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X-WR-CALDESC:Events for CdLS Foundation
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DTSTART;VALUE=DATE:20191007
DTEND;VALUE=DATE:20191008
DTSTAMP:20260403T182157
CREATED:20190607T005826Z
LAST-MODIFIED:20190607T005826Z
UID:2346-1570406400-1570492799@www.cdlsusa.org
SUMMARY:Missouri Charity Golf Tournament
DESCRIPTION:
URL:https://www.cdlsusa.org/event/missouri-charity-golf-tournament/
LOCATION:Tapawingo Golf Course\, 13001 Gary Player Dr\, St. Louis\, MO\, 63127\, United States
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2019/06/mo-golf.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20191013
DTEND;VALUE=DATE:20191014
DTSTAMP:20260403T182157
CREATED:20181026T003122Z
LAST-MODIFIED:20181128T020039Z
UID:1612-1570924800-1571011199@www.cdlsusa.org
SUMMARY:2019 Bank of America Chicago Marathon
DESCRIPTION:Many runners say that running has changed their lives. \nTeam CdLS runners say that they have changed the lives of others.\nJoin the Cornelia de Lange Syndrome (CdLS) Foundation\nat the\nworld-renowned Bank of America Chicago Marathon\nSunday\, October 13\, 2019 \nThe CdLS Foundation will be there with you every step of the way\, providing you with:\n• Guaranteed race entry\n• Complimentary entry to the Balbo Hospitality Tent\n• An official Team CdLS singlet\n• Pre-Race & Post-Race Dinner\n• Team CdLS Swag Bag\n• Weekly training guides sent via email\n• Fundraising tools including your own personalized web page\n• Supportive teammates who may turn into life long friends\n• The satisfaction of knowing you’re helping individuals nationwide\, who have CdLS\nJoin us and you will run away from the race with new friends\, a sense of accomplishment and the satisfaction of making a difference. \nAs a Team CdLS member\, you are provided a guaranteed entry into the Bank of America Chicago Marathon with the understanding that you will meet the race’s requirements to:\n• Commit to raise a minimum of $1\,500 for children with CdLS\n• Pay all fees associated with entering and participating in the race (registration\, accommodations and transportation) \nContact: TeamCdLS@CdLSUSA.org or call 800.753.2357
URL:https://www.cdlsusa.org/event/2019-bank-of-america-chicago-marathon/
LOCATION:Chicago
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2018/10/Team-CdLS-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20191019
DTEND;VALUE=DATE:20191020
DTSTAMP:20260403T182157
CREATED:20181026T003239Z
LAST-MODIFIED:20190820T174449Z
UID:1614-1571443200-1571529599@www.cdlsusa.org
SUMMARY:2019 Baltimore Running Festival
DESCRIPTION:Virtual coaching\, tee shirt\, pre-race dinner with pizza and pasta and a view of beautiful Baltimore!
URL:https://www.cdlsusa.org/event/2019-baltimore-running-festival/
LOCATION:Baltimore
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2018/10/IMG_4551.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20191023T120000
DTEND;TZID=UTC:20191023T140000
DTSTAMP:20260403T182157
CREATED:20190920T200635Z
LAST-MODIFIED:20190920T200635Z
UID:2541-1571832000-1571839200@www.cdlsusa.org
SUMMARY:Retiring for 3 Webinar
DESCRIPTION:Mary Anne Ehlert will be presenting an in depth look at what Retiring for 3 means: \n\nHow much do you need and how much does your child need?\nWhen should you take Social Security?\nDoes Medicare matter enough to take your Social Security sooner?\nWhat will your child get in Social Security and when?\nWhat else changes for your child when You retire?\nDoes your pension impact your child’s benefits?
URL:https://www.cdlsusa.org/event/retiring-for-3-webinar/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2019/04/Webinar-AdobeStock_96932096-e1518107185168.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20191102
DTEND;VALUE=DATE:20191103
DTSTAMP:20260403T182157
CREATED:20181022T194303Z
LAST-MODIFIED:20190124T235448Z
UID:1322-1572652800-1572739199@www.cdlsusa.org
SUMMARY:Multidisciplinary Clinic for Adolescents and Adults
DESCRIPTION:This Foundation-managed\, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore\, MD. Foundation Medical Director Antonie Kline\, M.D.\, director of Pediatric Genetics at the Harvey Institute for Human Genetics at GBMC\, has led these free clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. Clinics occur each spring and fall and can accommodate up to eight individuals. A Family Service Coordinator from the Foundation always attends to provide support. \nParticipants receive one-to-one consultations with specialists from pediatric ophthalmology\, gynecology\, pediatric dentistry\, genetics\, gastroenterology and nutrition\, psychiatry and behavioral psychology.
