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X-WR-CALNAME:CdLS Foundation
X-ORIGINAL-URL:https://www.cdlsusa.org
X-WR-CALDESC:Events for CdLS Foundation
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DTSTART:20220101T000000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20240706T110000
DTEND;TZID=UTC:20240706T140000
DTSTAMP:20260403T195044
CREATED:20240327T184056Z
LAST-MODIFIED:20240327T184056Z
UID:7678-1720263600-1720274400@www.cdlsusa.org
SUMMARY:Nebraska Family Gathering
DESCRIPTION:Hosted by Michelle Reed\, mother of Beth Ann and Christy Courtney Whetstone\, mother of Bailey Aldersgate United Methodist Church\, 8320 South Street\, Lincoln NE We will be in the Sunshine Room and our lunch will be catered in by HyVee.
URL:https://www.cdlsusa.org/event/nebraska-family-gathering/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2022/10/Family-gathering-header-social-media-image-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240615T090000
DTEND;TZID=UTC:20240615T120000
DTSTAMP:20260403T195044
CREATED:20240430T165649Z
LAST-MODIFIED:20240507T194636Z
UID:7746-1718442000-1718452800@www.cdlsusa.org
SUMMARY:The Purple Pickle
DESCRIPTION:Mixed Doubles Pickleball Tournament \nCelebrating people with Cornelia de Lange Syndrome and disabilities.  \nTournament Details\nJune 15 | 9 AM to 12 PM \nThe Painted Pickle\n976 Brady Ave NW\, Atlanta\, GA 30318 \n\n\nTeams will advance through double elimination with teams playing one 15-point game per round. \n\n\nLosing once moves you to a secondary bracket\, maintaining a chance for redemption. Each team will be guaranteed to play twice. \n\n\nOnly mixed doubles teams are invited to compete. \n\n\nAll skill levels are invited to participate for a chance to win the Purple Paddle. \nTo learn more or to register\, click here.
URL:https://www.cdlsusa.org/event/the-purple-pickle/
LOCATION:The Purple Pickle\, 976 Brady Ave NW\, Atlanta\, GA\, 30318\, United States
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2024/04/thumbnail_TPP-Postcard-One-Side.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240613T130000
DTEND;TZID=UTC:20240613T140000
DTSTAMP:20260403T195044
CREATED:20240131T023313Z
LAST-MODIFIED:20240131T023313Z
UID:7559-1718283600-1718287200@www.cdlsusa.org
SUMMARY:Parent University: FATHER’S DAY MONTH AT ITS BEST – DADS\, DADS\, AND MORE DADS! THE IMPORTANT ROLE OF DAD IN THE PLANNING FOR THE FUTURE
DESCRIPTION:Our guests from the Special Dads Network talk about their experiences. How can DADs help identify EMPLOYMENT opportunities for their child? How might the Special Dads Network help? \nRegister now
URL:https://www.cdlsusa.org/event/parent-university-fathers-day-month-at-its-best-dads-dads-and-more-dads-the-important-role-of-dad-in-the-planning-for-the-future/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2020/12/logo-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240520
DTEND;VALUE=DATE:20240521
DTSTAMP:20260403T195044
CREATED:20240214T223203Z
LAST-MODIFIED:20240214T223538Z
UID:7631-1716163200-1716249599@www.cdlsusa.org
SUMMARY:2024 CdLS New England Golf Classic
DESCRIPTION:Plans are underway for a fantastic golf fundraiser at Ipswich Country Club for the 31st Annual New England Golf Classic to be held on Monday\, MAY 20\, 2024! This popular event will be played in spring. So be sure to make this your first golf outing of the year\, and be ready for a great day of golf and camaraderie!
