BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//CdLS Foundation - ECPv6.15.18//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:CdLS Foundation
X-ORIGINAL-URL:https://www.cdlsusa.org
X-WR-CALDESC:Events for CdLS Foundation
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:UTC
BEGIN:STANDARD
TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20170101T000000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=UTC:20190622T160000
DTEND;TZID=UTC:20190622T190000
DTSTAMP:20260403T185622
CREATED:20190425T174950Z
LAST-MODIFIED:20190425T174950Z
UID:2276-1561219200-1561230000@www.cdlsusa.org
SUMMARY:Northwest Illinois Family Gathering
DESCRIPTION:
URL:https://www.cdlsusa.org/event/northwest-illinois-family-gathering/
LOCATION:Burning Bush Community Center\, 1313 N. Burning Bush\, Mount Prospect\, IL\, 60056\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20190613T120000
DTEND;TZID=UTC:20190613T130000
DTSTAMP:20260403T185622
CREATED:20190520T220943Z
LAST-MODIFIED:20190520T221111Z
UID:2324-1560427200-1560430800@www.cdlsusa.org
SUMMARY:Neurodevelopmental Disorders and Behavioral Management in CdLS Webinar
DESCRIPTION:This webinar will provide an overview of neurodevelopmental challenges\, including approaches to treatment\, in Cornelia de Lange syndrome (CdLS). Individuals with CdLS can be affected by a number of developmental disorders\, including intellectual disability\, autism spectrum disorder\, language disorder\, ADHD\, aggression\, repetitive self-injurious behaviors\, anxiety\, and depression. This webinar will discuss each of these domains as it relates to CdLS\, as well as strategies for pharmacological intervention.\n\nPresenter: Siddarth Srivastava\, M.D.\, Ph.D.\, Boston Children’s Hospital
URL:https://www.cdlsusa.org/event/neurodevelopmental-disorders-and-behavioral-management-in-cdls-webinar/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2019/04/Webinar-AdobeStock_96932096-e1518107185168.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190520
DTEND;VALUE=DATE:20190521
DTSTAMP:20260403T185622
CREATED:20181026T003016Z
LAST-MODIFIED:20190429T193934Z
UID:1611-1558310400-1558396799@www.cdlsusa.org
SUMMARY:New England Charity Golf Tournament
DESCRIPTION:Join us and other families in New England to celebrate the 27th Annual CdLS Foundation New England Golf Tournament. The tournament takes place at the Ipswich Country Club in Ipswich\, MA. Participants will enjoy 18 holes of golf\, brunch\, dinner and an opportunity to win both skill and door prizes. \nRegister for the golf tournament here.
URL:https://www.cdlsusa.org/event/new-england-charity-golf-tournament/
LOCATION:Ipswich Country Club\, 148 Country Club Way\, Ipswich\, MA\, 01938\, United States
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2018/10/IMG_4306.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20190518T113000
DTEND;TZID=UTC:20190518T143000
DTSTAMP:20260403T185622
CREATED:20190315T182624Z
LAST-MODIFIED:20190326T174404Z
UID:2177-1558179000-1558189800@www.cdlsusa.org
SUMMARY:Northeast Region Family Gathering
DESCRIPTION:Hosted by Karen Aschenbrenner and Robert Boneberg\, parents of Alex
URL:https://www.cdlsusa.org/event/northeast-family-gathering/
LOCATION:De Hart Community Center\, 120 Burnett Ave\, Maplewood\, NJ\, 07040\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20190509T130000
DTEND;TZID=UTC:20190509T140000
DTSTAMP:20260403T185622
CREATED:20190418T170435Z
LAST-MODIFIED:20190418T170435Z
UID:2244-1557406800-1557410400@www.cdlsusa.org
SUMMARY:How to Address Challenging Behaviors Webinar
DESCRIPTION:This webinar will discuss:\n• Self-injury\n• Impulse control\n• Destruction of property\n• Determining the appropriate consequences\n• Treatment options (ABA\, etc.) or professional resources for families \nPresenter: Julia O’Connor\, Ph.D.\, is a Clinical Psychologist and the Director of Day Treatment Services at the Neurobehavioral Unit at Kennedy Krieger Institute. Her specialty is behavior problems\, including self-injurious behavior. She volunteers her time as a behavior consultant for the Foundation’s Clinical Advisory Board (CAB) and the Baltimore CdLS clinics.