URL:https://www.cdlsusa.org/event/multidisciplinary-clinic-for-adolescents-and-adults-2/
LOCATION:Harvey Institute for Human Genetics\, Greater Baltimore Medical Center\, 6701 N. Charles St.\, Suite 2326\, Baltimore\, MD\, 21204\, United States
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2018/10/2018-clinic-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20191103
DTEND;VALUE=DATE:20191104
DTSTAMP:20260403T182157
CREATED:20181026T003311Z
LAST-MODIFIED:20190201T030659Z
UID:1616-1572739200-1572825599@www.cdlsusa.org
SUMMARY:TCS New York City Marathon
DESCRIPTION:TEAM CdLS REGISTRATION BEGINS WEDNESDAY\, FEBRUARY 27\, 2019\nContact Kristi Larson to express your intentions\nA smile from a child with CdLS inspires Team CdLS runners to turn their love of the sport into a passion to help raise funds for the hundreds of individuals that have this little- known syndrome. There is no cure. As a Team CdLS member\, you are provided a guaranteed entry into the TCS New York City Marathon with the understanding that you will meet the race’s requirements to: \n\nCommit to raise a minimum of $2\,500 for individuals with CdLS\nPay all fees associated with entering and participating in the race (registration\, accommodations and transportation)\n\n  \nTeam CdLS amenities include: \n\nGuaranteed race entry\nWeekly training guides sent via email\nFundraising tools including your own personalized Web page through CrowdRise.com\nDedicated staff to provide guidance and Team CdLS branded materials\nTeam CdLS singlet\nPre-Race Luncheon\nRace day support\nTeam CdLS swag bag\nThe satisfaction that you have helped individuals with CdLS and their families\n\nTo register for the TCS New York City Marathon as a Team CdLS runner\, email Kristi or call 800-753-2357. Team CdLS also welcomes runners who entered through the lottery or otherwise qualified. \n2019 TCS New York City Marathon Processing and Entry Fees: \n\nU.S. residents (those who live in the 50 United States or the District of Columbia)\nNYRR members: US $255\nNon-members: US $295\nNon-U.S. residents (including Puerto Rico and other U.S. territories): US $358\n\nEntry fees will be charged upon acceptance. Once you have been accepted\, your entry fees are non-transferable under any and all circumstances\, and are also non-refundable under any and all circumstances except in the event of cancellation of the marathon. \nIncluded in the entry fee\, provided by the Foundation \nTCS New York City Marathon: \n\nEntry to the 2019 TCS New York City Marathon (including fluid/fueling stations\, medical support\, entertainment\, bag-check handling\,* security\, and more)\nRunner “goody bag” including official New Balance technical shirt and official TCS New York City Marathon Program magazine.\nOfficial transportation to the start from Midtown Manhattan\, Lower Manhattan\, or the Meadowlands Sports Complex (New Jersey)**\nStart festival\, including breakfast and entertainment.\nFinisher materials: medal\, food\, beverages\, Heatsheet™\, official results magazine\n\n  \nInterested in supporting the team without getting dirty? Give a one-time donation. Click here and select Team CdLS in the donation type. Make sure you mention NYC Marathon on the form.
URL:https://www.cdlsusa.org/event/tcs-new-york-city-marathon-2/
LOCATION:New York City
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2018/10/20181103_145043.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200111T080000
DTEND;TZID=UTC:20200111T120000
DTSTAMP:20260403T182157
CREATED:20191213T191414Z
LAST-MODIFIED:20191213T191730Z
UID:2690-1578729600-1578744000@www.cdlsusa.org
SUMMARY:CdLS Clinic at St. Louis Children’s Hospital
DESCRIPTION:St. Louis Children’s Hospital in St. Louis\, Missouri will host their second Cornelia de Lange Syndrome clinic.\n\nThe specialties in attendance will include the following: genetics\, neurology\, ophthalmology\, audiology/ear\, nose and throat\, and psychology.\nFor further details\, contact Whitney Rinaldi\, BSW\, at familyservice@CdLSusa.org
URL:https://www.cdlsusa.org/event/cdls-clinic-at-st-louis-childrens-hospital/
LOCATION:St. Louis Children’s Hospital\, 1 Children's Place\, St. Louis\, MO\, 63127\, United States
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2018/10/stlouis.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200311T080000
DTEND;TZID=UTC:20200311T120000
DTSTAMP:20260403T182157
CREATED:20190917T233926Z
LAST-MODIFIED:20190917T234138Z
UID:2528-1583913600-1583928000@www.cdlsusa.org
SUMMARY:CdLS Clinic at Shriner's Hospital
DESCRIPTION:Shriners Hospital for Children-Salt Lake City\, Utah will have their annual Cornelia de Lange Syndrome Clinic March 11\, 2020 from 8 am – 12 pm with a range of specialists available just for children with CdLS (new patients must be age 18 and younger). The specialties will include the following: pediatric orthopeadics\, eyes ears nose and throat\, gastrointestinal\, pediatrics\, neurology\, genetics\, the orthotics and prosthetic lab\, and physical and occupational therapy services. \nShriners Hospital for Children-Salt Lake City has been helping children with orthopaedic needs regardless of ability to pay since 1925. If you are interested in this clinic please contact Lynn Audette\, L.M.S.W.\, Family Service Coordinator at 1-800-223-8355 or families@CdLSusa.org.