URL:https://www.cdlsusa.org/event/2024-cdls-new-england-golf-classic/
LOCATION:Ipswich Country Club\, 148 Country Club Way\, Ipswich\, MA\, 01938\, United States
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2022/11/ne-golf22.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Karachi:20240511T130000
DTEND;TZID=Asia/Karachi:20240511T150000
DTSTAMP:20260403T195044
CREATED:20240416T000840Z
LAST-MODIFIED:20240416T171442Z
UID:7715-1715432400-1715439600@www.cdlsusa.org
SUMMARY:CdLS Awareness Day Event in Fairmont\, MN
DESCRIPTION:Join families in Fairmont\, MN\, for an International Awareness Day Event! Hosted by the Fausch family! Lunch will be served. \n  \n 
URL:https://www.cdlsusa.org/event/cdls-awareness-day-event-in-fairmont-mn/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2024/04/Screenshot-2024-04-13-at-2.36.23 PM.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240511T110000
DTEND;TZID=UTC:20240511T150000
DTSTAMP:20260403T195044
CREATED:20240422T222946Z
LAST-MODIFIED:20240422T223056Z
UID:7727-1715425200-1715439600@www.cdlsusa.org
SUMMARY:Let's Talk About CdLS 5th Annual Parade
DESCRIPTION:Join Sara\, the sister of Samira\, for the Let’s Talk About CdLS 5th Annual Parade. \nSaturday\, May 11\, 2024 \n11:00 a.m. – 3:00 p.m. \nCentral Falls High School \n24 Summer Street \nCentral Falls\, RI \n 
URL:https://www.cdlsusa.org/event/lets-talk-about-cdls-5th-annual-parade/
LOCATION:Central Falls High School\, 24 Summer Street\, Central Falls\, RI\, United States
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2024/04/thumbnail_image0.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240511
DTEND;VALUE=DATE:20240512
DTSTAMP:20260403T195044
CREATED:20230829T231247Z
LAST-MODIFIED:20231122T215536Z
UID:7305-1715385600-1715471999@www.cdlsusa.org
SUMMARY:International CdLS Awareness Day
DESCRIPTION:International CdLS Awareness Day is observed each year in order to shed light on this often misdiagnosed\, little-known genetic syndrome. Parents\, volunteers and others request official Awareness Day proclamations from governors and local leaders; hang awareness flyers in public places; make presentations to civic groups or health workers; write to their local newspapers; and much more. \nFor more information contact Gabrielle Nadeau
URL:https://www.cdlsusa.org/event/international-cdls-awareness-day/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2021/06/2014.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240509T130000
DTEND;TZID=UTC:20240509T140000
DTSTAMP:20260403T195044
CREATED:20240131T023015Z
LAST-MODIFIED:20240131T023015Z
UID:7558-1715259600-1715263200@www.cdlsusa.org
SUMMARY:Parent University: HOW TO INTRODUCE FUTURE GUARDIANS AND TRUSTEES INTO OUR FAMILY PROCESS – WHEN AND HOW?
DESCRIPTION:Family/Sibling communications. What they should know. What do they think they know and don’t know? If utilizing Corporate Guardians and Trustees\, when to start to bring them into your process? How to find peace of mind about the future. \nRegister now
URL:https://www.cdlsusa.org/event/parent-university-how-to-introduce-future-guardians-and-trustees-into-our-family-process-when-and-how/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2020/12/logo-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240504T113000
DTEND;TZID=UTC:20240504T153000
DTSTAMP:20260403T195044
CREATED:20240105T013221Z
LAST-MODIFIED:20240108T223642Z
UID:7489-1714822200-1714836600@www.cdlsusa.org
SUMMARY:Family Gathering - Virginia
DESCRIPTION:Hosted by Emily Munoz\, mom to Damien and Paula Messer\, mom to William\n\nSaturday May 4th\, 2024 \n11:30am – 3:30pm \nLambert’s Point Community Center \n1251 W. 42nd St.\nNorfolk\, VA  23508\n\n\nMain dish will be provided by hosts.  Families are asked to bring a side dish\, snacks or drinks.\n\nRegister here
URL:https://www.cdlsusa.org/event/family-gathering-virginia/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2022/09/Family-gathering-header.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240418T130000
DTEND;TZID=UTC:20240418T140000
DTSTAMP:20260403T195044
CREATED:20240131T022709Z
LAST-MODIFIED:20240131T022709Z
UID:7557-1713445200-1713448800@www.cdlsusa.org
SUMMARY:Parent Unversity: WE ALL NEED A VACATION! IS IT POSSIBLE TO MAKE THAT HAPPEN? YES!
