DESCRIPTION:October Parent University™ Class\nPresented by Protected Tomorrows \nClass Ten\nEmployment: Bringing a Sense of Purpose\nOctober 8\, 2026\n12:00 – 1:00 p.m. CST \nIn this exciting session about employment\, Protected Tomorrows will cover:\n• What types of jobs are available for my child in the future? How do I help prepare my child for employment?\n• How will earned income impact my child’s government benefits? Will employers work with us for the best outcome?\n• Let’s hear from some employers who are getting it right! \nAll classes begin at 12:00 p.m. CST\nPlease note that classes are recorded for future viewing \nRegister Here: \nParent University Registration
URL:https://www.cdlsusa.org/event/october-parent-university-class-presented-by-protected-tomorrows/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2020/04/Parent-University.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261011
DTEND;VALUE=DATE:20261012
DTSTAMP:20260427T141018
CREATED:20251029T215226Z
LAST-MODIFIED:20260312T200852Z
UID:9682-1791676800-1791763199@www.cdlsusa.org
SUMMARY:2026 Bank of America Chicago Marathon
DESCRIPTION:Cheer on and support our amazing team of 33 athletes from all over the country and Mexico when Team CdLS participates in their 27th year at the Bank of America Chicago Marathon. This talented and diverse group of athletes will meet on October 11th and run 26.2 miles for those who cannot all while raising awareness and funds to support the CdLS Foundation. \nYou can see our amazing team\, read their inspiring stories and support them by clicking the team link below.\nhttps://givebutter.com/teamcdlschi26 \nWe do still have spots on our illustrations Curb Crew. They cheer on and support our team at crucial mile markers along the race route. If you are interested in joining our Curb Crew this year please reach out to Lisa Schroeder\, Event Manager at lschroeder@cdlsusa.org for more information. \nOn behalf of Team CdLS Chicago thank you for your support.
URL:https://www.cdlsusa.org/event/2026-bank-of-america-chicago-marathon/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2025/10/2025-Team-CdLS-CHI-Collage.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261012
DTEND;VALUE=DATE:20261013
DTSTAMP:20260427T141018
CREATED:20251121T183553Z
LAST-MODIFIED:20251121T183553Z
UID:9745-1791763200-1791849599@www.cdlsusa.org
SUMMARY:38th Annual Amber Gaines Memorial Golf Classic
DESCRIPTION:
URL:https://www.cdlsusa.org/event/38th-annual-amber-gaines-memorial-golf-classic/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2025/06/mo-golf3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261017
DTEND;VALUE=DATE:20261018
DTSTAMP:20260427T141018
CREATED:20251121T182626Z
LAST-MODIFIED:20260303T182743Z
UID:9743-1792195200-1792281599@www.cdlsusa.org
SUMMARY:Team CdLS Baltimore Running Festival 2026
DESCRIPTION:Its Time…..\nTo be a part of Team CdLS Baltimore for the 26th Annual Baltimore Running Festival\, taking place on Saturday\, October 17\, 2026! Our Social Team registration is now open. This exciting event promises a vibrant atmosphere filled with energy and camaraderie. As you lace up your running shoes\, you’ll not only be participating in an exhilarating day of racing but also making a significant impact in the lives of those affected by Cornelia de Lange Syndrome (CdLS). Together\, we will rally to raise awareness and essential funds for the CdLS Foundation. Your involvement is crucial\, and every step you take will help illuminate the path forward for this meaningful cause. Join us in making a difference! Last year’s team raised over $24\,000\, they could not have done that without your support! Run or walk\, you can even join virtually and “run for those who cannot”.\n\nThank you for your continued support!\nRegister here.\n\nIf you are interested in being on Team CdLS Baltimore 2026 or be a part of our Curb Crew\, please email Lisa Schreoder\, Event Manager at lschroeder@cdlsusa.org.
URL:https://www.cdlsusa.org/event/team-cdls-baltimore-running-festival-2026/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2023/01/team-cdls-logo.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20261105T190000
DTEND;TZID=America/Detroit:20261105T201500
DTSTAMP:20260427T141018
CREATED:20260116T184522Z
LAST-MODIFIED:20260122T203702Z
UID:9937-1793905200-1793909700@www.cdlsusa.org
SUMMARY:CdLS Foundation November Virtual Support Group for Parents
DESCRIPTION:The next CdLS Foundation Parent Support Group is scheduled for November 5\, and we’d love to welcome you. \n📅 November 5\, 2026\n🕖 7:00–8:15 p.m. ET\n📍 Zoom (link provided upon registration) \nThis confidential\, parent-only space offers time to:\n-Share what’s on your heart — or just listen\n-Learn from other parents who truly understand\n-Feel seen\, supported\, and less alone \nEven if you’re not sure you’ll feel like talking\, you are welcome just as you are. We would be honored to have you with us. \nIf you have any questions\, please don’t hesitate to contact Family Service at familyservicesteam@CdLSusa.org or call the Foundation at 888.753.2357. \nRegister here.