URL:https://www.cdlsusa.org/event/cdls-clinic-at-shriners-hospital/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2018/10/shriners.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20200315
DTEND;VALUE=DATE:20200316
DTSTAMP:20260403T182157
CREATED:20191115T014546Z
LAST-MODIFIED:20191202T222832Z
UID:2636-1584230400-1584316799@www.cdlsusa.org
SUMMARY:2020 United Airlines NYC Half
DESCRIPTION:Many runners say that running has changed their lives.\nTeam CdLS runners say that they have changed the lives of others.\nKick off the running season\nwith the Cornelia de Lange Syndrome (CdLS) Foundation\nat the United Airlines NYC Half Marathon\nSunday\, March 15\, 2020 \nThe CdLS Foundation will be there with you every step of the way\, providing you with:\n• Guaranteed race entry\n• An official Team CdLS singlet\n• Team CdLS Swag Bag\n• Pre-Race Luncheon\n• Weekly training guides sent via email\n• Fundraising tools including your own personalized web page through CrowdRise.com\n• Supportive teammates who may turn into lifelong friends\n• The satisfaction of knowing you’re helping individuals nationwide\, who have CdLS\nJoin us and you will run away from the race with new friends\, a sense of accomplishment and the satisfaction of making a difference. \nAs a Team CdLS member\, you are provided a guaranteed entry into the United Airlines New York City Half Marathon with the understanding that you will meet the race’s requirements to:\n• Commit to raise a minimum of $1\,000 for children with CdLS\n• Pay all fees associated with entering and participating in the race (registration\, accommodations and transportation) \nContact: TeamCdLS@CdLSUSA.org or call 800.753.2357 \nAbout the United Airlines NYC Half Marathon:\n• The United Airlines NYC Half marathon will take participants on 13.1 mile run starting in Prospect Park in Brooklyn\, over the Manhattan Bridge\, and finishing in Central Park.\n• Runners will pass by many of New York City’s most popular sights\, including Grand Army Plaza\, the United Nations\, Grand Central Terminal\, Times Square\, and Central Park.\n• Led by a talent-packed roster of American and international elites\nAdditional race information is available on the United Airline NYC Half website.
URL:https://www.cdlsusa.org/event/2020-united-airlines-nyc-half/
LOCATION:New York City
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2018/10/Team-Photo-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200421T153000
DTEND;TZID=UTC:20200421T160000
DTSTAMP:20260403T182157
CREATED:20200416T181325Z
LAST-MODIFIED:20200416T203800Z
UID:2930-1587483000-1587484800@www.cdlsusa.org
SUMMARY:COVID-19 and Individuals with CdLS Webinar
DESCRIPTION:For 39 years\, the CdLS Foundation has been focused on improving the health and well-being of individuals living with CdLS and their families. Now\, as the CdLS community confronts the COVID-19 pandemic\, you are invited to join the Foundation and Drs. Antonie Kline and Soma Jyonouchi for a 30-minute webinar to hear how it affects individuals with CdLS and learn of resources that can help during this public health crisis. \nRegister Here  \n– – – \nDr. Kline joined the CdLS Foundation in 1989\, and in 2001 became Medical Director. In this role\, she oversees the Clinical Advisory Board\, CdLS Clinic for Adolescents and Adults\, the Ask the Expert program\, the biennial Scientific Symposium\, and much more. Since 2000\, Dr. Kline has been Director of Pediatric Genetics at the Harvey Institute of Human Genetics at Greater Baltimore Medical Center. After receiving her undergraduate degree from Wesleyan University in Connecticut\, Dr. Kline completed her medical studies at Jefferson Medical College in Philadelphia. She spent her residency at Sinai Hospital\, where she was Chief Resident. She gained valuable experience in CdLS during a Medical Genetics Fellowship at Jefferson Medical College with Dr. Laird Jackson\, the Foundation’s first medical director. Dr. Kline is currently an Instructor in Pediatrics at Johns Hopkins School of Medicine\, and Clinical Assistant Professor at the University of Maryland School of Medicine. \nDr. Jyonouchi is an Attending Physician with the Division of Allergy and Immunology and the Center for Cornelia de Lange Syndrome and Related Diagnoses at Children’s Hospital of Philadelphia. His areas of expertise include immunodeficiency in Cornelia de Lange syndrome and other genetic syndromes\, and asthma. Dr. Jyonouchi completed his medical studies at the Medical College of Wisconsin in Milwaukee. He spent his residency at Pediatrics – Children’s Hospital and Research Center at Oakland\, Oakland\, CA. Dr. Jyonouchi is a member of the CdLS Foundation’s Clinical Advisory Board (CAB).