DESCRIPTION:Let’s meet some service providers that assist in vacation planning when you have a family member with unique needs. We’ll hear from some families who had successful and amazing experiences. Now is a great time to start researching and finding out what will work for your family. \nRegister now
URL:https://www.cdlsusa.org/event/parent-unversity-we-all-need-a-vacation-is-it-possible-to-make-that-happen-yes/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2020/12/logo-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240413T083000
DTEND;TZID=UTC:20240413T150000
DTSTAMP:20260403T195044
CREATED:20230829T232251Z
LAST-MODIFIED:20231206T223845Z
UID:7307-1712997000-1713020400@www.cdlsusa.org
SUMMARY:Adolescent and Adult Multidisciplinary Clinic
DESCRIPTION:This Foundation-managed\, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore\, MD. Foundation Medical Director Antonie Kline\, M.D.\, Director of Clinical Genetics at the Harvey Institute for Human Genetics at GBMC\, has led these clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. \nPresentations on the following topics from CdLS Clinical Advisory Board members: Behavioral Psychology\, Child Psychiatry\, Gastroenterology\, Genetics\, Gynecology\, Neurology\, Pediatric Ophthalmology\, Speech Pathology. Live Q&A with CdLS Clinical Advisory Board Members. \nFor more information on the clinic or to secure your spot\, contact Whitney Rinaldi or call 860.676.8166.
URL:https://www.cdlsusa.org/event/adolescent-and-adult-multidisciplinary-clinic/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2018/10/2018-clinic-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240321T130000
DTEND;TZID=UTC:20240321T140000
DTSTAMP:20260403T195044
CREATED:20240131T022406Z
LAST-MODIFIED:20240131T022406Z
UID:7556-1711026000-1711029600@www.cdlsusa.org
SUMMARY:Parent University: OUR TOOLBOX IS FULL!! WHAT TOOL DO I USE WHEN? IT’S SO CONFUSING!! HELP!!
DESCRIPTION:We hear from so many families about how they are confused as to how to use many tools we now have for planning for our loved one. Some of the tools we have are: 3rd Party Special Needs Trusts\, 1st Party Special Needs Trusts\, SSI\, SSDI\, DAC\, ABLE accounts\, and work income. What tool to use when? Who to call? What to pay for? When to pay for it? What account to use? Who needs to know this? Parents\, guardians\, future guardians\, the person with a disability. Let’s talk about how to make it SIMPLE. \nRegister now
URL:https://www.cdlsusa.org/event/parent-university-our-toolbox-is-full-what-tool-do-i-use-when-its-so-confusing-help/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2020/12/logo-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240316
DTEND;VALUE=DATE:20240317
DTSTAMP:20260403T195044
CREATED:20240131T022015Z
LAST-MODIFIED:20240131T223630Z
UID:7554-1710547200-1710633599@www.cdlsusa.org
SUMMARY:Cornhole Tournament to benefit the CdLS Foundation
DESCRIPTION:Join us for a fundraiser benefiting the CdLS Foundation for Zack Homan’s\nCBSL Project\nPrizes\, Silent Auction\, Dinner\, and Drinks!\n\n\nHoly Ghost Hall\n7960 Mill Station Rd\nSebastopol\, CA 95472
URL:https://www.cdlsusa.org/event/cornhole-tournament-to-benefit-the-cdls-foundation/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2024/01/Zack-and-AJ.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240313
DTEND;VALUE=DATE:20240314
DTSTAMP:20260403T195044
CREATED:20230829T231002Z
LAST-MODIFIED:20230829T231525Z
UID:7304-1710288000-1710374399@www.cdlsusa.org
SUMMARY:Multi-Specialty Clinic for Children with CdLS
DESCRIPTION:We are excited to share that there will be a clinic on March 13\, 2024 at Shriners Children’s Salt Lake City. The clinic is a wonderful opportunity to meet with mulitiple doctors with expertise in CdLS all in one day.