URL:https://www.cdlsusa.org/event/how-to-address-challenging-behaviors-webinar/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2019/04/Webinar-AdobeStock_96932096-e1518107185168.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190505
DTEND;VALUE=DATE:20190506
DTSTAMP:20260403T185622
CREATED:20181026T002937Z
LAST-MODIFIED:20181128T013755Z
UID:1610-1557014400-1557100799@www.cdlsusa.org
SUMMARY:2019 TD Five Boro Bike Tour
DESCRIPTION:Many bicyclists say that biking has changed their lives. \nTeam CdLS bicyclists say that they have changed the lives of others.\nJoin the Cornelia de Lange Syndrome (CdLS) Foundation\nat the\nTD Five Boro Bike Tour\nSunday\, May 5\, 2019 \nThe CdLS Foundation will be there with you every step of the way\, providing you with:\n• Guaranteed entry and placement in the first Start Wave\n• An official Team CdLS singlet\n• Pre-Race Luncheon\n• VIP Access to the Finish festival\, including gourmet lunch and lounge\n• Pre-Race & Post-Race Dinner\n• Team CdLS Swag Bag\n• Fundraising tools including your own personalized web page\n• Supportive teammates who may turn into life-long friends\n• The satisfaction of knowing you’re helping individuals nationwide\, who have CdLS\nJoin us and you will run away from the race with new friends\, a sense of accomplishment and the satisfaction of making a difference. \nAs a Team CdLS member\, you are provided a guaranteed entry into the TD Five Boro Bike Tour with the understanding that you will meet the race’s requirements to:\n• Commit to raise a minimum of $750 for children with CdLS\n• Pay all fees associated with entering and participating in the race (registration\, accommodations and transportation) \nContact: TeamCdLS@CdLSUSA.org or call 800.753.2357.
URL:https://www.cdlsusa.org/event/2019-td-five-boro-bike-tour/
LOCATION:New York City
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2018/10/Team-Starting-Line-3.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20190504T130000
DTEND;TZID=UTC:20190504T160000
DTSTAMP:20260403T185622
CREATED:20190314T231459Z
LAST-MODIFIED:20190326T174159Z
UID:2175-1556974800-1556985600@www.cdlsusa.org
SUMMARY:Midwest Region Family Gathering
DESCRIPTION:
URL:https://www.cdlsusa.org/event/midwest-region-cdls-family-gathering/
LOCATION:Bloomfield Hills Schools\, 7273 Wing Lake Road\, Bloomfield Hills\, MI\, 48301\, United States
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2019/03/gatheringMI.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190427
DTEND;VALUE=DATE:20190428
DTSTAMP:20260403T185622
CREATED:20181022T193050Z
LAST-MODIFIED:20190227T005603Z
UID:1321-1556323200-1556409599@www.cdlsusa.org
SUMMARY:Midwest Region Family Gathering
DESCRIPTION:Save the date for the Midwest Family Gathering!  Hosted by Christy and Dave Whetstone!  Join families in the midwest region to spend time together talking\, sharing stories\, laughing\, and learning from one another. The connections made between parents\, grandparents\, children\, relatives\, and professionals can last a lifetime. Who better to talk about what it’s like to experience the sleepless nights\, the never ending tests and procedures and the concerns that a diagnosis of CdLS can bring\, than another parent who also has a child with the syndrome. \nFor more information\, contact families@cdlsusa.org.