URL:https://www.cdlsusa.org/event/covid-19-and-individuals-with-cdls-webinar/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2020/04/COVID-19-Live-Session-Update-SM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20200503
DTEND;VALUE=DATE:20200504
DTSTAMP:20260403T182157
CREATED:20191115T014235Z
LAST-MODIFIED:20191202T224040Z
UID:2635-1588464000-1588550399@www.cdlsusa.org
SUMMARY:2020 TD Five Boro Bike Tour
DESCRIPTION:Many bicyclists say that biking has changed their lives.\nTeam CdLS bicyclists say that they have changed the lives of others.\nJoin the Cornelia de Lange Syndrome (CdLS) Foundation\nat the TD Five Boro Bike Tour\nSunday\, May 3\, 2020 \nThe CdLS Foundation will be there with you every step of the way\, providing you with:\n• Guaranteed entry and placement in the first Start Wave\n• An official Team CdLS singlet\n• Pre-Race Luncheon\n• VIP Access to the Finish festival\, including gourmet lunch and lounge\n• Pre-Race & Post-Race Dinner\n• Team CdLS Swag Bag\n• Fundraising tools including your own personalized web page\n• Supportive teammates who may turn into life-long friends\n• The satisfaction of knowing you’re helping individuals nationwide\, who have CdLS\nJoin us and you will run away from the race with new friends\, a sense of accomplishment and the satisfaction of making a difference. \nAs a Team CdLS member\, you are provided a guaranteed entry into the TD Five Boro Bike Tour with the understanding that you will meet the race’s requirements to:\n• Commit to raise a minimum of $750 for children with CdLS\n• Pay all fees associated with entering and participating in the race (registration\, accommodations and transportation) \nContact: TeamCdLS@CdLSUSA.org or call 800.753.2357.
URL:https://www.cdlsusa.org/event/2020-td-five-boro-bike-tour/
LOCATION:New York City
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2018/10/Team-Starting-Line-3.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200618T200000
DTEND;TZID=UTC:20200618T210000
DTSTAMP:20260403T182157
CREATED:20200527T002236Z
LAST-MODIFIED:20200527T002236Z
UID:3004-1592510400-1592514000@www.cdlsusa.org
SUMMARY:Parent University: Taking Control of the Legal Mumbo Jumbo
DESCRIPTION:Putting together legal documents is confusing. Legal “talk” sometimes intimidates us. But the real concepts are simple\, and knowing what the legal “talk” means\, how it applies to you and your family\, and what you really need\, is so important to the big picture of the future. Sometimes we need help. The level of help we need it often defined by the kinds of help we need. In this part of the session\, let’s discuss all of the option that we might have and how to think about the realities of guardianship and conservatorship.
URL:https://www.cdlsusa.org/event/parent-university-taking-control-of-the-legal-mumbo-jumbo/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2020/04/Parent-University.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20200624
DTEND;VALUE=DATE:20200626
DTSTAMP:20260403T182157
CREATED:20190215T005731Z
LAST-MODIFIED:20200320T223759Z
UID:2089-1592956800-1593129599@www.cdlsusa.org
SUMMARY:Ninth Biennial CdLS Scientific & Educational Symposium
DESCRIPTION:This event has been POSTPONED. More details to come.