URL:https://www.cdlsusa.org/event/multi-specialty-clinic-for-children-with-cdls/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2023/02/ShrinersChildrensLogo.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240229T190000
DTEND;TZID=UTC:20240229T203000
DTSTAMP:20260403T195044
CREATED:20240131T014039Z
LAST-MODIFIED:20240131T025924Z
UID:7552-1709233200-1709238600@www.cdlsusa.org
SUMMARY:Rare Disease Day Viewing Party: UNSEEN
DESCRIPTION:Join families\, board members\, and staff members on Rare Disease Day\, February 29\, 2024\, for a viewing party.\n\nMany caregivers for children or adults who are disabled or medically complex are exhausted and isolated. The award-winning “UNSEEN” documentary gives an honest glimpse into caregivers’ lives to enable change for millions.\n\nTo watch the preview of UNSEEN click here.\n\nRegister here!
URL:https://www.cdlsusa.org/event/rare-disease-day-viewing-party-unseen/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2024/01/Unseen.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240215T130000
DTEND;TZID=UTC:20240215T140000
DTSTAMP:20260403T195044
CREATED:20240131T021629Z
LAST-MODIFIED:20240131T021752Z
UID:7553-1708002000-1708005600@www.cdlsusa.org
SUMMARY:Parent University: BACK TO BASICS AND WHAT’S NEW
DESCRIPTION:This is for our new participants as well as those who have been with us before. We will review the basics and hear about what’s new. What do you have to pay attention to and how will it change your plan? Government Benefits\, Special Needs Trusts\, ABLE accounts\, Secure Act 2.0\, Tax Changes and more.\n\nRegister Here
URL:https://www.cdlsusa.org/event/parent-university-back-to-basics-and-whats-new/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2020/12/logo-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240212
DTEND;VALUE=DATE:20240213
DTSTAMP:20260403T195044
CREATED:20230829T231819Z
LAST-MODIFIED:20230829T231819Z
UID:7306-1707696000-1707782399@www.cdlsusa.org
SUMMARY:A Day of Remembrance
DESCRIPTION:Losing a loved one with CdLS at any age can be life-altering. Parents\, siblings\, relatives\, and friends feel a tremendous loss and often have difficulty understanding why. It is so important that we as a community surround them with support and unconditional love. Although they have lost their child\, grandchild\, or sibling – they still belong and will forever be part of our journey.\n\nOn February 12\, we will be celebrating CdLS Remembrance Day. We ask that our fellow CdLS community members partake in this special day with us to show solidarity with families who no longer have loved ones with them.\n\nPlease take a moment to remember everyone with CdLS who has died over the years.\n\nFor more information\, contact Gabrielle Nadeau.
URL:https://www.cdlsusa.org/event/a-day-of-remembrance-3/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2021/02/CdLS-Angels-Day-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20231207T120000
DTEND;TZID=UTC:20231207T130000
DTSTAMP:20260403T195044
CREATED:20230829T234147Z
LAST-MODIFIED:20230829T234147Z
UID:7313-1701950400-1701954000@www.cdlsusa.org
SUMMARY:2023 Parent University™ Class 12: Wrap Up: Did you Get Real?
DESCRIPTION:Sponsored by: Protected Tomorrows’ 2023 Parent University™\nSpeaker: Mary Anne Ehlert\, President & Founder\, Protected Tomorrows\, Inc.\n\nDescription:\n\nProtected Tomorrows’ 2023 Parent University™ brings you our twelfth and final in a series of educational webinars…\n\n“Wrap Up: Did you Get Real?”\n\nWe started with wanting to be real and created a list of goals in January. How did you do? What did you accomplish\, and what are the stumbling blocks? We’ll focus on successes and recognize where you started and how far you have come. It’s time to pat yourself on the back\, and graduate from Protect Tomorrows Parent University 2023. If you identified roadblocks\, how do you get help? We’ll set very specific goals to carry forward into 2024.\n\nMary Anne Ehlert will host this online Zoom class on:\nDecember 7th\, 2023\n12:00pm – 1:00 pm CST\n\nRegister here.
