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SUMMARY:2026 International CdLS Awareness Day
DESCRIPTION:International CdLS Awareness Day is an opportunity for our community and the world to come together to raise awareness about CdLS\, a rare and often misunderstood genetic spectrum disorder. This meaningful day is about more than awareness; it’s about connection\, education\, and hope. \nFamilies\, advocates\, healthcare professionals\, and supporters unite to share stories\, spread knowledge\, and amplify the voices of individuals living with CdLS. From going live on social media and sharing educational flyers to presenting at schools\, civic groups\, and medical offices\, every action helps build understanding and awareness. Many community members also reach out to local media\, host gatherings\, launch social media campaigns\, and organize fundraisers to support research and family services. \nTogether\, we can help promote earlier diagnosis\, better resources\, and a more compassionate world for individuals with CdLS and their families. Every share\, every conversation\, and every act of advocacy makes a difference. \nFor more information\, contact Gabrielle Nadeau.
URL:https://www.cdlsusa.org/event/2026-international-cdls-awareness-day/
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SUMMARY:Midwest Family Gathering- Missouri
DESCRIPTION:Join families from Missouri and surrounding states for a CdLS Foundation-sponsored Family Gathering. \nGraciously hosted by the Sprehe Family\, parents of Izaak. \nSaturday\, May 9\, 2026\n11 a.m. – 3 p.m. CT \nMillennium Park\n2 Barnes W Drive\nCreve Coeur\, MO 63141\nCelebrate International CdLS Awareness Day with us! Bring the whole family and join us! You’ll have the chance to meet families in the area who share similar challenges and triumphs as parents of children with Cornelia de Lange Syndrome (CdLS).\n\n  \nSPECIAL GUESTS: CdLS Foundation staff will be in attendance \nLUNCH WILL BE PROVIDED. Pizza will be provided\, and families are asked to bring a side dish\, snack\, beverage\, or dessert to share. \n\n\nRegister Here.
URL:https://www.cdlsusa.org/event/midwest-family-gathering-missouri/
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