URL:https://www.cdlsusa.org/event/ninth-biennial-cdls-scientific-educational-symposium/
LOCATION:Marriott Tulsa Hotel\, Southern Hills\, Tulsa\, OK\, United States
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2018/10/scientific-symposium.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20200625
DTEND;VALUE=DATE:20200629
DTSTAMP:20260403T182157
CREATED:20190215T004834Z
LAST-MODIFIED:20200427T214846Z
UID:2087-1593043200-1593388799@www.cdlsusa.org
SUMMARY:CdLS National Family Conference
DESCRIPTION:This event has been CANCELED.   \nWe are excited to announce important information regarding the 2022 CdLS Foundation National Family Conference! The Conference will be held in Tulsa\, OK from June 23-26. \nBe sure to check out all of our information to get your fundraising plans going! 
URL:https://www.cdlsusa.org/event/cdls-national-family-conference/
LOCATION:Marriott Tulsa Hotel\, Southern Hills\, Tulsa\, OK\, United States
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2019/02/tulsa.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200625T120000
DTEND;TZID=UTC:20200626T160000
DTSTAMP:20260403T182157
CREATED:20200527T204243Z
LAST-MODIFIED:20200529T173119Z
UID:3009-1593086400-1593187200@www.cdlsusa.org
SUMMARY:2020 CdLS Foundation Virtual Conference
DESCRIPTION:Join worldwide CLS experts for a two-day virtual conference. Speakers will discuss topics ranging from behavior\, gastrointestinal (GI) challenges\, gene changes and a medical panel featuring the United States Medical Director\, Antonie Kline\, MD. \nViewers can choose to attend one or both days. One-day attendance is $25\, and two-day attendance is $40. Registration opens on May 29 and closes on June 22. \nThis Conference is a great learning opportunity for families; caregivers; medical\, educational and therapeutic professionals; and researchers wanting to learn more about Cornelia de Lange Syndrome (CdLS) and rare disease. \nRegister Now
URL:https://www.cdlsusa.org/event/2020-cdls-foundation-virtual-conference/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2020/05/Facebook-Post-2020-CdLS-Foundation-Virtual-Conference.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200820T200000
DTEND;TZID=UTC:20200820T210000
DTSTAMP:20260403T182157
CREATED:20200527T002429Z
LAST-MODIFIED:20200527T002730Z
UID:3005-1597953600-1597957200@www.cdlsusa.org
SUMMARY:Parent University: The Recipe for Financial Success
DESCRIPTION:There are a myriad of insurance plans to understand. Health insurance\, life insurance\, disability insurance\, long term care insurance – what to use\, when? What makes sense? The ABLE account rules are so confusing\, and you don’t want to make a mistake. We will review the basics of the ABLE account and how to select the right plan for you. How do we tie these accounts into the rest of our financial plan? Now that you have all the ingredients\, what recipe to we use to make a true cohesive plan and have financial success?
URL:https://www.cdlsusa.org/event/parent-university-the-recipe-for-financial-success/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2020/04/Parent-University.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200917T200000
DTEND;TZID=UTC:20200917T210000
DTSTAMP:20260403T182157
CREATED:20200527T002610Z
LAST-MODIFIED:20200527T002610Z
UID:3006-1600372800-1600376400@www.cdlsusa.org
SUMMARY:Parent University: Your Child Is Aging Out … What Now?
DESCRIPTION:Once your child is 22\, they will start receiving social security. Now what? Where will your child live? Where will they work? Navigating the transition period can be overwhelming but also exciting. It’s not just about the place\, it’s about the right home\, continuing education\, job opportunities\, recreation\, and the rest that makes life safe and fulfilling.
URL:https://www.cdlsusa.org/event/parent-university-your-child-is-aging-out-what-now/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2020/04/Parent-University.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20201007
DTEND;VALUE=DATE:20201008
DTSTAMP:20260403T182157
CREATED:20201002T223901Z
LAST-MODIFIED:20201002T223901Z
UID:3223-1602028800-1602115199@www.cdlsusa.org
SUMMARY:Special Olympics Illinois hosts - Including IL ABLE in Your Special Needs Financial Plan - Part 1
DESCRIPTION:Description: Learn how to put IL ABLE to work for you and/or for your Special Olympics athlete during this 3-part Webinar series. IL ABLE will join Protected Tomorrows as guest presenters from Noon – 1:00 pm Central Time on October 7\, October 14 and October 21. \nPart 1: \n• IL ABLE Account Basics \no Benefits of an ABLE Account\no Eligibility\no Contributing to and spending from an IL ABLE account\no Overview of ABLE programs across the country\no Preview next 2 sessions \nTime: Oct 7\, 2020 12:00 PM in Central Time (US and Canada) \nRegistration Here \nAll three parts of this webinar series will be recorded. If you are unable to attend but would like to receive the information needed to watch the recording\, please register and you will receive this information.