URL:https://www.cdlsusa.org/event/2023-parent-university-class-12-wrap-up-did-you-get-real/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2020/12/logo-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20231128
DTEND;VALUE=DATE:20231129
DTSTAMP:20260403T195044
CREATED:20230215T211818Z
LAST-MODIFIED:20230215T215631Z
UID:6974-1701129600-1701215999@www.cdlsusa.org
SUMMARY:Giving Tuesday
DESCRIPTION:Mark your calendars to create your social media outreach.
URL:https://www.cdlsusa.org/event/giving-tuesday/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2023/02/GT-LOGO.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20231116T120000
DTEND;TZID=UTC:20231116T130000
DTSTAMP:20260403T195044
CREATED:20230829T233926Z
LAST-MODIFIED:20230829T233926Z
UID:7312-1700136000-1700139600@www.cdlsusa.org
SUMMARY:2023 Parent University™ Class 11: The Big Worry; Future Residential Options
DESCRIPTION:Sponsored by: Protected Tomorrows’ 2023 Parent University™\nSpeaker: Mary Anne Ehlert\, President & Founder\, Protected Tomorrows\, Inc.\n\nDescription:\n\nProtected Tomorrows’ 2023 Parent University™ brings you our eleventh in a series of educational webinars…\n\n“The Big Worry; Future Residential Options”\n\nWe often hear this is the biggest worry. Where\, when\, how much it will cost\, and most importantly\, who will provide the oversight. Our panel will give us insights as to the steps to take\, how to think about starting\, is it ever too early or too late\, and finally how to involve the whole family and the Dream team in this process. There are many\, many types\, we’ll develop a tool together to identify what is the starting point of identifying the most important things you need to look for in your own situation.\n\nMary Anne Ehlert will host this online Zoom class on:\nNovember 16th\, 2023\n12:00pm – 1:00 pm CST\n\nRegister here.
URL:https://www.cdlsusa.org/event/2023-parent-university-class-11-the-big-worry-future-residential-options/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2020/12/logo-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20231104
DTEND;VALUE=DATE:20231105
DTSTAMP:20260403T195044
CREATED:20220812T001946Z
LAST-MODIFIED:20220812T001946Z
UID:6578-1699056000-1699142399@www.cdlsusa.org
SUMMARY:Multidisciplinary Clinic for Adolescents and Adults
DESCRIPTION:This Foundation-managed\, free clinic occurs twice yearly at Greater Baltimore Medical Center (GBMC) in Baltimore\, MD. Foundation Medical Director Antonie Kline\, M.D.\, Director of Clinical Genetics at the Harvey Institute for Human Genetics at GBMC\, has led these clinics since 2001. Any individual age 12 or older with CdLS can attend with their families. \nPresentations on the following topics from CdLS Clinical Advisory Board members: Behavioral Psychology\, Child Psychiatry\, Gastroenterology\, Genetics\, Gynecology\, Neurology\, Pediatric Ophthalmology\, Speech Pathology. Live Q&A with CdLS Clinical Advisory Board Members. \nFor more information on the clinic or to secure your spot\, contact Whitney Rinaldi or call 860.676.8166.
URL:https://www.cdlsusa.org/event/multidisciplinary-clinic-for-adolescents-and-adults-10/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2018/10/2018-clinic-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20231022T120000
DTEND;TZID=UTC:20231022T170000
DTSTAMP:20260403T195044
CREATED:20230818T212353Z
LAST-MODIFIED:20230818T212353Z
UID:7295-1697976000-1697994000@www.cdlsusa.org
SUMMARY:Iowa Family Gathering
DESCRIPTION:Cutty’s Okoboji Resort Club\n12pm – 5pm.\n1528 Highway 86 Spirit Lake\, IA 51360\nHosted by Kate Shaw\, sister to Kimberly.