URL:https://www.cdlsusa.org/event/midwest-family-gathering/
LOCATION:Beautiful Savior Lutheran Church\, 7706 South 96th Street\, LaVista\, NE\, 68128\, United States
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2018/10/Group2-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20190424T120000
DTEND;TZID=UTC:20190424T130000
DTSTAMP:20260403T185622
CREATED:20190418T165846Z
LAST-MODIFIED:20190418T165846Z
UID:2242-1556107200-1556110800@www.cdlsusa.org
SUMMARY:Genetic Testing and CdLS Webinar
DESCRIPTION:This webinar will discuss:\n• Clinical vs genetic testing\n• Various gene mutations associated with CdLS\n• Genetic testing that is available (including prenatally)\n• What are the benefits of getting tested\n• Are there different medical approaches to treatment for the various gene mutations \nPresenters: Sarah Raible\, M.S.\, C.G.C.\, is a Genetic Counselor and Clinic Coordinator for The Center for Cornelia de Lange Syndrome and Related Diagnoses at the Children’s Hospital of Philadelphia. Sarah is a member of the Foundation’s Clinical Advisory Board (CAB).\nAlena Egense\, MGC\, CGC\, is a Pediatric and Adult Genetic Counselor at University of Maryland Medical Center in Baltimore\, MD. Her clinical activities focus on Pediatric and Adult Genetics. Alena is a member of the Foundation’s CAB and the Baltimore CdLS clinics.
URL:https://www.cdlsusa.org/event/genetic-testing-and-cdls-webinar/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2019/04/webinar.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190413
DTEND;VALUE=DATE:20190414
DTSTAMP:20260403T185622
CREATED:20181022T194406Z
LAST-MODIFIED:20190125T001922Z
UID:1324-1555113600-1555199999@www.cdlsusa.org
SUMMARY:Multidisciplinary Clinic for Adolescents and Adults
DESCRIPTION:This Foundation-managed\, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore\, MD. Foundation Medical Director Antonie Kline\, M.D.\, director of Pediatric Genetics at the Harvey Institute for Human Genetics at GBMC\, has led these free clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. Clinics occur each spring and fall and can accommodate up to eight individuals. A Family Service Coordinator from the Foundation always attends to provide support. \nParticipants receive one-to-one consultations with specialists from pediatric ophthalmology\, gynecology\, pediatric dentistry\, genetics\, gastroenterology and nutrition\, psychiatry and behavioral psychology.
URL:https://www.cdlsusa.org/event/multidisciplinary-clinic-for-adolescents-and-adults-3/
LOCATION:Harvey Institute for Human Genetics\, Greater Baltimore Medical Center\, 6701 N. Charles St.\, Suite 2326\, Baltimore\, MD\, 21204\, United States
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2018/10/ewc_CHOPCDL200908056-001569.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190405
DTEND;VALUE=DATE:20190407
DTSTAMP:20260403T185622
CREATED:20181210T215248Z
LAST-MODIFIED:20190125T002158Z
UID:1880-1554422400-1554595199@www.cdlsusa.org
SUMMARY:Board of Directors Meeting
DESCRIPTION:
URL:https://www.cdlsusa.org/event/board-of-directors-meeting-2/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2018/12/IMG_4296.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20190323T140000
DTEND;TZID=UTC:20190323T170000
DTSTAMP:20260403T185622
CREATED:20190221T233219Z
LAST-MODIFIED:20190221T235420Z
UID:2107-1553349600-1553360400@www.cdlsusa.org
SUMMARY:CdLS Family Gathering
DESCRIPTION:Hosted by Fran Rissland\, mom to Riley\nFor more information contact Fran at  fran_rissland@hotmail.com
URL:https://www.cdlsusa.org/event/cdls-family-gathering/