URL:https://www.cdlsusa.org/event/special-olympics-illinois-hosts-including-il-able-in-your-special-needs-financial-plan-part-1/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2020/10/Three-Part-Webinar-Series-Image.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20201011
DTEND;VALUE=DATE:20201012
DTSTAMP:20260403T182157
CREATED:20191115T015413Z
LAST-MODIFIED:20191202T223223Z
UID:2637-1602374400-1602460799@www.cdlsusa.org
SUMMARY:2020 Bank of America Chicago Marathon
DESCRIPTION:Many runners say that running has changed their lives.\nTeam CdLS runners say that they have changed the lives of others.\nJoin the Cornelia de Lange Syndrome (CdLS) Foundation\nat the world-renowned Bank of America Chicago Marathon\nSunday\, October 11\, 2020 \nThe CdLS Foundation will be there with you every step of the way\, providing you with:\n• Guaranteed race entry\n• Complimentary entry to the Balbo Hospitality Tent\n• An official Team CdLS singlet\n• Pre-Race & Post-Race Dinner\n• Team CdLS Swag Bag\n• Weekly training guides sent via email\n• Fundraising tools including your own personalized web page\n• Supportive teammates who may turn into life long friends\n• The satisfaction of knowing you’re helping individuals nationwide\, who have CdLS\nJoin us and you will run away from the race with new friends\, a sense of accomplishment and the satisfaction of making a difference. \nAs a Team CdLS member\, you are provided a guaranteed entry into the Bank of America Chicago Marathon with the understanding that you will meet the race’s requirements to:\n• Commit to raise a minimum of $1\,250 for children with CdLS\n• Pay all fees associated with entering and participating in the race (registration\, accommodations and transportation) \nContact: TeamCdLS@CdLSUSA.org or call 800.753.2357
URL:https://www.cdlsusa.org/event/2020-bank-of-america-chicago-marathon/
LOCATION:Chicago\, IL
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2019/11/20191013_063902-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20201012
DTEND;VALUE=DATE:20201013
DTSTAMP:20260403T182157
CREATED:20200320T182851Z
LAST-MODIFIED:20200320T182924Z
UID:2861-1602460800-1602547199@www.cdlsusa.org
SUMMARY:Missouri Charity Golf Tournament
DESCRIPTION:
URL:https://www.cdlsusa.org/event/missouri-charity-golf-tournament-2/
LOCATION:Tapawingo Golf Course\, 13001 Gary Player Dr\, St. Louis\, MO\, 63127\, United States
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2019/07/mo-golf.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20201014
DTEND;VALUE=DATE:20201015
DTSTAMP:20260403T182157
CREATED:20201002T224123Z
LAST-MODIFIED:20201002T224123Z
UID:3224-1602633600-1602719999@www.cdlsusa.org
SUMMARY:Special Olympics Illinois hosts - Including IL ABLE in Your Special Needs Financial Plan - Part 2
DESCRIPTION:Learn how to put IL ABLE to work for you and/or for your Special Olympics athlete during this 3-part Webinar series. IL ABLE will join Protected Tomorrows as guest presenters from Noon – 1:00 pm Central Time on October 7\, October 14 and October 21. \nPart 2: \n• IL ABLE Accounts\, Public Benefits and Special Needs Financial Planning \no ABLE and public benefits\no Practical uses of the IL ABLE account\no How an ABLE account might be funded\no What Type of Saver and Investor Are You?\no Review of IL ABLE investment and savings line-up\no Preview next session \nTime: Oct 14\, 2020 12:00 PM in Central Time (US and Canada) \nRegistration Here \nAll three parts of this webinar series will be recorded. If you are unable to attend but would like to receive the information needed to watch the recording\, please register and you will receive this information.
URL:https://www.cdlsusa.org/event/special-olympics-illinois-hosts-including-il-able-in-your-special-needs-financial-plan-part-2/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2020/10/Three-Part-Webinar-Series-Image.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20201015T200000
DTEND;TZID=UTC:20201015T210000
DTSTAMP:20260403T182157
CREATED:20200527T002844Z
LAST-MODIFIED:20200527T002844Z
UID:3007-1602792000-1602795600@www.cdlsusa.org
SUMMARY:Parent University: Retirement Planning – A Family Affair
DESCRIPTION:Saving for the long term\, understanding all of the opportunities and pitfalls\, and knowing how family coordinated plans are key to our success is not often discussed. Understand the questions to ask\, the numbers to crunch\, and the ways we need to work together in our planning to be successful.
