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X-WR-CALDESC:Events for CdLS Foundation
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DTSTART;VALUE=DATE:20261017
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UID:9743-1792195200-1792281599@www.cdlsusa.org
SUMMARY:Team CdLS Baltimore Running Festival 2026
DESCRIPTION:Its Time…..\nTo be a part of Team CdLS Baltimore for the 26th Annual Baltimore Running Festival\, taking place on Saturday\, October 17\, 2026! Our Social Team registration is now open. This exciting event promises a vibrant atmosphere filled with energy and camaraderie. As you lace up your running shoes\, you’ll not only be participating in an exhilarating day of racing but also making a significant impact in the lives of those affected by Cornelia de Lange Syndrome (CdLS). Together\, we will rally to raise awareness and essential funds for the CdLS Foundation. Your involvement is crucial\, and every step you take will help illuminate the path forward for this meaningful cause. Join us in making a difference! Last year’s team raised over $24\,000\, they could not have done that without your support! Run or walk\, you can even join virtually and “run for those who cannot”.\n\nThank you for your continued support!\nRegister here.\n\nIf you are interested in being on Team CdLS Baltimore 2026 or be a part of our Curb Crew\, please email Lisa Schreoder\, Event Manager at lschroeder@cdlsusa.org.
URL:https://www.cdlsusa.org/event/team-cdls-baltimore-running-festival-2026/
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UID:9937-1793905200-1793909700@www.cdlsusa.org
SUMMARY:CdLS Foundation November Virtual Support Group for Parents
DESCRIPTION:The next CdLS Foundation Parent Support Group is scheduled for November 5\, and we’d love to welcome you. \n📅 November 5\, 2026\n🕖 7:00–8:15 p.m. ET\n📍 Zoom (link provided upon registration) \nThis confidential\, parent-only space offers time to:\n-Share what’s on your heart — or just listen\n-Learn from other parents who truly understand\n-Feel seen\, supported\, and less alone \nEven if you’re not sure you’ll feel like talking\, you are welcome just as you are. We would be honored to have you with us. \nIf you have any questions\, please don’t hesitate to contact Family Service at familyservicesteam@CdLSusa.org or call the Foundation at 888.753.2357. \nRegister here.
URL:https://www.cdlsusa.org/event/cdls-foundation-november-virtual-support-group-for-parents-2/
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DTSTART;VALUE=DATE:20261107
DTEND;VALUE=DATE:20261108
DTSTAMP:20260403T154739
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LAST-MODIFIED:20251229T193243Z
UID:9825-1794009600-1794095999@www.cdlsusa.org
SUMMARY:Adolescent and Adult Multidisciplinary Clinic
DESCRIPTION:This Foundation-managed\, free Cornelia de Lange Syndrome (CdLS) clinic is held twice each year at Greater Baltimore Medical Center (GBMC) in Baltimore\, Maryland. Led since 2001 by Foundation Medical Director Antonie Kline\, M.D.\, Director of Clinical Genetics at the Harvey Institute for Human Genetics at GBMC\, the clinic provides families with direct access to nationally recognized CdLS experts. \nThe clinic is open to individuals age 12 and older living with Cornelia de Lange Syndrome\, along with their families and caregivers. \nAttendees benefit from educational presentations and live Q&A sessions with members of the CdLS Clinical Advisory Board\, covering key medical and developmental topics\, including: \n\nBehavioral Psychology\nChild Psychiatry\nGastroenterology\nGenetics\nGynecology\nNeurology\nPediatric Ophthalmology\nSpeech and Language\nUrology\n\nThis comprehensive clinic offers families an opportunity to learn\, ask questions\, and connect with specialists experienced in the care and management of Cornelia de Lange Syndrome. \nFor more information on the clinic or to secure your spot\, contact Mindy Graham\, Family Service Coordinator or call 860.676.8166.
URL:https://www.cdlsusa.org/event/gbmc-clinic-nov26/
LOCATION:Harvey Institute for Human Genetics\, Greater Baltimore Medical Center\, 6701 N. Charles St.\, Suite 2326\, Baltimore\, MD\, 21204\, United States
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DTSTART;TZID=America/Detroit:20261203T190000
DTEND;TZID=America/Detroit:20261203T201500
DTSTAMP:20260403T154739
CREATED:20260116T184916Z
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UID:9939-1796324400-1796328900@www.cdlsusa.org
SUMMARY:CdLS Foundation December Virtual Support Group for Parents
DESCRIPTION:The next CdLS Foundation Parent Support Group is scheduled for December 3\, and we’d love to welcome you. \n📅 December 3\, 2026\n🕖 7:00–8:15 p.m. ET\n📍 Zoom (link provided upon registration)\n💡 Topic: Bring Your Loved One \nThis confidential\, parent-only space offers time to:\n-Share what’s on your heart — or just listen\n-Learn from other parents who truly understand\n-Feel seen\, supported\, and less alone \nEven if you’re not sure you’ll feel like talking\, you are welcome just as you are. We would be honored to have you with us. \nIf you have any questions\, please don’t hesitate to contact Family Service at familyservicesteam@CdLSusa.org or call the Foundation at 888.753.2357. \nRegister here
URL:https://www.cdlsusa.org/event/cdls-foundation-december-virtual-support-group-for-parents/
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