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X-ORIGINAL-URL:https://www.cdlsusa.org
X-WR-CALDESC:Events for CdLS Foundation
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DTSTART;VALUE=DATE:20250510
DTEND;VALUE=DATE:20251001
DTSTAMP:20260525T192648
CREATED:20250306T233308Z
LAST-MODIFIED:20251121T183936Z
UID:8914-1746835200-1759276799@www.cdlsusa.org
SUMMARY:Champions for CdLS Golf Tournament
DESCRIPTION:We are very grateful to every one of you\, our sponsors\, golfers\, and donors\, whose participation and generosity made our recent golf tournament a heartfelt success. Thanks to your support\, we raised an incredible $6\,200 for the CdLS Foundation. \nYour generosity empowers us to continue serving nearly 4\,000 families across the United States and around the world. With your help\, we will continue to fund vital programs and services to our CdLS community. \nYour participation and contributions are making a tangible difference. Although the event is over your continued support can still have a lasting impact on our community. You can donate here. \nThank you for standing with us\, for caring deeply about the CdLS community\, and for helping us deliver hope\, help\, and connection. \nBecause of your support we will continue to reach out\, provide help and give hope to our CdLS Community.\nEven though the course is closed you can still support this event and the CdLS Foundation by donating here: Donate Now! \nInformation for 2026 will be coming soon. If you would like to host a golf tournament in your community please contact Lisa Schroeder\, Events Manager at lschroeder@cdlsusa.org. \nThank you  \n\nThis event was generously sponsored by:
URL:https://www.cdlsusa.org/event/champions-for-cdls-golf-tournament/
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DTSTART;TZID=UTC:20250712T140000
DTEND;TZID=UTC:20250712T180000
DTSTAMP:20260525T192648
CREATED:20250502T172247Z
LAST-MODIFIED:20250502T172343Z
UID:9204-1752328800-1752343200@www.cdlsusa.org
SUMMARY:CdLS Foundation-Sponsored Northeast Family Gathering
DESCRIPTION:Join families from New York and the Northeast for a CDLS Foundation-sponsored Family Gathering.\n Saturday\, July 12\, 2025 \n2 – 6 p.m. ET \n      The Arp Home \n9B Sandpiper Lane  \nRexford\, NY  \n(9B is on the white mailbox with a long driveway) \nGraciously Hosted by Jennifer and Nicholas Arp\, parents to Jenna. \nBring your swimsuit and towel to enjoy the pool!  \nBring the whole family and join us for a casual backyard get-together! You’ll have the chance to meet families in the area who share similar challenges and triumphs as parents of children with Cornelia de Lange Syndrome (CdLS). \nSPECIAL GUESTS: The CdLS Foundation Family Service team will be available to answer questions \nPizza\, sub sandwiches\, and beverages provided. Please bring a snack or dessert to share.\nQuestions? Email Family Service\n\n\n\nRegister here: bit.ly/negathering25
URL:https://www.cdlsusa.org/event/cdls-foundation-sponsored-northeast-family-gathering/
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