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DTSTART;VALUE=DATE:20260622
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UID:10384-1782086400-1793491199@www.cdlsusa.org
SUMMARY:Nationwide Champions for CdLS Golf Tournament
DESCRIPTION:Only together we can continue reaching out\, providing help\, and giving hope to individuals with CdLS and their families. Thank you for your donation to this year’s Nationwide Campions for CdLS Golf Tournament! Every gift no matter the amount makes a positive impact in our CdLS Community. \nIf you would like to play a round of golf on your own golf course\, with real golfers’ registration is OPEN; you can play on any golf course\, anywhere with anyone\, and compete with others across the country on a live leaderboard (multiple times) through October 31\, 2026. \nFORE!\nTo register\, sponsor\, support the Nationwide Champions for CdLS Golf Tournament click here
URL:https://www.cdlsusa.org/event/nationwide-champions-for-cdls-golf-tournament/
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UID:10247-1782846000-1782849600@www.cdlsusa.org
SUMMARY:A Screening of Shared Struggles\, Hosted by Courageous Parents Network
DESCRIPTION:Courageous Parents Network believes that the care of children living with serious medical conditions is a shared enterprise between parents and pediatric clinicians. Both want what’s best for the child and family and bring their respective values\, priorities\, and expertise to that work. CPN exists at this intersection\, creating programs and resources designed to foster mutual understanding\, confidence\, and compassionate partnership. \nIn that spirit\, we are delighted to host a Zoom screening of Shared Struggles\, a documentary featuring three sets of parents and three physicians speaking candidly about their experience working with\, educating\, and learning from each other. The film is an extension of the book by the same title. \nThe screening will be followed by a facilitated panel conversation featuring a parent and physician from the film alongside other parents and pediatric physicians — exploring from lived experience what it takes to function well together\, (re)define Hope\, and advance the well-being of everyone in the caregiving enterprise. Panel participants are listed below. \nFor parents\, this event honors the depth of your experience—the uncertainty\, resilience\, and fierce advocacy that define your role. For clinicians\, it offers you a deeper understanding of that lived experience\, honors your commitment to families\, and elevates the opportunity to partner more meaningfully. For both\, it calls us to be curious\, to recognize families as essential leaders in the caregiving experience\, and to together transform the care experience – as it is delivered and as it is received. \nRegistration is required. The screening and panel discussion are available only to those who attend the ZOOM ‘in-person’ on June 30. A recording will not be shared later. \nThis event will take place on Tuesday\, June 30th at 7:00 pm ET (6:00 pm CT\, 5:00 pm MT\, 4:00 pm PT). \nRegister here: https://bit.ly/3P6Mops
URL:https://www.cdlsusa.org/event/a-screening-of-shared-struggles-hosted-by-courageous-parents-network/
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