URL:https://www.cdlsusa.org/event/iowa-family-gathering/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2022/09/Family-gathering-header.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20231015T000000
DTEND;TZID=UTC:20231015T000000
DTSTAMP:20260403T195044
CREATED:20230929T212256Z
LAST-MODIFIED:20230929T212256Z
UID:7381-1697328000-1697328000@www.cdlsusa.org
SUMMARY:2023 Walk for Will and Hope
DESCRIPTION:Join us for the 2023 Walk for Will & Hope on Sunday\, October 15\, at Stony Creek Metropark in Shelby Township.\nWe’ll walk two miles to raise funds for the CdLS Foundation. The walk is named after Will and Hope Kurth\, who were both born with Cornelia de Lange Syndrome (CdLS)\, a rare genetic condition that affects growth\, development\, and other areas.\nBased in Connecticut\, the CdLS Foundation is a nonprofit that helps those affected by CdLS and their families. It holds a conference every other year\, brings medical professionals familiar with the syndrome together\, and connects researchers. It’s an invaluable resource for families like the Kurths.\nOn October 15\, we’ll have the usual cider\, donuts\, and coffee. We’ll meet at the Mount Vernon picnic shelter. This is a non-timed event.\nJoin us!\nCan’t make it but want to support the Walk? Donate today by visiting bit.ly/WalkforWandH
URL:https://www.cdlsusa.org/event/2023-walk-for-will-and-hope/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2023/09/FaceBook-Event-Covers-1920-x-1080.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20231014T100000
DTEND;TZID=UTC:20231014T140000
DTSTAMP:20260403T195044
CREATED:20230608T005536Z
LAST-MODIFIED:20230725T222037Z
UID:7165-1697277600-1697292000@www.cdlsusa.org
SUMMARY:Texas Family Gathering
DESCRIPTION:Windhaven Meadows Park – Pavilion\n10 a.m. – 2 p.m. CDT\n5400 Windhaven ParkwayPlano\, TX 75093\n\nHosted by Tiffany Hendricks\, mom to Tristen and Olivia; Bailey Woods\, mom to Carson.
URL:https://www.cdlsusa.org/event/texas-family-gathering/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2022/09/Family-gathering-header.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20231014
DTEND;VALUE=DATE:20231015
DTSTAMP:20260403T195044
CREATED:20221110T213320Z
LAST-MODIFIED:20230208T222811Z
UID:6724-1697241600-1697327999@www.cdlsusa.org
SUMMARY:2023 Baltimore Running Festival
DESCRIPTION:Join Team CdLS – Baltimore for a chance to run through the scenic Inner Harbor waterfront area\, historic Federal Hill and charming Fells Point; all to raise money for children and adults with Cornelia de Lange Syndrome (CdLS).Team CdLS – Baltimore is in the process of building our team of runners for the big event. Spots are going fast. Register today. If you are not a runner\, but want to get involved\, contact Sherry Waitsman for ideas.
URL:https://www.cdlsusa.org/event/2023-baltimore-running-festival/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2022/11/Team-Baltimore.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20231012T120000
DTEND;TZID=UTC:20231012T130000
DTSTAMP:20260403T195044
CREATED:20230829T233707Z
LAST-MODIFIED:20230829T233707Z
UID:7311-1697112000-1697115600@www.cdlsusa.org
SUMMARY:2023 Parent University™ Class 10: Financial Planning for the Whole Family: Now and In the Future
DESCRIPTION:Sponsored by: Protected Tomorrows’ 2023 Parent University™\nSpeaker: Mary Anne Ehlert\, President & Founder\, Protected Tomorrows\, Inc.\n\nDescription:\n\nProtected Tomorrows’ 2023 Parent University™ brings you our tenth in a series of educational webinars…\n\n“Financial Planning for the Whole Family: Now and In the Future”\n\nOur financial planning needs to be different. We have to take care of ourselves\, our whole family\, sometimes our extended family\, and we have to do it during our working years\, our retired years\, and even beyond our lifetime. We need to know how to fit all of this into our planning – think about social security differently\, build our portfolio differently\, and thoroughly understand the insurance we need or don’t need. The whole planning process can be overwhelming\, but one step at a time makes it much easier to make progress.\n\nMary Anne Ehlert will host this online Zoom class on:\nOctober 12th\, 2023\n12:00pm – 1:00 pm CDT\n\nRegister here.