URL:https://www.cdlsusa.org/event/parent-university-retirement-planning-a-family-affair/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20201021
DTEND;VALUE=DATE:20201022
DTSTAMP:20260403T182157
CREATED:20201002T224310Z
LAST-MODIFIED:20201002T224310Z
UID:3225-1603238400-1603324799@www.cdlsusa.org
SUMMARY:Special Olympics Illinois hosts - Including IL ABLE in Your Special Needs Financial Plan - Part 3
DESCRIPTION:Learn how to put IL ABLE to work for you and/or for your Special Olympics athlete during this 3-part Webinar series. IL ABLE will join Protected Tomorrows as guest presenters from Noon – 1:00 pm Central Time on October 7\, October 14 and October 21. \nPart 3: \n• Including IL ABLE in Your Overall Financial Plan with Special Global Messenger Guest \no How the IL ABLE account coordinates with the other financial tools available to families\no Recordkeeping (Mary Anne)\no Review of ABLE accounts and public benefits\no Perspective from an SOILL Global Messenger/ IL ABLE Account Owner \nTime: Oct 21\, 2020 12:00 PM in Central Time (US and Canada) \nRegistration Here \nAll three parts of this webinar series will be recorded. If you are unable to attend but would like to receive the information needed to watch the recording\, please register and you will receive this information.
URL:https://www.cdlsusa.org/event/special-olympics-illinois-hosts-including-il-able-in-your-special-needs-financial-plan-part-3/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2020/10/Three-Part-Webinar-Series-Image.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201024T080000
DTEND;TZID=America/New_York:20201024T130000
DTSTAMP:20260403T182157
CREATED:20201014T012500Z
LAST-MODIFIED:20201014T162503Z
UID:3254-1603526400-1603544400@www.cdlsusa.org
SUMMARY:CdLS Foundation UK & Ireland: CdLS Autumn Virtual Conference
DESCRIPTION:The CdLS Foundation of UK & Ireland is unable to hold physical\, in-person conference this year\, they are offering a virtual conference experience instead. They will have keynote presentations followed by live Q&A sessions after each\, where you get to ask specific questions of our experts. \nWith some familiar speakers and a new face or two\, they aim to provide the same quality information but tailored to what you\, our families\, wanted us to focus on. \nClick here to see the agenda for the day\, learn who the speakers are\, and the registration details. Registration will close just before midnight on October 23rd. \nThe whole event will be available to watch on-demand for 90 days for registrants.
URL:https://www.cdlsusa.org/event/cdls-foundation-uk-ireland-cdls-autumn-virtual-conference/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2020/10/88138939_2902908259796847_6530103212102385664_o.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20201107
DTEND;VALUE=DATE:20201108
DTSTAMP:20260403T182157
CREATED:20191202T214241Z
LAST-MODIFIED:20201030T010304Z
UID:2674-1604707200-1604793599@www.cdlsusa.org
SUMMARY:Virtual Multidisciplinary Clinic For Adolescents And Adults
DESCRIPTION:This Foundation-managed\, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore\, MD. Foundation Medical Director Antonie Kline\, M.D.\, director of Pediatric Genetics at the Harvey Institute for Human Genetics at GBMC\, has led these free clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. This year the clinic will be virtual. \nPresentations on the following topics from CdLS Clinical Advisory Board members: Behavioral Psychology\, Child Psychiatry\, Gastroenterology\, Genetics\, Gynecology\, Neurology\, Pediatric Ophthalmology\, Speech Pathology. Live Q&A with CdLS Clinical Advisory Board Members\n \n  \nFor more information on the virtual clinic or to secure your spot\,\ncontact Deirdre Summa or call 860.676.8166.
URL:https://www.cdlsusa.org/event/multidisciplinary-clinic-for-adolescents-and-adults-5/
LOCATION:Harvey Institute for Human Genetics\, Greater Baltimore Medical Center\, 6701 N. Charles St.\, Suite 2326\, Baltimore\, MD\, 21204\, United States
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2018/10/2018-clinic-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20201112T200000
DTEND;TZID=UTC:20201112T210000
DTSTAMP:20260403T182157
CREATED:20200527T003028Z
LAST-MODIFIED:20200527T003114Z
UID:3008-1605211200-1605214800@www.cdlsusa.org
SUMMARY:Parent University: Progress Report / Goal Setting Time
DESCRIPTION:A look at how the small steps you started out with this year are adding up to real progress in planning for your family’s future and to set your goals for the next year.
