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DTSTART;VALUE=DATE:20260622
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UID:10384-1782086400-1793491199@www.cdlsusa.org
SUMMARY:Nationwide Champions for CdLS Golf Tournament
DESCRIPTION:Only together we can continue reaching out\, providing help\, and giving hope to individuals with CdLS and their families. Thank you for your donation to this year’s Nationwide Campions for CdLS Golf Tournament! Every gift no matter the amount makes a positive impact in our CdLS Community. \nIf you would like to play a round of golf on your own golf course\, with real golfers’ registration is OPEN; you can play on any golf course\, anywhere with anyone\, and compete with others across the country on a live leaderboard (multiple times) through October 31\, 2026. \nFORE!\nTo register\, sponsor\, support the Nationwide Champions for CdLS Golf Tournament click here
URL:https://www.cdlsusa.org/event/nationwide-champions-for-cdls-golf-tournament/
ATTACH;FMTTYPE=image/png:https://www.cdlsusa.org/wp-content/uploads/2026/06/national-golf.png
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DTSTAMP:20260818T160036
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UID:10178-1788012000-1788026400@www.cdlsusa.org
SUMMARY:Northeast Family Gathering
DESCRIPTION:Graciously hosted by: \nJennifer and Nicholas Arp\, parents of Jenna \nSaturday\, August 29\, 2026\n2:00 p.m. – 6:00 p.m. ET \nThe Arp Home\nAddress will be provided in the confirmation email\nRexford\, NY 12148 \nBring your swimsuit and towel to enjoy the pool! \nBring the whole family and join us for a casual backyard get-together! You’ll have the chance to meet families in the area who share similar challenges and triumphs as parents of children with Cornelia de Lange Syndrome (CdLS). \nMembers of the CdLS Foundation staff will be in attendance. \nPizza\, sub sandwiches\, and beverages provided. Please bring a snack\, side dish\, or dessert to share. \nRegister Here
URL:https://www.cdlsusa.org/event/northeast-family-gathering-2/
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