URL:https://www.cdlsusa.org/event/2023-parent-university-class-10-financial-planning-for-the-whole-family-now-and-in-the-future/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2020/12/logo-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20231009
DTEND;VALUE=DATE:20231010
DTSTAMP:20260403T195044
CREATED:20221212T224114Z
LAST-MODIFIED:20230201T012214Z
UID:6807-1696809600-1696895999@www.cdlsusa.org
SUMMARY:2023 MCWP & PLM Amber Gaines Memorial Golf Classic
DESCRIPTION:The CdLS Foundation’s longest running major event – the MCWP & PLM Amber Gaines Memorial Golf Classic – is kicking off its 35th year on Monday\, October 9\, 2023\, at the beautiful Tapawingo National Golf Course in St. Louis\, MO. Registration and lunch begin at 11 AM with a 12:30 PM shotgun start\, followed by cocktails\, dinner\, and prizes at 5:30 PM. Don’t miss the best golf event in the Midwest!
URL:https://www.cdlsusa.org/event/amber-gaines-memorial-golf-classic-2/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2019/06/mo-golf.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20231008
DTEND;VALUE=DATE:20231009
DTSTAMP:20260403T195044
CREATED:20221110T205501Z
LAST-MODIFIED:20230208T222906Z
UID:6720-1696723200-1696809599@www.cdlsusa.org
SUMMARY:2023 Bank of America Chicago Marathon
DESCRIPTION:The CdLS Foundation will once again have a fantastic Team CdLS running in Chicago! The 2023 Bank of America Chicago Marathon has been officially scheduled for October 8. Team CdLS will converge on Chicago this Fall\, and to run for our precious children and adults with CdLS and their families.\n\nTeam CdLS – Chicago is in the process of building our team of runners for the big event. Spots are going fast. Register today. If you are not a runner\, but want to get involved\, contact Sherry Waitsman for ideas.
URL:https://www.cdlsusa.org/event/2023-bank-of-america-chicago-marathon/
ATTACH;FMTTYPE=image/jpeg:https://www.cdlsusa.org/wp-content/uploads/2018/10/Team-CdLS-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20231007T113000
DTEND;TZID=UTC:20231007T143000
DTSTAMP:20260403T195044
CREATED:20230818T212533Z
LAST-MODIFIED:20230818T212533Z
UID:7296-1696678200-1696689000@www.cdlsusa.org
SUMMARY:Wisconsin Family Gathering
DESCRIPTION:Cornerstore Baptist Church\n11:30am- 2:30pm.\nS3111 Ableman Road Reedsburg\, WI 53959\nHosted by Brandi and Chamuel Marvici\, parents of Reagan.
URL:https://www.cdlsusa.org/event/wisconsin-family-gathering-2/
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20231004T183000
DTEND;TZID=UTC:20231004T203000
DTSTAMP:20260403T195044
CREATED:20230829T233437Z
LAST-MODIFIED:20230829T233437Z
UID:7310-1696444200-1696451400@www.cdlsusa.org
SUMMARY:Planning For The Future
DESCRIPTION:Sponsored by: Willow Creek Church\, South Barrington\nSpeaker: Mary Anne Ehlert\, President & Founder\, Protected Tomorrows\, Inc.\n\nCome join us at Willow Creek Church for Mary Anne Ehlert’s presentation: “Planning For The Future.”\n\nThis presentation will be uplifting\, interactive and educational\, as well as provide a good basic understanding of some of the important facts. Participants will develop the foundation for their family’s own personal Future Care Plan™. Some topics of discussion include How to create a map of the future\, preparing legally and financially\, and maximizing government benefits. Also covered will be the ABLE Act; transition; guardianship; Special Needs Trusts\, future residential support and building a lifelong support network.\n\n\nWillow Creek Community Church\n67 Algonquin Road\nSouth Barrington\, IL 60010\n\n\nStay Tuned for the Link to Register!\n\n\nPlease contact Brenda at bkuntz@willowcreek.org with any questions.
URL:https://www.cdlsusa.org/event/planning-for-the-future/
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END:VEVENT
END:VCALENDAR