URL:https://www.cdlsusa.org/event/cdls-foundation-november-virtual-support-group-for-parents-2/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2026/01/Virtual-Support-Groups-.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261107
DTEND;VALUE=DATE:20261108
DTSTAMP:20260427T141018
CREATED:20251229T192824Z
LAST-MODIFIED:20251229T193243Z
UID:9825-1794009600-1794095999@www.cdlsusa.org
SUMMARY:Adolescent and Adult Multidisciplinary Clinic
DESCRIPTION:This Foundation-managed\, free Cornelia de Lange Syndrome (CdLS) clinic is held twice each year at Greater Baltimore Medical Center (GBMC) in Baltimore\, Maryland. Led since 2001 by Foundation Medical Director Antonie Kline\, M.D.\, Director of Clinical Genetics at the Harvey Institute for Human Genetics at GBMC\, the clinic provides families with direct access to nationally recognized CdLS experts. \nThe clinic is open to individuals age 12 and older living with Cornelia de Lange Syndrome\, along with their families and caregivers. \nAttendees benefit from educational presentations and live Q&A sessions with members of the CdLS Clinical Advisory Board\, covering key medical and developmental topics\, including: \n\nBehavioral Psychology\nChild Psychiatry\nGastroenterology\nGenetics\nGynecology\nNeurology\nPediatric Ophthalmology\nSpeech and Language\nUrology\n\nThis comprehensive clinic offers families an opportunity to learn\, ask questions\, and connect with specialists experienced in the care and management of Cornelia de Lange Syndrome. \nFor more information on the clinic or to secure your spot\, contact Mindy Graham\, Family Service Coordinator or call 860.676.8166.
URL:https://www.cdlsusa.org/event/gbmc-clinic-nov26/
LOCATION:Harvey Institute for Human Genetics\, Greater Baltimore Medical Center\, 6701 N. Charles St.\, Suite 2326\, Baltimore\, MD\, 21204\, United States
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2018/10/2018-clinic-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261112T130000
DTEND;TZID=America/New_York:20261112T140000
DTSTAMP:20260427T141018
CREATED:20260427T175427Z
LAST-MODIFIED:20260427T175427Z
UID:10166-1794488400-1794492000@www.cdlsusa.org
SUMMARY:November Parent University™ Class Presented by Protected Tomorrows
DESCRIPTION:November Parent University™ Class\nPresented by Protected Tomorrows \nClass Eleven\nSiblings and Future Caregivers: How to Prepare Them\nNovember 12\, 2026\n12:00 – 1:00 p.m. CST \nThe future depends on the decisions we make today. In this exciting session about future caregivers\, Protected Tomorrows will cover the important steps to prepare siblings and future caregivers. Learn more about participation in Protected Tomorrows’ new program aimed to help families get ready for what’s ahead. \nAll classes begin at 12:00 p.m. CST\nPlease note that classes are recorded for future viewing \nRegister Here: \nParent University Registration
URL:https://www.cdlsusa.org/event/november-parent-university-class-presented-by-protected-tomorrows/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2020/04/Parent-University.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20261203T190000
DTEND;TZID=America/Detroit:20261203T201500
DTSTAMP:20260427T141018
CREATED:20260116T184916Z
LAST-MODIFIED:20260116T184916Z
UID:9939-1796324400-1796328900@www.cdlsusa.org
SUMMARY:CdLS Foundation December Virtual Support Group for Parents
DESCRIPTION:The next CdLS Foundation Parent Support Group is scheduled for December 3\, and we’d love to welcome you. \n📅 December 3\, 2026\n🕖 7:00–8:15 p.m. ET\n📍 Zoom (link provided upon registration)\n💡 Topic: Bring Your Loved One \nThis confidential\, parent-only space offers time to:\n-Share what’s on your heart — or just listen\n-Learn from other parents who truly understand\n-Feel seen\, supported\, and less alone \nEven if you’re not sure you’ll feel like talking\, you are welcome just as you are. We would be honored to have you with us. \nIf you have any questions\, please don’t hesitate to contact Family Service at familyservicesteam@CdLSusa.org or call the Foundation at 888.753.2357. \nRegister here
URL:https://www.cdlsusa.org/event/cdls-foundation-december-virtual-support-group-for-parents/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2026/01/Dec.-Support-Group-Bring-your-loved-one.png
END:VEVENT
END:VCALENDAR