LOCATION:Slope’s BBQ\, 200 Johnson Ferry Rd\, Atlanta\, GA\, 30328\, United States
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2019/02/Group-Photo.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190317
DTEND;VALUE=DATE:20190318
DTSTAMP:20260403T185622
CREATED:20181026T002824Z
LAST-MODIFIED:20181128T013256Z
UID:1609-1552780800-1552867199@www.cdlsusa.org
SUMMARY:2019 United Airlines NYC Half Marathon
DESCRIPTION:Many runners say that running has changed their lives. \nTeam CdLS runners say that they have changed the lives of others.\nKick off the running season\nwith the Cornelia de Lange Syndrome (CdLS) Foundation\nat the United Airlines NYC Half Marathon\nSunday\, March 17\, 2019 \nThe CdLS Foundation will be there with you every step of the way\, providing you with:\n• Guaranteed race entry\n• An official Team CdLS singlet\n• Team CdLS Swag Bag\n• Pre-Race Luncheon\n• Weekly training guides sent via email\n• Fundraising tools including your own personalized web page through CrowdRise.com\n• Supportive teammates who may turn into lifelong friends\n• The satisfaction of knowing you’re helping individuals nationwide\, who have CdLS\nJoin us and you will run away from the race with new friends\, a sense of accomplishment and the satisfaction of making a difference. \nAs a Team CdLS member\, you are provided a guaranteed entry into the United Airlines New York City Half Marathon with the understanding that you will meet the race’s requirements to:\n• Commit to raise a minimum of $1\,000 for children with CdLS\n• Pay all fees associated with entering and participating in the race (registration\, accommodations and transportation) \nContact: TeamCdLS@CdLSUSA.org or call 800.753.2357 \nAbout the United Airlines NYC Half Marathon:\n• The United Airlines NYC Half marathon will take participants on 13.1 mile run starting in Prospect Park in Brooklyn\, over the Manhattan Bridge\, and finishing in Central Park.\n• Runners will pass by many of New York City’s most popular sights\, including Grand Army Plaza\, the United Nations\, Grand Central Terminal\, Times Square\, and Central Park.\n• Led by a talent-packed roster of American and international elites\nAdditional race information is available on the United Airline NYC Half website.
URL:https://www.cdlsusa.org/event/2019-united-airlines-nyc-half-marathon/
LOCATION:New York City
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2018/10/Team-Photo-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190313
DTEND;VALUE=DATE:20190314
DTSTAMP:20260403T185622
CREATED:20181220T201502Z
LAST-MODIFIED:20190125T003004Z
UID:1932-1552435200-1552521599@www.cdlsusa.org
SUMMARY:CdLS Clinic at Shriner’s Hospital in Salt Lake City\, Utah
DESCRIPTION:(Serving individuals with CdLS who are 18 years old and younger) \nFor more information contact Lynn Audette at LAudette@CdLSusa.org
URL:https://www.cdlsusa.org/event/cdls-clinic-at-shriners-hospital-in-salt-lake-city-utah/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2018/12/ewc_CHOPCDLS112013001470.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20190309T110000
DTEND;TZID=UTC:20190309T140000
DTSTAMP:20260403T185622
CREATED:20190115T204946Z
LAST-MODIFIED:20190125T002343Z
UID:1995-1552129200-1552140000@www.cdlsusa.org
SUMMARY:Southwest Region Family Gathering
DESCRIPTION:Hosted by Courtney Hegarty\, AZ Regional Coordinator
URL:https://www.cdlsusa.org/event/southwest-region-family-gathering/
LOCATION:Red Mountain Park\, 7745 E Brown Rd\, Mesa\, AZ\, 85207\, United States
