Anyone, from infancy through adulthood, can experience medical trauma. Caregivers can too. Understanding what medical trauma is and knowing the signs can help you get support for your child and family. Dr. Meghan Marsac, pediatric psychologist, and pediatric medical trauma expert, and Melissa Hogan, mother of a child with a rare disease, wrote the book “Afraid of the Doctor” to help families who experience stressful and potentially traumatic medical events. Join us in conversation with them to learn more about…

CdLS Awareness Day is observed each year in order to shed light on this often misdiagnosed, little-known genetic syndrome. Parents, volunteers and others request official Awareness Day proclamations from governors and local leaders; hang awareness flyers in public places; make presentations to civic groups or health workers; write to their local newspapers; and much more. For more information contact Gabrielle Nadeau

Join families from Illinois for a CdLS Foundation Sponsored Family Gathering. Graciously hosted by Charyn Beaumont, June 25, 2023 2-5pm PM CST at the Burning Bush Community Center in Mount Prospect, IL. For more information, contact: familyserviceteam@cdlsusa.org. Register here

Join us for a CdLS Family GatheringSaturday August 5, 202310:30 - 12:30Christ Community Church20600 W 119th StreetOlathe, KS 66061Hosted by Ashley and Matt Franck, parents to Sage. RSVP mattandashley28@gmail.comA light lunch will be provided

Protected Tomorrows’ 2023 Parent University™ brings you our ninth in a series of educational webinars… “Don’t Stress Out: Finding Professionals to Help” Our guest speakers will talk about the stress we often face as caregivers (or as the person with the disability); maybe we can’t avoid it, but we certainly should be able to find professionals who can guide us to survive it. What everyday techniques can we learn, and if we need professional assistance from a medical professional, can…

Please join Aubrie's Army for an afternoon fundraiser to raise awareness and funds for CdLS. Activities include a silent auction, a 1-mile fun run or walk option, light refreshments, and raffle prices. Bid winners will be announced at 4:30 PM. Fun Run tickets are $25 per person. The fun run event starts at 3 PM, and participants receive a shirt and gift bag. ALL PROCEEDS WILL GO DIRECTLY TO THE CdLS FOUNDATION. Hannah Park 6547 Clark State Road Gahanna, OH…