URL:https://www.cdlsusa.org/event/parent-university-progress-report-goal-setting-time/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2020/04/Parent-University.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Pacific/Auckland:20210121T200000
DTEND;TZID=Pacific/Auckland:20210121T200000
DTSTAMP:20260403T182157
CREATED:20201228T183347Z
LAST-MODIFIED:20201228T184757Z
UID:3388-1611259200-1611259200@www.cdlsusa.org
SUMMARY:Protected Tomorrows\, Parent University: New Year\, New Resolution… Keeping Your Life Care Plan Moving Forward
DESCRIPTION:The key to a more secure fulfilling future is blending realism with hope. That takes knowledge\, but also a willingness to learn about the many tools and techniques to help you get started.  We will work together to identify the goals you want to achieve and the dangers you will want to avoid\, along with building your team of professionals/caretakers to help you along the way.
URL:https://www.cdlsusa.org/event/protected-tomorrows-parent-university-new-year-new-resolution-keeping-your-life-care-plan-moving-forward/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2020/12/logo-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210210T110000
DTEND;TZID=UTC:20210210T120000
DTSTAMP:20260403T182157
CREATED:20210205T235049Z
LAST-MODIFIED:20210205T235049Z
UID:3480-1612954800-1612958400@www.cdlsusa.org
SUMMARY:Stimulus Payment and More Q&A: Get Your IL ABLE\, SSI Impact and Other ABLE Questions Answered
DESCRIPTION:Special Olympics Illinois in conjunction with IL ABLE and Protected Tomorrows will be hosting a webinar for families and providers entitled\, “Stimulus Payment and More Q&A: Get Your IL ABLE\, SSI Impact and Other ABLE Questions Answered” on Wednesday\, \nFebruary 10\, 2021 from 12:00pm – 1:00pm CST. \nProtected Tomorrows and IL ABLE will be guest presenters. \nPlease note\, this webinar will be recorded. All registered participants will receive the information needed to watch the recorded video. If you are unable to attend the live webinar but would like to watch the recorded video\, please make sure to register. \nRegister here
URL:https://www.cdlsusa.org/event/stimulus-payment-and-more-qa-get-your-il-able-ssi-impact-and-other-able-questions-answered/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2021/02/Stimulus-Payment-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210212
DTEND;VALUE=DATE:20210213
DTSTAMP:20260403T182157
CREATED:20210206T000517Z
LAST-MODIFIED:20210212T014820Z
UID:3484-1613088000-1613174399@www.cdlsusa.org
SUMMARY:A Day of Remembrance
DESCRIPTION:Losing a loved one with CdLS at any age can be life-altering. Parents\, siblings\, relatives and friends feel tremendous loss and many times have a difficult time understanding why. It is so important that we as a community surround them with support and unconditional love. Although they have lost their child\, grandchild or sibling – they still belong and will forever be part of our journey. \nOn February 12th\, we will be celebrating CdLS Remembrance Day. We ask that our fellow CdLS community members partake in this special day with us to show solidarity with families who no longer have loved ones with them. \nPlease take a moment to remember everyone with CdLS who has died over the years. \nWe ask that our CdLS community join the Foundation in changing their Facebook frame to our CdLS Angels frame in support of the many individuals who are no longer with us. \nFor more information contact Gabrielle Nadeau.
URL:https://www.cdlsusa.org/event/a-day-of-remembrance/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2021/02/CdLS-Angels-Day-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210212
DTEND;VALUE=DATE:20210213
DTSTAMP:20260403T182157
CREATED:20210206T001741Z
LAST-MODIFIED:20210206T001741Z
UID:3486-1613088000-1613174399@www.cdlsusa.org
SUMMARY:Lights of Love for our CdLS Angels
DESCRIPTION:February 12th is CdLS Remembrance Day\, we ask everyone\, everywhere\, to light a candle in remembrance of each and every one of our loved ones who are no longer with us. \nSadly\, more of individuals with CdLS have gained their wings in the past year\, and we want to use this worldwide event to recognize and honor them. \nVisit the Lights of Love Facebook page
URL:https://www.cdlsusa.org/event/lights-of-love-for-our-cdls-angels/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2021/02/Lights-of-Love.jpg
END:VEVENT
END:VCALENDAR