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2019/01/Savannah-Grazier-Briley-Svee-with-moms.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190216
DTEND;VALUE=DATE:20190217
DTSTAMP:20260403T185622
CREATED:20181022T192746Z
LAST-MODIFIED:20190124T233800Z
UID:1318-1550275200-1550361599@www.cdlsusa.org
SUMMARY:Southeast Region Family Gathering
DESCRIPTION:Save the date for the Southeast Region Family Gathering!  Hosted by Angie Young and being held in Fort Myers\, FL.  Join families in the southeast region to spend time together talking\, sharing stories\, laughing\, and learning from one another. The connections made between parents\, grandparents\, children\, relatives\, and professionals can last a lifetime. Who better to talk about what it’s like to experience the sleepless nights\, the never ending tests and procedures and the concerns that a diagnosis of CdLS can bring\, than another parent who also has a child with the syndrome. \nLakes Regional Park information
URL:https://www.cdlsusa.org/event/southeast-region-family-gathering/
LOCATION:Lakes Regional Park\, 7330 Gladious Drive\, Fort Myers\, FL\, 33907
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2018/10/Group2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20181208
DTEND;VALUE=DATE:20181209
DTSTAMP:20260403T185622
CREATED:20181026T001957Z
LAST-MODIFIED:20181026T001957Z
UID:1607-1544227200-1544313599@www.cdlsusa.org
SUMMARY:One Love\, One Heart 5K
DESCRIPTION:On December 8\, Jim and Jen Pomfret will mark the twelfth year of what is called the “hottest 5K of December”. As the One Love\, One Heart 5k slogan reads\, “One love refers to the universal love and respect expressed by all people for all people.” At the event\, this love is directed towards those who have a rare genetic disorder called Cornelia de Lange Syndrome (CdLS). This includes their daughter\, Maya. \n$25 Pre Registration by November 24\, 2018 \n$30 Late and Race Day Registration \nRain or Shine (or snow) \nWhen: 10:00 a.m. to 1 p.m.Where: Medlock Park\, Decatur\, GARunner\, walkers\, wheelchairs\, and strollers welcome. \nPACKET PICK UP & RACE DAY REGISTRATION\nRace Day Registration and Packet pick up starting at 8:45 am at the Pavilion at Medlock Park – 874 Gaylemont Circle\, Decatur\, 30033 \nDelicious refreshments will be available \nGreat playground for kids to play \nGuaranteed long sleeve t-shirts for all pre-registered runners; while supplies last for race day registration \nGift Card Awards: Overall male and female\, overall masters male and female\, top male and female in each age group \nPARKING\nParking is available in the paved parking lot on Scott Circle side of Medlock Park.
URL:https://www.cdlsusa.org/event/one-love-one-heart-5k/
LOCATION:Medlock Park\, Decatur\, GA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20181110T170000
DTEND;TZID=UTC:20181110T203000
DTSTAMP:20260403T185622
CREATED:20181024T185801Z
LAST-MODIFIED:20181024T185801Z
UID:1519-1541869200-1541881800@www.cdlsusa.org
SUMMARY:9th Annual Brew & BBQ
DESCRIPTION:On Saturday\, November 10th from 5:00 – 8:30 pm\, at Currahee Brewing Co. in Alpharetta\, GA the 9th Annual Brew & BBQ to benefit the CdLS Foundation will be held. Last year\, the event raised a net of $9\,000\, the highest total to date. Over the last eight years the event has raised over $39\,000 for the Foundation. \nFran Rissland\, mother of son Riley\, and former CdLS Foundation Board of Directors member\, is the organizer of this event. This year’s event features an extended BBQ buffet\, live music and a chance to bid on many silent auction items\, including hotel stays\, a golf foursome\, restaurants and much more!
URL:https://www.cdlsusa.org/event/9th-annual-brew-bbq/
LOCATION:Currahee Brewing Co.\, 25 S Main St\, Alpharetta\, GA\, 30009\, United States
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2018/10/39755126_2051643278202071_313018638166654976_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20181109
DTEND;VALUE=DATE:20181111
DTSTAMP:20260403T185622
CREATED:20181022T191558Z
LAST-MODIFIED:20181022T191558Z
UID:1316-1541721600-1541894399@www.cdlsusa.org
SUMMARY:Board of Directors Meeting
DESCRIPTION:
URL:https://www.cdlsusa.org/event/board-of-directors-meeting/
LOCATION:Phoenix\, AZ
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20181104
DTEND;VALUE=DATE:20181105
DTSTAMP:20260403T185622
CREATED:20181022T191057Z
LAST-MODIFIED:20181022T191057Z
UID:1310-1541289600-1541375999@www.cdlsusa.org
SUMMARY:TCS New York City Marathon
DESCRIPTION:A smile from a child with CdLS inspires Team CdLS runners to turn their love of the sport into a passion to help raise funds for the hundreds of individuals that have this little- known syndrome. There is no cure. \nAs a Team CdLS member\, you are provided a guaranteed entry into the TCS New York City Marathon with the understanding that you will meet the race’s requirements to:\n• Commit to raise a minimum of $2\,500 for individuals with CdLS\n• Pay all fees associated with entering and participating in the race (registration\, accommodations and transportation) \nTeam CdLS amenities include: \n• Guaranteed race entry\n• Weekly training guides sent via email\n• Fundraising tools including your own personalized Web page through CrowdRise.com\n• Dedicated staff to provide guidance and Team CdLS branded materials\n• Team CdLS singlet\n• Pre-Race Luncheon\n• Race day support\n• Team CdLS swag bag\n• The satisfaction that you have helped individuals with CdLS and their families \nTo register for the TCS New York City Marathon as a Team CdLS runner\, email Kristi or call 800-753-2357. Team CdLS also welcomes runners who entered through the lottery or otherwise qualified. \n2018 TCS New York City Marathon Processing and Entry Fees: \n• U.S. residents (those who live in the 50 United States or the District of Columbia)\n• NYRR members: US $255\n• Non-members: US $295\n• Non-U.S. residents (including Puerto Rico and other U.S. territories): US $358 \nEntry fees will be charged upon acceptance. Once you have been accepted\, your entry fees are non-transferable under any and all circumstances\, and are also non-refundable under any and all circumstances except in the event of cancellation of the marathon. \nIncluded in the entry fee\, provided by the 2018 TCS New York City Marathon: \n• Entry to the 2018 TCS New York City Marathon (including fluid/fueling stations\, medical support\, entertainment\, bag-check handling\,* security\, and more)\n• Runner “goody bag” including official New Balance technical shirt and official TCS New York City Marathon Program magazine.\n• Official transportation to the start from Midtown Manhattan\, Lower Manhattan\, or the Meadowlands Sports Complex (New Jersey)**\n• Start festival\, including breakfast and entertainment.\n• Finisher materials: medal\, food\, beverages\, Heatsheet™\, official results magazine \nRegistration Dates:\nGuaranteed Entry: January 15 – February 15\, 2018 (Entry notification announced on March 2) Team CdLS: February 28\, 2017
URL:https://www.cdlsusa.org/event/tcs-new-york-city-marathon/
LOCATION:New York City
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2018/10/20171104_151548-cropped.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20181103
DTEND;VALUE=DATE:20181104
DTSTAMP:20260403T185622
CREATED:20181022T040003Z
LAST-MODIFIED:20181022T191232Z
UID:539-1541203200-1541289599@www.cdlsusa.org
SUMMARY:Multidisciplinary Clinic for Adolescents and Adults
DESCRIPTION:This Foundation-managed\, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore\, MD. Foundation Medical Director Antonie Kline\, M.D.\, director of Pediatric Genetics at the Harvey Institute for Human Genetics at GBMC\, has led these free clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. Clinics occur each spring and fall and can accommodate up to eight individuals. A Family Service Coordinator from the Foundation always attends to provide support. \nParticipants receive one-to-one consultations with specialists from pediatric ophthalmology\, gynecology\, pediatric dentistry\, genetics\, gastroenterology and nutrition\, psychiatry and behavioral psychology.
URL:https://www.cdlsusa.org/event/multidisciplinary-clinic-for-adolescents-and-adults/
LOCATION:Harvey Institute for Human Genetics\, Greater Baltimore Medical Center\, 6701 N. Charles St.\, Suite 2326\, Baltimore\, MD\, 21204\, United States
END:VEVENT
END:VCALENDAR